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pike188
New Member


Date Joined Apr 2010
Total Posts : 2
   Posted 4/12/2010 6:39 PM (GMT -7)   
Hi everyone!!! I need help and info

My Grandma had cervical cancer years ago and was given radiation , thankfully it is gone now, but the radiation they gave her has caused her to have multiple adhesions on her small intestine.. As far as we have been told the adhesions are only on the small intestine and not the large intestine.. She has been suffering with cramps, vomiting , diarrhea, weightloss , fatigue, ect. It has gotten so bad the she goes through bouts of it 2 - 3 times a week then maybe 4 weeks she will be fine. The doctors we have gone to have all told us there is nothing they can do, cant do a colostomy bag, cant do surgery unless it is an absolute life and death...

I am asking everyone and anyone... have you or someone you know had this problem and what if anything was done? I am worried that my grandma will not be able to keep handling this and it seems that NO doctor is willing to help. confused

finallyfree
Regular Member


Date Joined Aug 2008
Total Posts : 470
   Posted 4/12/2010 7:11 PM (GMT -7)   

Hi Pike,

Why exactly won't they do surgery for the adhesions?  Is it because of the previous cancer treatments?  Because you can have surgery on the small intestine to free up adhesions.  I would continue to seek other opinions and don't give up until someone helps her; some of us on here have had 6-10 gi drs or surgeons before we have been helped.  Keep up the fight for her and keep looking for someone to help!

Judy


 
 
Judy
 
spleen/appendix/gall bladder-removed/endometriosis/complete hysterectomy at 29/sinus surgery/numerous allergies & asthma/chronic kidney stones/ pancreatitis 3x's/2 knee surgeries-now need replacement/bunion & 2 neuroma surgeries/shoulder surgery w/ pins-which also froze following surgery/severe adhesions & scar tissue-stomach to chest-liver to ribs-colon to pelvis/severe IBS w/ constipation/subtotal colectomy 7/08/ c difficile/many kidney surgeries 5/09 through next summer
 
There's AWAYS HOPE, there's a doctor out there that WILL help you and things WILL get better :):):):):)


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 4/13/2010 6:11 AM (GMT -7)   
Surgery for adhesions is usually considered a last resort because more surgery just creates more adhesions. Has she looked into pain management? I know someone who is managing their adhesions well with a pain management clinic. Unfortunately adhesions don't show up on xrays which makes a conclusive finding hard. That and so few people have such a reaction. I'd continue to push this and get to a large metropolitan hospital/surgeon for better treatment. What state do you live in?

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


Stacey4127
New Member


Date Joined Nov 2009
Total Posts : 16
   Posted 4/14/2010 4:39 PM (GMT -7)   
Dear Pike

What part of the country do you live in? I have had surgery for adhesion removal and the surgeon that performed this is a world renowned surgeon. The adhesions never returned. Please write me back if you would like further information.

~Stacey
1994 - exploratory laparoscopy
1998 - emergency laparotomy ovarian cyst
1999 - emergency laparotomy removal of left ovary and endometriosis
2000 - total hysterectomy - laparotomy
2001 - laparotomy removal of mass which was adhesions
2001 - laparotomy due to complications of previous surgery
2003 - laparoscopy removal of adhesions
2006 - laparoscopy removal of adhesions
2009 - 12/17/09  laparospic subtotal colectomy with anastamosis and removal of adhesions
2009 - 12/26/09 - open laparotomy due to leak from subtotal colectomy - ileostomy placed
2009 - 3/2009 [ REVERSAL SCHEDULED]


pike188
New Member


Date Joined Apr 2010
Total Posts : 2
   Posted 4/17/2010 7:24 AM (GMT -7)   
Thanks guys for the responses!!! We are actually located in upstate PA, small town, so I feel like the Doctors are not helping because they either don't know or don't want to. I did read somewhere that Cornell NY has a good specialist, anyone know for sure? One reason the docs wont do surgery is due to her weak heart, which now has a pacemaker, WHICH was caused from the Small intestine adhesions ( throwing up and all the stress/cramps) so now we are stuck in a hard place... Has anyone had a colostomy bag done on the small intestine? the docs said that was not possible.. I truly appreciate any info I can relay back to so any names of specialist, procedures, medicine ect that could help would be great to know!!!

thanks everyone!!

Ryan!

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 4/18/2010 3:53 AM (GMT -7)   
A small bowel ostomy is called an Ileostomy, and YES, they can do those (but not sure about doing one with her history)...many of us here have them:)

Would a low residue diet help until she can have things sorted out? Depending on how far you can travel...Pittsburgh, Rochester or Cleveland (my first choice) aren't more than a day's drive.
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008

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