Oh Pam...I am soooo sorry you are still suffering so much. I wish there was something I could do to help you. I just keep praying hoping God will hear me.
I am going ahead with the ileostomy. First I have to have a stress echo because of my age I guess. I call Dr. Fry's office (he's going to do the surgery at Pa Hospital..I would have preferred Univ of Pa Hospital but his office is at Pa Hosp) tomorrow to set up the date. Most likely it will be in about six or seven weeks. He wants me off the Humira at least six weeks and my last injection was Wed.
Are you still on all those meds listed at the bottom of your post?