I have been a member of this forum for a while now and the information that I have gotten has helped me greatly. Thank you all for sharing your stories and helping so many people with so much information. I don't post much, but I wanted to share my experience with everyone and I also had a few questions. I had a subtotal colectomy in December for Colonic Inertia.
My surgeon is wonderful, but I ended up having a few complications from the surgery. I had the surgery, my small intestine was re-attached to the very small portion of the colon that was left. A few days after the surgery my fever went up to 104 and I began to hallucinate. My intestine perforated (sp) and I had to have ER surgery to clean the infection out of my abdomen as well as place a temp ileostomy. I was in the hospital for a month.
2 months later I was scheduled for the reversal, went into surgery and when I woke up the ileostomy was still there. My small intestines had a stricture and the reversal was unable to be done. The surgeon had to dilate my small intestines. Needless to say I was very upset about this, but I knew that the surgeon was doing what was best for me.
I just got out of the hospital 2 weeks ago, my surgeon performed the reversal of the ileostomy, but he also had to go in and clean adhesions off of my intestines and abdomen, so he could not do it by scope, he had to cut me open.
I feel this recovery seems to be the hardest. The pain has been the worst and my platelets and reticulocyts are high and won't level out. I am scheduled to see a hemotologist and I am wondering if anyone else has ever had this problem after reversal? As for going to the bathroom, I guess I got lucky in that area because I only go between 5-7 times a day. I know that some go 20+ a day. I still find it painful to go to the bathroom though even to push in the slightest way. I have extreme gas pains, is this normal? No matter what I eat the gas pain is horrible? I walk 2-3 times a day around my neighborhood and walking does seem to help some. I just wish I could get to some kind of normalcy. I know it is not going to happen overnight, but I am just feeling a little depressed, but I am happy I can go to the bathroom now.
I guess I just want a normal life and I am getting impatient......thanks for listening.
1994 - exploratory laparoscopy
1998 - emergency laparotomy ovarian cyst
1999 - emergency laparotomy removal of left ovary and endometriosis
2000 - total hysterectomy - laparotomy
2001 - laparotomy removal of mass which was adhesions
2001 - laparotomy due to complications of previous surgery
2003 - laparoscopy removal of adhesions
2006 - laparoscopy removal of adhesions
2009 - 12/17/09 laparospic subtotal colectomy with anastamosis and removal of adhesions
2009 - 12/26/09 - open laparotomy due to leak from subtotal colectomy - ileostomy placed
2009 - 3/2009 [ REVERSAL SCHEDULED] - Reversal cancelled due to stricture of intestine. Reversal date has now been pushed to June.