I never knew what I could eat and I still don't (it's been 2 months-ish). I know i've been eating particular types of food and I've been safe with them but I want to have variety. I want to be able to go out to a restaurant and confidently order a meal knowing that I'm not gunna end up in agony that night from eating somehting I shouldn't have.
I know that different people react differently, so what is edible for some wont be for others...
A booklet my STN gave me on eating with an ileostomy said...
* Because You now have a stoma you do not have to change your eating habits
* You may be able to eat foods you were having trouble with prior to surgery. Chew all food well.
I found those lines funny, as after them the next 2 pages consists of a list of foods that may
cause gas, odour, blockages, and thicken output. All food that I should avoid (or try to eat if I need thickening). Whats even funnier is the fact that before surgery people told me I would be able to eat more types of food once I have the ileostomy, but I could eat just about
anything before the surgery, and now I have this list! hahaha wow.
Anyway, I was hoping to confirm a few food things. First this is what I know is the case for me:Foods That Give Me Gas
BBQ Meatlovers pizza (from Dominoes). Had it three times so far, bag blew up like a balloon each night. My booklet indicates the ham could cause it, but I can't confirm...Foods That Thicken Output
Potato (although I'm sure I still see bits of potato when I empty)
Pumpkin Foods I've eaten that haven't given me a blockage since I left hospital
(that aren't listed above)
Steak et al
Toast (white bread apparently
Smooth Peanut butter (apparently
Chocolate (Very watery output around Easter, connection??)
Other then the above mentioned food, I don't remember eating anything else. I think I'm too afraid to try anything else, I don't want a blockage.
I have carrots and beans in the freezer, I'm not going to touch them. I haven't had beans since before surgery. The outsides of beans are usually harder so maybe it'll cause a blockage?
Mum cooked me a meal a few weeks back which had zucchini in it. She went to the hard effort of cutting the outer skin off it as I was too paranoid to try it with the skin on. But then I saw seed things in the zucchini and couldn't bring myself to eat it. I felt so bad after all her effort. I've been told that seeds from say breads and buns can cause blockages, and I dont know about
fruit and vegetables. I've only really started eating salad in recent years (used to be a fussy eater as a child, just started trying more foods about
5 years ago, now I'm even fussier then I was as a child). But now I'm not sure if I'm allowed to eat tomatoes? As they have seeds in them. Do you eat salad?Sausages
I love sausages! Loved Sausages...
But this booklet says "Some sausage casings" in the "Foods that can cause a blockage" section.
My STN said it mainly applies to those sausages that have the skin falling off them. So I buy the skinnier ones (the ones I always liked anyway) which I've never seen the skin fall off. I was at my aunties for a BBQ and had sausages on my plate. I sat there for ages stairing at them, they had little flakes of skin falling off them. Now I have to boil the sausages, let them cool then peel the skin off before I get to BBQ them. All because it says "Some sausage casings".
At uni there are free BBQ's there hosted by different societies, You can easily get a free lunch 6 times a month, I doubt they boil there sausages before they BBQ them! haha
So what do you do with your sausages?Bread
I was in hospital for a month, had white bread for breakfast (toast) every day and a few white bread sandwiches every second day or so.
I figured white bread was the safest option as it was easily digestible (and it says "White Bread" in the 'foods to help thicken your stomal output' section of my booklet they gave me). But then I had a dietician come around to see me the day before I went home (a month after i got my first stoma). He told me that I actually should be having Wholemeal bread OR White bread that is high in fibre. (even though the booklet says lots of fibre can cause a blockage) to avoid blockages. And yet, I didnt get a blockage in hospital.
I currently eat White bread that is high in fibre, I sometimes have 6 slices for breakfast a day. No blockage so far. Although I'm often still hungry, I'd love to have cereal like Nutri-grain (cereal in Au and NZ) or something, but I dont know if it will cause a blockage or something. :sBiscuits
Someone once mentioned they thought biscuits help thicken up the output, does this sound right? Although, I could eat an entire packet of biscuits before bed and still have watery output by the time I get up in the morning. Its weird like that, its always watery in the morning then it slowly thickens up over the course of the day (hopefully). But then, if biscuits thicken the output and I ate a whole packet before bed, shouldn't that have been too thick?
I know there are a lot of questions here. I had a look for a comprehensive thread on foods but couldnt find one. If I overlooked it you can just paste the link. But I've read different pamphlets and different topics and it just seems like there are a lot of contradictions out there. As in some people eat carrots, others strictly avoid them, while others only eat them when they have been shaved.
I'm hungry right now, I have a packet of Pappadams in the kitchen I often heat up when I get home after a night out. But, I'm not sure if I can eat them, I'm not going to. I'd rather go to bed hungry. Actually, I think I might go have some toast!
Male, 22, diagnosed with Crohn's at 13.
, Humira injections.
On and off Prednisone for years.