I'm just short of 6 weeks post-op and yesterday was my first day back to work! I had a great day and am feeling awesome (minus some stupid bladder issues I am having because of complications from the surgery...seeing my urologist this week. Ugh!!!). I felt great getting back to the real world and was pleasantly surprised to see that I could do everything everyone else could do :)
Two weird questions...bear with me! I work at Disney World as a performer in parades and shows. I am doing great keeping up with everyone physically, but I have some questions about costumes:
1. I have one costume that is really tight and I have to wear tights with. Wearing tights is weird--I feel like it smashes my stoma down. Is that a problem? Could it harm my stoma? On the upside, with the tights you REALLY can't see my stoma or pouch at ALL through the leotard!!
2. I have one costume that is a 70 pound dress. It has a top and a skirt, and the skirt is the heaviest part. The skirt rests right at my waist (obviously right at my stoma). I am going to try to get disapproved in the costume since a) I am nervous about a hernia and b) I don't want it to harm my stoma...am I right in being worried about it?
I am still so happy I had the surgery. I am getting more comfortable with my ostomy every day! :)
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
Total Proctocolectomy and Permanent Ileostomy 3/18/10!
Tried: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas, Psyllium Seed Powder... Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
Currently on:7.5 mg Prednisone, Prenatal Vitamin, Vitamin B 12 Complex, Vitamin D, Calcium, Flomax (for urinary retention).