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suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 5/8/2010 5:59 PM (GMT -6)   
Has anyone heard how NASCAR Ron is doing? I'm worried about him, he hasn't posted in a while and I know he's in pain.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 5/8/2010 6:04 PM (GMT -6)   
Sue,

I will send him an email through Facebook and will let you know what he says.

Cecilia
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 5/8/2010 6:17 PM (GMT -6)   
Thanks Cece ~ I've been worried, too, I know he was having some more testing but hadn't heard...
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 5/8/2010 6:32 PM (GMT -6)   
Thanks Cecilia!

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 5/8/2010 8:59 PM (GMT -6)   
no i havent heard from him, or gotten a gift through fv either, which is odd, i will send him an email too!
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 5/8/2010 9:49 PM (GMT -6)   
Hmmm... I couldn't find him anywhere on Facebook, which is weird, because I know he was listed as one of my friends.

Summer, did you have any luck?

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 5/8/2010 10:09 PM (GMT -6)   
yeah i sent him a message
but no answer
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 5/9/2010 7:22 AM (GMT -6)   
Cecilia,

He's also no longer on my FB page?

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


pam222
Veteran Member


Date Joined Jun 2009
Total Posts : 985
   Posted 5/9/2010 7:50 AM (GMT -6)   
He's not on mine anymore either
27/F Diagnosed with unspecified UC 11/08 (symptoms for over a year before)
Asacol, Prednisone, Remicade with no success--no remission for over 2 years
8/09 colonoscopy shows that the whole colon is affected
12/18/09 Removal of colon, creation of J-Pouch and ostomy; recessed stoma
12/30/09 Takedown too soon; RV fistula
1/9/10 Second Ileostomy Surgery with sparing of the J-Pouch
1/25/10 Stoma Revision Surgery and Attempted Fistula Repair(couldn't find it)
3/30/10 Takedown again
Imodium (8/day), Questran (3/day), Flaygl 250 mg (3/day), TPN 14 hrs/day, IV fluids 4 hrs/day Prednisone 7.5 mg (1/day), Florinef .05mg (1/day), Sandostatin infusion 300 mcg (2/day)


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 5/9/2010 9:19 AM (GMT -6)   
ok he answered me, says he's still not sure whats wrong,but he's ok
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

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