Sorry I have not posted. I was in the ER this week with low potassium and pain and alight infection and just have not been feeling well. I did way to much. I have been helping my mom (she had foot surgery wed and cannot get around well and does not get a better cast until the day before we leave for my surgery) so I have been doing her cleaning, baths for the kids (she has my sisters 2-the one i have been talking about) and then my younger sister works 330-12am and leaves her 3yo overnight when her boyfriend is out of town with work and this has been a lot lately and she will not try and find a night sitter and it has caused my mom to tears so I have been doin laundry, cleaning, getting kids dinner, taking older one to practice, picking him up, picking up dog poop, baths, bedtime stories, etc and in the mess of all of this I threw that shower sat for 25 people at my moms house, cleaned up and have just been going, going going since last wed and I crashed today and feel like I can barely move agian so I took 40 Meq of potassium and ran some errands, but going to try and just lay here.
Tracy- I got you pics and something is defnatel not right and like me I had a mechanical obstruction that led me into very ill siuations so I hope theyhelp you and figure you. They may not want to call it anismus, but something is wrong and it does not look normal!!!!!!! Also, not getting the barium out at all in itself is enough proof that you have an outlet issue and need surgery. You need your rectum removed and colon and need to decide if an ileo is what you are willing to do as I do not think TC is going to work for you.....or a kpouch, but as you know your surgeon was against it. Mine is not, but if mine fails again a perm ileo is not scary to me....you need your life back.
Lori- I think of you everyday and pray for you....I am so worried for you it makes me ill to the heart. Never ever stop believing in God strength to take care of you and know you are always always in my heart and prayers.
I have not had time to catch up....to exausted, but I love you all...Janie, rosemary, Gilda (so good to hear your voice and I am praying praying praying for you and this surgery), Jenise, Hodaya I am worried about. I got am email from her and her second defogram she was able to get all but I believe almost 30 % of barium out, but she is very down, isolated and not living. She has to get up 3 hrs before work to just get some of the stool out.....
I have been very down myself and in a lot of pain as my tube is beginning to leak more and more and my skin has allopen sores from the stool on my skin and I do not sleep as I am always taking care of my skin. Thank God I saved some of my stoma powder and am trying to heal it in this way, but have not had much luck. I feel like I cannot eat anuthing anf this is not good before surgery, but I am....just not enough and the protein I am trying to eat makes my output smell horrible :( I can hardly stand it!!!! Anyways....
love you all and thise names I did not mention does not mean you are not in my heart, I feel very down and depressed and scared and have not been talking to many people, but I will def be updating you more frequently as you are all I have,
Chronic Lifetime Constipation, Dx IBS-C for 7 yrs
Diagnosed Colonic Inertia-Oct 2007
Total Colectomy with ileorectal anastamosis- Jan 28, 2008
Ileus with suspected leak- Feb 1, 2008, ended with four abdomal abscessses and 2 drains
Diagnosed with small bowel Fistula- March 6 2008
Drains removed- End of March 2008
Continued Constipation- biofeedback for 3 mo Aug 2008, Dx Rectal Inertia (Anismus)
Admitted with Small Bowel Obstruction April 4, 2009 and emergency ileostomy 4/13
Re-admitted with abdominal abscess. Released 4/24
Cleveland Clinic twice for 3/4th referral. Anismus undetected (no medical explanation)
Retracted stoma-infection/skin breakdown.
Ileostomy Reversal- Oct 8, 2009. Ileus/Dehydration 10/13. New rectal dysynergia-biofeedback-11-19
Bowel Obstruction 1-7-10 through 1-19....PICC, Tpn/Lipids...transferred to Cleveland Clinic 1-19 for BCIR (k-pouch). K-pouch surgery Jan 25 by Dr. Dietz in CC. Muiple complications (blood clots, hemmorrhage, three abscesses) After near six weeks in hospital home recovering. Now developing some type of RA and aving issues with pouch. Going to get scoped this Thursday 2/8 in Cleveland. Say your prayers. Worst fears came true....another major surgery.
-Slipped valve and replacement tube in until surgrry May 7, 2010
"The Greatest Healing Therapy is Friendship and Love"