Ileostomy reversal

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New Member

Date Joined May 2010
Total Posts : 2
   Posted 5/8/2010 12:57 PM (GMT -6)   
I've been reading thru so much information. After 6 months with an ileostomy, I am told I can now have a reversal, BUT I'm really reconsidering it after reading so much about what my life might be like. Right now, at age 63, with the pouch, my life is manageable and I do fine--can eat anything and drink anything. After 30 years of Crohn's Disease, which now feels so controlled, so do I really want to reverse this????

Equestrian Mom
Veteran Member

Date Joined Mar 2008
Total Posts : 3115
   Posted 5/8/2010 2:20 PM (GMT -6)   
I did once, about 10 years ago, and now have a permanent ileostomy:) It's a personal choice, I was 32, and realized I could have a life with an ileostomy, so I had a temporary loop done (after the reversal) and kept it for about 8 years before having a proctocolectomy. I am now 2.5 years after my proctocolectomy and life is great (knock on wood!) without joint pain, fistulas and the rest of my Crohn's issues. I am also med free for the first time in a LONG time:)

With that, I also know that Crohn's can come back, but I will cross that bridge if I have too!

What was the reason for your ostomy? Was your disease in your small or large intestine? Just make sure, if you keep your ostomy and your colon, you continue to have colonoscopies on a regular basis.
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008

New Member

Date Joined May 2010
Total Posts : 2
   Posted 5/8/2010 4:29 PM (GMT -6)   
Thank you for your feedback. . .I've had Crohns for 30 years, my doc misdiagnosed the seriousness of a stricture and my stricture tore in Oct 09 and I wound up in the ER. Once I was stabilized, they removed my colon, thus the ilestomy. At first it was terrible, but now I'm learning to live with it very well. I don't have to take Crohns meds, I can eat anything I want and life is good. I don't know if I want to go through what everyone is talking about after the reversal! I'm also certain, the Crohn's will come screaming back.

Regular Member

Date Joined Mar 2007
Total Posts : 282
   Posted 5/9/2010 6:56 PM (GMT -6)   
Patsy - I too have had Crohns for more than 30 years. In October of 2006, I had an ileostomy done. I recently turned 70 and am doing fine. I ain't goin back for more surgery. I am happy with what I have.
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