Bladder problems after surgery?

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80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 5/28/2010 12:58 PM (GMT -6)   
Hi guys,
Has anyone had any bladder problems since their sugery? I have had 2 surgeries on my bladder previously, but now am having problems again. I had surgery on my bladder neck becuase my muscles were too tight and I had to pee ALL THE TIME. I'm having the same symptoms now but my urologist deosn't know why. After some crappy tests, he says it's not making sense. He thinks my actual bladder might have something wrong, but we'll have to do more tests to find out. I seriously have to pee every 20 minutes. It's SO annoying. I finally "got my life back" with this ileostomy, but I'm still tied to the bathroom. :(
 
Any ideas/feedback?
 
Thanks guys.
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
Total Proctocolectomy and Permanent Ileostomy 3/18/10!
 
Tried: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas, Psyllium Seed Powder... Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
 
Currently taking: Prenatal Vitamin, Vitamin B 12 Complex, Biotin, Vitamin D, Calcium, Flomax (for urinary retention). 


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 5/28/2010 8:51 PM (GMT -6)   
well at first i had to pee all the time too, but it was because my body wasnt absorbing all the fluid that i was taking in yet. ANd i was drinking so much more anyway.
Maybe its that?
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!


80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 5/28/2010 9:25 PM (GMT -6)   
Summer, I wish that was all it was...Sadly, I'm sure it's not. I just went in for my test today and my urologist is completely baffled. Set me up for another test in 3 weeks...don't want to wait that long. I still have to pee EVERY 20 MINUTES and I am miserable.

I want a urostomy. Unsure if you can have two ostomies. This is out of hand. I jsut want a life.
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
Total Proctocolectomy and Permanent Ileostomy 3/18/10!
 
Tried: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas, Psyllium Seed Powder... Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
 
Currently taking: Prenatal Vitamin, Vitamin B 12 Complex, Biotin, Vitamin D, Calcium, Flomax (for urinary retention). 


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 5/28/2010 10:50 PM (GMT -6)   
you can have two, i dont know how that works,but i know people who do, or well i knew someone who did, he passed away about a year and half ago.
Sometimes with surgeries your bladder can fall and move around, did they look at that?
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 5/29/2010 6:00 AM (GMT -6)   
yes, Stephanie, you can have both. Sorry you are going through this...have you thought about a second opinion?
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008


Trigirl
Veteran Member


Date Joined Jan 2006
Total Posts : 768
   Posted 5/29/2010 10:37 PM (GMT -6)   
I feel sooo bad for you and with you on this one 80s Chick. I have had some problems leaking on and off. Can't seem to figure out why. Is worse when I have drank a lot of water, but can happen for no apparent reason too. I started doing kiegle exercises and pelvic floor stuff.

I try not to drink too much water too fast. Yeah I sip water all day and get sick of it. But it is the best I can do for now. Do have Dr's appointment next week and will talk to him about it. I know my Mother-in law just has bladder problems and they gave her some hormone therapy that has worked like a charm.

Hope you get your WHOLE life back soon.
Those things we keep trying to do get easier not because the feat gets easier but our ability to "do" gets better.
Thyroid cancer removed 1988
Stomach problems finally figured out 2001 Crohn's/Colitus
Tried every drug without much success
Colon/rectal cancer removed Aug 2009
6 Grown kids, grandkids and a great husband to keep me busy

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