any gaurantee?

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rovin1959
Regular Member


Date Joined May 2009
Total Posts : 159
   Posted 5/26/2010 3:02 PM (GMT -6)   
I guess I know everyone is different. However,after my colostomy/removal of rectum,what are the odds of crohn's attacking other parts of my GI system. Yep, still have questions.

Mary Lynn


not creative
Regular Member


Date Joined Mar 2007
Total Posts : 469
   Posted 5/26/2010 3:20 PM (GMT -6)   
There are never any guarantees with Crohn's...it could come back- but it will never torture your rectum again!
Laurenne, 25 Graduate from University of California, Davis. BA-Anthropology
Dx'd w/ IBS and CD in 2002. Was in flare from 2006-2010 with almost no relief from any meds I tried.
Three abscesses that are now fistulas, with three setons! All gone as of March 9
Tried: LDN- Did nothing good, Remicade- allergic, Humira- no reaction
On: Zoloft, Abilify, folic acid, b12, vitamin c, multivitamin

3-9-10: Total protectomy and Sigmoid colostomy installed. Haven't spent more than 3 minutes on the toilet since- it's fantastic! Now I'm just waiting to get regulated so I can irrigate.


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 5/26/2010 5:27 PM (GMT -6)   
I never had Crohn's in the small intestine, and my gastroenterologist said that chances are really good that it will never show up there. That was the best news ever! So far so good, it's been 4 years, and I'm still disease-free. :-)
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.


rovin1959
Regular Member


Date Joined May 2009
Total Posts : 159
   Posted 5/26/2010 5:38 PM (GMT -6)   
Suzy, mine is in the small intestion also.

Mary Lynn


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 5/27/2010 6:17 AM (GMT -6)   
Mine has been in my small intestine but had been quiet for close to ten years before my proctocolectomy...my doc's statistics show that 10 years is the mark where my chances are good I won't experience any issues (knock on wood). I'll cross that bridge if I have to! I just couldn't live with the rectal disease/misery and haven't regretted my decision.
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008


rovin1959
Regular Member


Date Joined May 2009
Total Posts : 159
   Posted 5/27/2010 8:43 AM (GMT -6)   
You sound very positive. I am very happy to hear good news. 10 years wow.

Mary Lynn


OzCrohnie
Regular Member


Date Joined Jan 2010
Total Posts : 61
   Posted 5/31/2010 11:22 PM (GMT -6)   
I had Crohns in the small intestine.
My surgeon told me that if it was Ulcerative colitis I'd be 'cured'. But with Crohns there is a 20% chance of it coming back somewhere else.
Clearly I wish I had Ulcerative Colitis...
Male, 22, diagnosed with Crohn's at 13.
Permanent ileostomy in February 2010.

Medication: Salofalk, Infliximab infusions, Humira injections .
On and off Prednisone for years. Currently only at 5mg
Loperamide (aka Gastro-stop) when needed.


Favourite Quote: Unfortunately my quote (while perfectly acceptable in Australia) contains language that is considered unacceptable in some countries outside of Australia. I guess that's what happens when you comment on a forum used by many different cultures. So I've provided a link to the Wikipedia entry for the quote instead.


rovin1959
Regular Member


Date Joined May 2009
Total Posts : 159
   Posted 6/1/2010 9:03 AM (GMT -6)   
Thanks for the reply. That is the only reason I am on hold for my sx.

Mary Lynn


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 6/2/2010 4:55 AM (GMT -6)   
Wow, there's an 80% chance that the disease will not return? I like those odds!! yeah
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.

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