Christine! I don't know how I missed that you have finally decided on the ileo! Congratulations on hopefully feeling GREAT soon :) I am so relieved for you.
Like everyone else said, you don't have to worry about
ordering anything now. Your nurse will help you after your surgery. Mine came in the hospital and explained how to change my appliance and gave me a little booklet to look through that had (so many!!!) supplies in it. It will depend on your insurance as well. Like everyone else said, they will give you a bunch of samples to take home so you'll be good for a few weeks.
Keep us posted on everything! I'm so jazzed to hear how everything goes.
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
Total Proctocolectomy and Permanent Ileostomy 3/18/10!
Tried: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas, Psyllium Seed Powder... Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
Currently taking: Prenatal Vitamin, Vitamin B 12 Complex, Biotin, Vitamin D, Calcium, Flomax (for urinary retention).