Barb, hello again. My outlet problem is severe and life altering. I can not push down to poop. When I took my 1st defogram 2 years ago, I could only push out some of the barium, and this was with repeated tries and much straining. My defogram a couple of months ago, I pushed with all my might, until I thought my head would blow off, and NONE of the barium would come out. Not one drop.
I was then diagnosed with rectal intussusception, which is where the rectum slides into itself, causing a mechanical blockage, anismus, which is the puborectalis muscle does not relax, and a rectocele. Today I went to see my primary GP and I read the letter my colorectal doc sent him and it said the rectal intussusception was SEVERE! So glad I found this doctor who finally diagnosed me with this condition.
My surgeon is going to remove the intussuscepted part of my rectum, remove my sigmoid colon, perform a rectopexy, and then hook me up to a temporary loop ileostomy to let the rectum heal, but mainly to give the puborectalis muscle time to rest and hopefully relax. This is experimental and I have a 75% chance that it will not work and will eventually have to get a permanent ileostomy.
I think these issues come from a combination of me having big babies. having 2 rectal surgeries for hemorrhoids and a nonhealing anal fissure, constipation my entire life, having a hysterectomy with pelvic prolapse repairs, then turning around 1 year later to have another pelvic prolapse surgery that was supposed to fix the outlet issue, but, instead made it that much worse.
I am choosing to keep my colon at this time because I am scared to have anymore parts of my insides removed. I would rather be able to go back to the way that I am now, just in case the other way is unbearable. I do not want nor do I think I can live with being worse than I am now.
So, I have chosen to go this route because like your doctor said, removing the colon is irreversible and can never be replaced. I figured, I can always go in for another surgery to have the colon removed at a later date if the ileostomy is bearable and I don't suffer too many issues with too much output, dehydration, etc.
On the plus side, my doctor is performing my surgery laproscopically which cuts down on adhesions. At one point, I considered having the colon and rectum removed and getting the BCIR, which is an internal ilestomy....but, I quickly changed my mind about
this because it is permanent and I want to try this temporary ileostomy 1st before making any decisions like that. Sorry for rambling, just want you to understand my reasoning....LOL
I truly don't think you having to push 2 times with your defogram is significant of anything being wrong with your rectum.
How long did it take you to empty? Was it less than 60 seconds? I truly think you sound like the ideal person to have a total colectomy since you don't have issues with your rectum. Did you say you had the anal manometry? If so, what were the results of that? One of the doctors thought I had hirsprungs disease, but the anal manometry showed I did not!
I know this is long and my story is very complicated and I could go on and on for hours! LOL If you ever want to talk on the phone or whatever, just email me and I will send you my phone number. I am off work for the summer!