My First Leak. By Oz Crohnie (haha, its like a book :p )

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OzCrohnie
Regular Member


Date Joined Jan 2010
Total Posts : 61
   Posted 5/14/2010 4:29 AM (GMT -6)   
I recently got one of those stretchy wasteband things. I was going to come on here later and rave about how fantastic they are. I mainly like them as:
1. I can wear short shirts that would usually show my bag when i lift my arms in the air.
2. I can wear tighter-to-normal shirts without having to wear a tight singlet underneath to prevent the edges of my bag poking into my shirt and therefore me seeing the outline of it.

But, I've found another benefit.
They keep your poo in.

The story....
(it's in dot point to prevent myself from writing an essay)

Changed the bag, seal seemed fine, seemed great actually.
Put the waste band on and went to work.
1.5 hours later, emptied, all was swell :p
another 1.5 hours later, I smelt something, it wasn't a bad smell & it was one of those smells that you could only barely smell.
30 minutes later, I'm driving home from work, decide to stop at the automatic laser car wash (My car has only been cleaned once in 2 years, HA! ).
So I'm in the car, while its being washed and I notice my shirt has a damp patch.
I lift it up... I notice the wasteband is wet....
I pull back the top of the band and there it is, poo all over the place.

I can't go anywhere, as the moment I step out the door, I'd be shot by some kind of jet propelled water cannon that'd probably send me flying across the road. Instead, I wait and then drive home.

It took me awhile to figure out HOW I was going to change it and clean everything up. It was my first real leak. I'm not sure what leaks are normally like, but the section of the base plate that was no longer on my body, was HUGE!! Well I think it is anyway, it was the entire right section of the base plate...

So I had a shower, my first time in the shower with no bag since my second operation. I'm so glad I didn't have lunch today, as nothing came out the whole time I was in the shower and changing the bag, probably because it was all inside my wasteband :p

So I'm trying to figure out WHY it happened. The only thing I can think of is that perhaps I cut my hole in the baseplate a little too small this time and it somehow didn't go over the stoma properly. But wouldn't I know? I can't think of what it could be. Can't believe the bag only lasted like 5 hours...

The previous bag I had on for 2 days (which is rare, as I like to change it every morning) and it had a small trickle of stuff on the plate as though it was starting to form a leak. I was surprised when I saw it as I always look at the base plate to see and that was the first time i noticed a potential leak.

Anywho, What causes leaks? Especially when the seal looks fine.
And more importantly, Does anyone know HOW I'm meant to wash those wasteband things? I don't want to wreck it seeing as it took ages for me to get it, but I need to clean it. Its currently soaking in a bucket, but can it be washed in the washing machine? Or only hand washed? It's just that its a different type of material I've never washed before....
Male, 22, diagnosed with Crohn's at 13.
Permanent ileostomy in February 2010.

Medication: Salofalk, Infliximab infusions, Humira injections .
On and off Prednisone for years. Currently only at 5mg
Loperamide (aka Gastro-stop) when needed.


Favourite Quote: Unfortunately my quote (while perfectly acceptable in Australia) contains language that is considered unacceptable in some countries outside of Australia. I guess that's what happens when you comment on a forum used by many different cultures. So I've provided a link to the Wikipedia entry for the quote instead.


NewShinyCD
Regular Member


Date Joined Oct 2009
Total Posts : 474
   Posted 5/14/2010 9:48 AM (GMT -6)   
What waistband are you taking about, the Phoenix support belt? I would think you could put it in the washer on a delicate cycle.
Diagnosed with Left-Sided Colitis in 2002, re-diagnosed with Pancolitis in Nov. 2009.
Colazal 4 2x daily, Prednisone 10mg-5mg daily, (no longer using psyllium or turmeric) take 1 Imodium daily to help with cramps, gas, and D.
Since starting Turmeric (evening of 1/16/09) my symptoms have started to disappear :3
Toxic to 6mp :(


esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 5/14/2010 11:24 AM (GMT -6)   
Was it the waistband that somehow moved around and dirupted the seal and made the face plate move? Rosemary

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 5/14/2010 5:45 PM (GMT -6)   
i dont know what type of waistband you are talkign about, the thing i use i just wash with my regular clothes.
But as for what causes leaks, sometimes its a defective product, usually its operator error! Something like cutting the hole too large, or not getting the bag attached to the flange all the way. Certain products like skin preps or some soaps can also make it leak easier.
Sounds like you handled it well though!
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 5/15/2010 6:35 AM (GMT -6)   
I had a few issues when the hole was too small...it looked okay to me, but when my ET Nurse suggested I go a size larger...the issues stopped. I don't know if that would solve your issues, but like summerstorm mentioned, a too big or too small hole can cause issues:(

Depending on your stomach and stoma, you may need a little convexity, if you aren't already using it. Do you use paste or seals?
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008


cleo35
Regular Member


Date Joined Feb 2007
Total Posts : 430
   Posted 5/17/2010 2:03 PM (GMT -6)   
I had this happen once and the only answer I could come up with was that the adhesive on the plate was defective and didn't hold. The paste is a barrier and isn't holding the plate to your body as I undertand it.

OzCrohnie
Regular Member


Date Joined Jan 2010
Total Posts : 61
   Posted 5/31/2010 11:18 PM (GMT -6)   
It is a 'Comfort Plus Support Wateband' thing...

Thankfully I ended up washing it in the washing machine by itself (after soaking it). I say "thankfully" as the black colouring ran all through the water. Although that makes sense as its basically brand new...

I don't use paste or seals. And I still wasn't sure what this 'convexity' was until this morning (I knew what it was, but didn't know that that word was what it was referring to, if you know what I mean?). I've ordered some "hydra frame" seal things (Basically extends the area of the base plate to provide a better longer lasting seal). I thought they might be a good idea as I'm going out drinking for the first time in aages on Friday night. And I really dont want to have any problems if I'm going to be drunk and in town.
Male, 22, diagnosed with Crohn's at 13.
Permanent ileostomy in February 2010.

Medication: Salofalk, Infliximab infusions, Humira injections .
On and off Prednisone for years. Currently only at 5mg
Loperamide (aka Gastro-stop) when needed.


Favourite Quote: Unfortunately my quote (while perfectly acceptable in Australia) contains language that is considered unacceptable in some countries outside of Australia. I guess that's what happens when you comment on a forum used by many different cultures. So I've provided a link to the Wikipedia entry for the quote instead.


OzCrohnie
Regular Member


Date Joined Jan 2010
Total Posts : 61
   Posted 5/31/2010 11:50 PM (GMT -6)   
Oops, I meant "waistband" :p
And its the one on the bottom of page 8 if anyone was curious as to what It is...
http://www.omnigon.com.au/uploads/brochures/Omnigon%20Stoma%20Support%20Guide.pdf
Male, 22, diagnosed with Crohn's at 13.
Permanent ileostomy in February 2010.

Medication: Salofalk, Infliximab infusions, Humira injections .
On and off Prednisone for years. Currently only at 5mg
Loperamide (aka Gastro-stop) when needed.


Favourite Quote: Unfortunately my quote (while perfectly acceptable in Australia) contains language that is considered unacceptable in some countries outside of Australia. I guess that's what happens when you comment on a forum used by many different cultures. So I've provided a link to the Wikipedia entry for the quote instead.


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 6/1/2010 9:35 AM (GMT -6)   
do the have shout color catchers in Australia? There are these things you can put in your washing machine so that if your clothes run they catch the day, wonderful things,lol.
I dont trust them on first run wtih something red or darkly dyed but after that i always use them
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!


OzCrohnie
Regular Member


Date Joined Jan 2010
Total Posts : 61
   Posted 6/1/2010 9:35 PM (GMT -6)   
Um, no I've never heard of them. They have things that I call 'delicate bags' you put delicate things in them and then wash them inside the bag so they don't rub on other stuff etc, but that wouldn't stop the dye from running though.
Male, 22, diagnosed with Crohn's at 13.
Permanent ileostomy in February 2010.

Medication: Salofalk, Infliximab infusions, Humira injections .
On and off Prednisone for years. Currently only at 5mg
Loperamide (aka Gastro-stop) when needed.


Favourite Quote: Unfortunately my quote (while perfectly acceptable in Australia) contains language that is considered unacceptable in some countries outside of Australia. I guess that's what happens when you comment on a forum used by many different cultures. So I've provided a link to the Wikipedia entry for the quote instead.


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 6/1/2010 10:32 PM (GMT -6)   
no thats not the same thing, but you can use a pillow case for delicate things, and its usually cheaper than buying those bags
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!


cleo35
Regular Member


Date Joined Feb 2007
Total Posts : 430
   Posted 6/8/2010 3:36 PM (GMT -6)   
Oz, did I understand that you chance the face plate and everything EVERY day? Doesn't that irritate your skin? Maybe it's time to try using a paste?

OzCrohnie
Regular Member


Date Joined Jan 2010
Total Posts : 61
   Posted 6/8/2010 9:29 PM (GMT -6)   
Cleo35 said...
 Oz, did I understand that you chance the face plate and everything EVERY day? Doesn't that irritate your skin? Maybe it's time to try using a paste?

yer that's right. I have a one piece and was told I can change it every day or every second day (max). I started off dong it every second day, but now that I'm more used to it I prefer every day as it feels great having a fresh bag and it puts my mind at ease by making me think I'm less likely to have a leak.
Regarding irritating the skin, not really. My skin might be a tad pink when I take it off but by the time I finish cleaning the skin for the new bag it's gone back to a normal colour. So it doesn't really get irritated. :D
Male, 22, diagnosed with Crohn's at 13.
Permanent ileostomy in February 2010.

Medication: Salofalk, Infliximab infusions, Humira injections .
On and off Prednisone for years. Currently only at 5mg
Loperamide (aka Gastro-stop) when needed.


Favourite Quote: Unfortunately my quote (while perfectly acceptable in Australia) contains language that is considered unacceptable in some countries outside of Australia. I guess that's what happens when you comment on a forum used by many different cultures. So I've provided a link to the Wikipedia entry for the quote instead.


OzCrohnie
Regular Member


Date Joined Jan 2010
Total Posts : 61
   Posted 6/16/2010 9:53 AM (GMT -6)   
5 Leaks in 4 weeks! Awesome!! *Bangs head against wall*
Male, 22, diagnosed with Crohn's at 13.
Permanent ileostomy in February 2010.

Medication: Salofalk, Infliximab infusions, Humira injections .
On and off Prednisone for years. Currently only at 5mg
Loperamide (aka Gastro-stop) when needed.


Favourite Quote: Unfortunately my quote (while perfectly acceptable in Australia) contains language that is considered unacceptable in some countries outside of Australia. I guess that's what happens when you comment on a forum used by many different cultures. So I've provided a link to the Wikipedia entry for the quote instead.

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