Total Colectomy

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Regular Member

Date Joined Jul 2009
Total Posts : 149
   Posted 5/20/2010 7:52 PM (GMT -6)   
Hi, this is Darlene (Nutz), Lizzie's (Xtreme Misery) friend.  I couldn't figure out how to update the total colectomy thread so I thought I would start a new topic with the same heading in hopes that you all would find this.  Some of you may already know this but today is Lizzie's 30th birthday!!! Unfortunately, instead of celebrating, she spent the day in lots of pain and very distended.  I just texted her and found out that she is on her way to the emergency room:(  We all know that Lizzie has been to hell and back...she needs our prayers more than ever right now.  I just wanted to update everyone per her request.  Take care everyone and hoping you're all doing well.
Darlene "Nutz"
Diagnosed with Ulcerative Proctitis 1999, changed to Ulcerative Colitis 2002.  J pouch surgery Oct 5, 2009. Reversal February 1, 2010

I'd Rather Be Riding
Regular Member

Date Joined Apr 2010
Total Posts : 149
   Posted 5/20/2010 9:57 PM (GMT -6)   
Darlene, thank you so much for the update. I am devastated to learn that Lizzie is on her way back to the ER. I'm praying so much for her, and I hope that the doctors can get this taken care of once and for all. Keep us posted!
I will copy/paste your message into the other thread so that everyone is sure to see it.

Life-long GI problems.
- 2004: Motility problems took over my life (I was 18). Tons of doctors later... 
- July 2007: Diagnosed with colonic inertia at the Mayo Clinic
- November 2007: Total colectomy with ileorectal anastomosis; IV lipids, PICC TPN
- Post-op: Better, initially. Motility slowed again 8 months after surgery. I currently have chronic    debilitating pain due to a small intestine dysmotility.
- May 2010: Doctors suspect rectal dysmotility; another manometry scheduled for the 18th; sigmoidoscopy scheduled for the 26th (checking for strictures around the anastomosis).
Currently trying to figure out what my physical abilities will allow me to do career-wise. Psalm 73:26 - My flesh and my heart may fail, but God is the strength of my heart and my portion forever.

Veteran Member

Date Joined Jan 2007
Total Posts : 4147
   Posted 5/21/2010 12:11 AM (GMT -6)   
Thanks for the copy and paste Allie, good Idea. I responded there. Rosemary. This is a nightmare for Lizzie and for all of us too.
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