I also had Crohn's in the colon and rectum and tried every medicine before having a proctocolectomy (colon and rectum removal) with permanent ileostomy 4 years ago. I thought the rectum removal part was going to hurt, too, but it really didn't. I was so surprised that I went home 4 days after surgery and was out driving and grocery shopping two weeks later!
Don't worry about
hurting or bumping the stoma. It's a tough little bugger! You'll be fine going back to work after you're all healed up. I have a 100 pound German Shepherd who loves to go to the beach with us and ride in the back seat of our F-150, but doesn't jump, so I hoist him into the truck without any problem.
You'll be able to eat normally and will probably have more variety in your diet than you do now, because you won't be sick or in pain anymore. You will honestly feel so much better once you get rid of that diseased colon and rectum! Surgery is the closest thing to a cure. Since we never had Crohn's in the small intestine, my Gastroenterologist told me that it will most likely never show up there.
It's also wonderful to be medicine-free, especially prednisone-free! There are so many weird side effects from all of the meds that you won't have to deal with anymore. You'll have so much more energy, too. I'm so glad that I had the surgery and got my health back.
In the last 4 years, I have never had a leak! I had a really good ostomy nurse who hooked me up with Coloplast Assura Extended Wear Wafers, which last for a week and are sweatproof and waterproof. They have been wonderful with my active lifestyle (working full time and exercising and showering every day). It takes me all of 3 minutes to cut a hole in the wafer, put some stomadhesive paste around the hole, and stick it on.
I recommend shaving the hair on your stomach where the stoma is going to be and using Adhesive Remover Wipes to remove the wafer before showering. I also recommend Hollister M9 deodorizer drops. Put a few drops in the pouch, and there is no smell at all. These are all items that you can purchase through companies like Edgepark or Sterling Medical. If you call your insurance company, they'll tell you which company to purchase your supplies through to get the best coverage by insurance.
It's true that the initial output will be green liquid, but that's just bile, since you won't be able to eat much before or after surgery. But, once you're home and eating normally, the output will be normal. Also, they'll give you excellent pain meds by IV in the hospital and pills to take at home, so you'll be feelin' just fine!
Make sure you walk a lot after surgery. That will help wake your intestines up, so your stoma will start working. Also, bring Gas-X with you, just in case you get gas pain before your stoma starts working. Good luck on the 11th and please ask us any other questions you may have. We're all here to help!
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.