Snuggle- I so hope that they give you the green light for surgery! I never understood the logic behind not doing a colectomy because of a suspicion that the whole system is slow. I think of it like a Los Angeles freeway at rush hour. If the freeway (colon) isn't moving, folks on the on-ramp (small intestine) certainly aren't going anywhere fast, either. Even if you do end up having problems with your small intestine, you will feel better with the colectomy. Although I have significant motility problems in my small intestine, that total colectomy saved my life.
ColonBlow- So glad that you feel at home here! I know what you mean...wish I had found this site six years ago! Who would've thought that "pooping like a normal person" would be such a tall order? I will be praying for a smooth and successful surgery on Wednesday. Please keep us updated!
Hodaya- YAY for having the scope earlier! Praying for a cancellation so that you can see your surgeon! How are you feeling?
Lizzie- I'm so glad that you're past that obstruction! My heart all but stopped when I saw that you had another trip to the ER. YES- eat only what you know your body can handle, and only when you know that it will go down. Family means well, but that refeeding syndrome is one tricky and stubborn little beast to tame. Stick to the puddings, ice creams, yogurts, and other things that slide down easily. The less work your GI tract has to do, the better. Graze throughout the day. As you get stronger, your cycle will come back. Sometimes it takes awhile...there were times when I went years without a period, and when I was able to gain enough weight, it came back. The last one I had was in December, until it showed up a couple of days ago, and now I'm realizing that I really didn't miss it that much (ouch)!
I hope and pray that things go smoothly from here on out. Never ever, ever give up! I know you can handle ANYTHING.
Sorry about the disappearing post act. Love technology, but it's so irritating when that happens! Now I type all of my posts in a Word document, then copy/paste.
Rosemary- I have the same dizzy/weak/lightheaded problem that you do. I live in Texas, and many of our summer days are over 100 degrees and very humid. And to think I used to be able to go work six horses a day in this heat...not anymore! I'm not sure exactly how much I drink in a day, but it's a lot. Way past the eight 8-ounce glass rule. I am never without a glass of water or a water bottle, no matter how short any errand run may be. For the amount of fluid I take in, I'm a little surprised that my urine output isn't more, but my kidneys are perfectly fine.
High sodium foods really make me sick. I will never forget when I was in the hospital recovering, they brought me some chicken broth. It smelled so good, and I only had a little, but it made me so nauseous. The doctor kept upping the dose of the anti-nausea meds, and they didn't touch it. I have the same problem with Fleet enemas- nausea, shakes, and elevated heart rate.
According to my Mayo doc, most of what a person drinks is absorbed in the first foot of the small intestine. That's why Miralax works so well for some. It prevents that water from being absorbed right away, and allows it to reach the colon. There is absorption that we're missing out on because we don't have colons, but I didn't get the impression that it was enough to really cause dehydration issues. But, then again, everyone is different. Maybe a complete panel of blood work wouldn't be a bad idea?
A happy Friday evening to all!!
Life-long GI problems.
- 2004: Motility problems took over my life (I was 18). Tons of doctors later...
- July 2007: Diagnosed with colonic inertia at the Mayo Clinic
- November 2007: Total colectomy with ileorectal anastomosis; IV lipids, PICC TPN
- Post-op: Better, initially. Motility slowed again 8 months after surgery. I currently have chronic debilitating pain due to a small intestine dysmotility.
- May 2010: Doctors suspect rectal dysmotility; another manometry scheduled for the 18th; sigmoidoscopy scheduled for the 26th (checking for strictures around the anastomosis).
Currently trying to figure out what my physical abilities will allow me to do career-wise. Psalm 73:26 - My flesh and my heart may fail, but God is the strength of my heart and my portion forever.