First Day Back At Work! :) And a silly (?) question

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80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 4/27/2010 2:47 PM (GMT -6)   
Hello All!
I'm just short of 6 weeks post-op and yesterday was my first day back to work! I had a great day and am feeling awesome (minus some stupid bladder issues I am having because of complications from the surgery...seeing my urologist this week. Ugh!!!). I felt great getting back to the real world and was pleasantly surprised to see that I could do everything everyone else could do :)
 
Two weird questions...bear with me! I work at Disney World as a performer in parades and shows. I am doing great keeping up with everyone physically, but I have some questions about costumes:
 
1. I have one costume that is really tight and I have to wear tights with. Wearing tights is weird--I feel like it smashes my stoma down. Is that a problem? Could it harm my stoma? On the upside, with the tights you REALLY can't see my stoma or pouch at ALL through the leotard!!
 
2. I have one costume that is a 70 pound dress. It has a top and a skirt, and the skirt is the heaviest part. The skirt rests right at my waist (obviously right at my stoma). I am going to try to get disapproved in the costume since a) I am nervous about a hernia and b) I don't want it to harm my stoma...am I right in being worried about it?
 
I am still so happy I had the surgery. I am getting more comfortable with my ostomy every day! :)
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
Total Proctocolectomy and Permanent Ileostomy 3/18/10!
 
Tried: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas, Psyllium Seed Powder... Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
 
Currently on:7.5 mg Prednisone, Prenatal Vitamin, Vitamin B 12 Complex, Vitamin D, Calcium, Flomax (for urinary retention). 


snugglesaurus
Regular Member


Date Joined Apr 2010
Total Posts : 206
   Posted 4/27/2010 2:58 PM (GMT -6)   
Yes, you should be worried. I don't have a stoma, but anything extra weight around it couldn't possibly be good and you don't want to risk getting a hernia either.

Nice job on covering up everything :) Maybe it'll inspire some new fashions for stoma folks!

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 4/27/2010 5:26 PM (GMT -6)   
You don't have to worry about tights... tights are our friend!! You will find that your stoma will function just fine:) I wear Spanx when I am dressing up (it's more to hold in my cellulite than my ostomy pouch!!!) and it works great.

I am not sure that wearing the costume would cause a hernia...but lifting it is another story...I would think that it might cause more issues with the appliance sticking. You may also find that you have to change your appliance more often if you sweat and it's hot out. I am really active and find I have to change every 3 days during the summer months:(

You sound great and what a COOL JOB to have!!
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 4/27/2010 7:32 PM (GMT -6)   
the tights wont matter at all! in fact i cut the tops off sometimes and wear them with certain skirts, lol.
As for the costume, i dont think it would cause a problem wearing it, but since you are only 6 weeks out, you shouldnt be lifting that much anyway!
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007! 
-I have gone to find myself, if i get back before i return, keep me here-


80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 4/27/2010 10:22 PM (GMT -6)   
Thanks for the replies, guys. I would ask my surgeon but he is just like a crazy "go for it" kind of guy...gave me no eating or lifting or exercising restrictions at all after surgery, so I thought I'd ask you all :)
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
Total Proctocolectomy and Permanent Ileostomy 3/18/10!
 
Tried: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas, Psyllium Seed Powder... Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
 
Currently on: 5 mg Prednisone, Prenatal Vitamin, Vitamin B 12 Complex, Vitamin D, Calcium, Flomax (for urinary retention). 


esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 5/2/2010 12:50 AM (GMT -6)   
Hi 80's,

No lifting over 10 lbs for 8 weeks. Avoid nuts, seeds, peels, and chew, chew, chew, and drink 10-12 glasses of water per day. Also be sure to take in enough salt and potassium to make up for that lost in the effluent. If you dance at Disney, you will need to drink a lot to avoid dehydration. Use gator ade in moderation as too much sugar can speed up your output and you may need to empty right in the middle of a parade.

I really admire you especially since you are so young and have such an active career. WOW!

If I were you I would talk to your boss and the costumer and do what you have to do to keep your stoma nice and safe. Your life depends on it.

Good luck, Rosemary

cleo35
Regular Member


Date Joined Feb 2007
Total Posts : 430
   Posted 5/4/2010 8:15 AM (GMT -6)   
If you are being seen by a certified ostomy nurse he/she is the one to ask.  They get a LOT of feedback from their patients about what to avoid what works, what doesn't etc.  Surgeons are just the ones that create the stomas - they don't follow up with the patients beyond the first several weeks.
 
I've had an ostomy for 4 years and I can tell you the tights are no problem - my ostomy nurse told me I could lay flat on my stomach and not affect the stoma - mind you I have tried this yet; the psychological problems with that are probably more worrisome than the physical :)  The other heavier costume I would ask the nurse about.  You haven't come this far in the process to risk it all. 
 
Best of luck! 
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