Just went to a GP today for a UTI and during her general questioning it came up that I had had surgery a month ago. The conversation went as follows:
Dr: What'd you have done?
Me: I had my colon removed.
Dr(incredulous): You had your COLON REMOVED???
Dr: The whole thing?
Dr: So...do you have a bag?
Seriously, A)Don't call it a "bag," B)Is it that uncommon to have this surgery that she should be so surprised?
Another time, right after I had my surgery, I had a nurse come by my house because she was supposed to help out after my surgery...luckily I was functional enough not to need her, becuase in her initial questioning she goes, "So, do you know how to change your...your...colostomy?" After she had LOOKED AT IT and clearly I have an ileostomy--how was she supposed to help me recover from my surgery if she didn't even know what kind of surgery I had??!
It really makes me even more committed to standing up for myself in my medical treatment.
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
Total Proctocolectomy and Permanent Ileostomy 3/18/10!
Tried: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas, Psyllium Seed Powder... Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
Currently on:7.5 mg Prednisone, Prenatal Vitamin, Vitamin B 12 Complex, Vitamin D, Calcium, Flomax (for urinary retention).