Does anyone have sensitive skin? Adhesives are KILLING ME.

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80sChick
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Date Joined Oct 2009
Total Posts : 1054
   Posted 5/8/2010 6:14 PM (GMT -6)   
Hi all--
I've always had really sensitive skin and I am not surprised that my wafer is creating a very itchy rash. I need to find a new kind of wafer, and quick! I'm using Hollister right now, and I am cutting off the adhesive part at the suggestion of my nurse, as the rest is made of just pectin and she said that should be fine until I can find another kind that works.
 
Does anyone have any suggestions? I'm such a newbie, I don't even know what other companies there are in order to try out their products. Thanks guys!
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
Total Proctocolectomy and Permanent Ileostomy 3/18/10!
 
Tried: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas, Psyllium Seed Powder... Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
 
Currently on: 5 mg Prednisone, Prenatal Vitamin, Vitamin B 12 Complex, Vitamin D, Calcium, Flomax (for urinary retention). 


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 5/8/2010 6:29 PM (GMT -6)   
Sorry to hear that...it can be really frustrating to find one you can tolerate!!!

My first suggestion is to cut that tape/paper off...which you've done...does that help?

Every brand is a little different and just because Hollister bothers you, it doesn't mean another brand won't. Convatec has a similar paper (It bothers me more) so I wouldn't bother with that brand, but Coloplast doesn't have any paper/tape in their extended wear model (not sure about all of theirs) so you may want to call them and get a sample.

You could do a small skin test with tape/paper samples from all the brands and see if there is one that doesn't itch or cause a rash...ask your WOC Nurse if she can help.

Let us know what you find!
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008

Post Edited (OHIO76) : 5/9/2010 5:19:35 AM (GMT-6)


pam222
Veteran Member


Date Joined Jun 2009
Total Posts : 985
   Posted 5/8/2010 8:20 PM (GMT -6)   
I didn't find a solution before I had my takedown, but, yes, I would get a rash under the adhesive
27/F Diagnosed with unspecified UC 11/08 (symptoms for over a year before)
Asacol, Prednisone, Remicade with no success--no remission for over 2 years
8/09 colonoscopy shows that the whole colon is affected
12/18/09 Removal of colon, creation of J-Pouch and ostomy; recessed stoma
12/30/09 Takedown too soon; RV fistula
1/9/10 Second Ileostomy Surgery with sparing of the J-Pouch
1/25/10 Stoma Revision Surgery and Attempted Fistula Repair(couldn't find it)
3/30/10 Takedown again
Imodium (8/day), Questran (3/day), Flaygl 250 mg (3/day), TPN 14 hrs/day, IV fluids 4 hrs/day Prednisone 7.5 mg (1/day), Florinef .05mg (1/day), Sandostatin infusion 300 mcg (2/day)


ducridr
Regular Member


Date Joined Apr 2008
Total Posts : 139
   Posted 5/9/2010 10:07 AM (GMT -6)   
Hollister and other manufacturers make a wafer that has no tape. As a person with an adhesive allergy I never got one with tape. Also - all manufacturers have multiple types of wafers so just because one doesn't work don't assume that others won't. Call the manufacturers and talk to the reps and get samples to try. However, I also found that if I didn't get all the old adhesive off I would get a rash from the leftover adhesive so I had to use an adhesive remover and make sure that I got it all off. Also, many people have said that the various additions (sprays and powders) that you may use may cause a reaction also. I only used stomahesive powder when needed and nothing else. I also shaved the area where my wafer went but others have indicated that shaving irritated their skin more than not shaving. Keep in mind that it could also be a yeast or fungal infection and might require more to clear it up. You definitely want to get on top of this as it's much harder to fix the worse it gets because you can't keep a wafer on as long so you irritate the skin more because you have to change more often. Just an FYI - there are adhesiveless systems if you end up needing them. I got lucky and never had to once I figured out a method that worked for me.

Here's a link to the UOAA list of manufacturers with contact info so that you can call them for samples and to talk to them about the problem.

www.uoaa.org/ostomy_info/suppliers.shtml

Good luck!
Ducridr - 36 - female

Diagnosed w/ severe pancolitis 11/20/2007
Asacol - 6 (400mg) 2x/day, Xifaxin 2 (200mg) 2x/day, Prednisone 15 mg (started at 40mg Nov 08 - off June 09), multi-vitamin, calcium and vit d supplement, potassium supplement, B-12 supplement, Junel FE (BCP),metamucil capsule (1/day) Coumadin (for blood clot) 5mg/day, 1st Remicade treatment 2/4/2009, 2nd - 2/18/09. Currently getting Remicade every 4 weeks.

J-Pouch surgery #1 of 3 on 8/21/2009!!!
Surgery #2 on 1/4/2010
Surgery #3 scheduled for 3/23/2010


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 5/11/2010 7:57 AM (GMT -6)   
is it possible that you are not getting a good seal and you are getting an itchy feeling from having a leak?
Or if you are taking a shower with it on, is it possible that you haven't gotten the area completly dry?
Both of those things can cause the itchies and those are pretty easy to fix.
Other than that i think everyone else gave you good advice
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 5/11/2010 7:58 AM (GMT -6)   
oh and someone mentioned some kind of special tape they used, it was like goat tape or lamb tape, ill try really hard to remember because they had very sensitve skin, so if nothing else works, maybe you could just wear the waxy part and frame it with that tape
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!


80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 5/11/2010 2:51 PM (GMT -6)   
I don't think it's an issue with leakage/the seal. The part of my skin that is irritated is the part where the adhesive is, farthest from the stoma. It's gotten a little better since I've started cutting off the outside but the issue now is that since i'm cutting off the outside, it only sticks on by like 1-1.5 inch ring of pectin, and it starts to come unstuck after only a day. UGH! I can't order any full wafers with no adhesive until the end of the month, but I'm nervous that once i do order them, those won't stick either. :( I don't know what to do.

I've contacted some companies to get samples but it is a slow process and is taking forever. I'm really frustrated. :(
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
Total Proctocolectomy and Permanent Ileostomy 3/18/10!
 
Tried: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas, Psyllium Seed Powder... Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
 
Currently taking: Prenatal Vitamin, Vitamin B 12 Complex, Biotin, Vitamin D, Calcium, Flomax (for urinary retention). 


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 5/11/2010 6:22 PM (GMT -6)   
i wonder if you could put a sure seal over that? that may not break you out, and it would help hold it down
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 5/12/2010 5:17 AM (GMT -6)   
That's a good idea summerstorm...I was thinking that, too...it does breath and doesn't absorb water...hmmmm
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008


80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 5/12/2010 11:12 AM (GMT -6)   
I have been putting a sure seal over the little ring of pectin that's left....it helps a little but not a lot because with my job I sweat A LOT, and I think that's a big part of the reason I have to change it so often. You guys meant to just put the sure seal on the wafer and not on my actual skin, right?
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
Total Proctocolectomy and Permanent Ileostomy 3/18/10!
 
Tried: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas, Psyllium Seed Powder... Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
 
Currently taking: Prenatal Vitamin, Vitamin B 12 Complex, Biotin, Vitamin D, Calcium, Flomax (for urinary retention). 


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 5/12/2010 12:16 PM (GMT -6)   
Thats one thing i was saying about your irriation, is it possible that you arent getting dry under the bandaid part? From the sweat or a shower? Like if i dont get that part dry, it itches like crazy until i change!
take some of bandaid part off, and put it on your stomach somewhere else, when you arent going to get wet, and see if it itches then.
maybe its the water and the sweat and not the actual product.

Anyway, for the sure seal. Put it on over the wafer part and it will extend past that onto your skin. Which will help keep the wafer dry and help give you some more support to keep in on your skin.
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 5/12/2010 12:36 PM (GMT -6)   
You could try it either way (I was thinking over the pectin)...but it's not worth being miserable trying it out!!

Would you feel a little more secure if you used an ostomy belt when you worked? It won't help with the sweating and fast deterioration but it might give you piece of mind while at work???

I have to change about every 3 days during the hot months because I am very active and outside a lot...some can go longer and some cannot!!!
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008


Suzy2
Regular Member


Date Joined Aug 2003
Total Posts : 335
   Posted 5/14/2010 5:02 PM (GMT -6)   
Hello all. I haven't been here in what I think is probably years. I have had an Ileostomy since 2003 due to UC.

Just a thought but I wonder if 'Cavilon No sting barrier film spray' might help you. You spray all over your skin where you will place the bag(Although in your case a small skin test first is probably best) I have found that it not only helps to protect the skin from the adhesive but it helps the bag to stick to the skin better too. You must make sure your skin is dry before spraying it on though.

Suzy
</DIV>

Post Edited (Suzy (used to be known as bag lady)) : 5/14/2010 5:09:30 PM (GMT-6)


Trigirl
Veteran Member


Date Joined Jan 2006
Total Posts : 768
   Posted 5/16/2010 8:45 AM (GMT -6)   
Susy suggested what I found as a good answer. The Barrier film spray worked wonders until my skin got a little tougher. Now I use it only when skin showing signs of getting irrittated, and it recovers.

Also I agree with above that when bandaid part doesn't get dry it's itchy. Matter of fact when I wear the sure seal and then workout really hard it is a worse problem than none at all.
Those things we keep trying to do get easier not because the feat gets easier but our ability to "do" gets better.
Thyroid cancer removed 1988
Stomach problems finally figured out 2001 Crohn's/Colitus
Tried every drug without much success
Colon/rectal cancer removed Aug 2009
6 Grown kids, grandkids and a great husband to keep me busy


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 5/16/2010 6:33 PM (GMT -6)   
i worry that the spray might make her leak when she gets all sweaty though.
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!


Suzy2
Regular Member


Date Joined Aug 2003
Total Posts : 335
   Posted 5/17/2010 3:17 AM (GMT -6)   
Hi Summer. I used the spray when on Holiday in Spain and we had a few 'very hot' days and I found that even though I got very hot and sweaty the bag was still stuck fast.

I use the Coloplast Assura drainable pouch and have only ever had 3 mina leaks in 7 years and all 3 due to a bit of laziness on my part.
</DIV>

Post Edited (Suzy (used to be known as bag lady)) : 5/17/2010 3:21:08 AM (GMT-6)

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