rovin1959~since you don't have specific questions listed, I'll give you a quick version of my story...
I had had many surgeries, resections, setons for fistulas and lived with constant joint pain. I had a temporary ileostomy from surgery complications and had it reversed as soon as I could. My life went back to no quality of life so I asked my GI and C/R Surgeon if I could have another ileo and they both laughed!!! They knew I'd want another, but it was a decision I had to make, and they weren't going to direct me into another stoma unless I had no other choice.
I lived with a temporary loop ileo for 8 years and while I was feeling 'good' my rectal disease was getting to the point that meds weren't doing a thing anymore. Thats when we started talking about
a Proctocolectomy...it took me one phone call to my hubby and in 5 minutes I scheduled the surgery!!!
I was 40 (happy birthday to me!) when I had it and expected to bounce right back...I didn't, but many do, so I took a good 10 weeks to feel more like I wanted to go out and do things. Every day did get better, it's just that it was slower than I anticipated, but around the 4th month I woke up one day a couldn't believe that I didn't 'feel' sick anymore and didn't have any joint pain
(knock on wood)
Today I am a very active person who travels and lives life without caring where the closest toilet is!!!!!
Whatever happens during recovery is temporary and the long term effects are so worth it