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Bella_lostmybag
Regular Member


Date Joined Dec 2008
Total Posts : 104
   Posted 5/28/2010 5:27 PM (GMT -6)   
soo, this is kinda hard to talk about bc it just makes me sooo mad to the point that i cried today..but, i had reversal surgery April of 09..and this didnt start until a few months ago but sometimes when i wake up in the middle of the night to potty, my underwear will be wet from where stuff has come out when im asleep..it usually is just clear..no big deal..but last night i woke up to a huuuuge mess! all over my underwear, on my bed, my pillowtop, my sheets it looked like some 2 yr old pooped the bed..there was a LOT. and thats happened before but not to the point of where it went through my underwear. Im 18 not 88..this shouldnt happen to an 18 yr old haha but yeeah, so here i am at 4 am washing my blanket and sheets and clothes and showering..and even when i had my bag i didnt let it bring me down i was soo positive about it and i didnt cry until i was telling my mom this morning. I wasnt embarrassed i was mad. So im wondering if this is normal? pooping the bed at 18 lol ...VERY attractive turn has this happened to anyone else though?
Im 18, freshman at college :) I was diagnosed with Ulcerative Colitis on March 18,2008...had a total colectomy November 19,2008 with a temporary ileostomy for 6 months..Reversed it April 29,2009 and my life is AMAZING living UC free :D


Collicat
Veteran Member


Date Joined May 2009
Total Posts : 827
   Posted 5/28/2010 10:30 PM (GMT -6)   
I think you should see what your surgeon has to say...sorry I do not have any other advice. I know it must be very discouraging. Hang in there...you are barely a month post surgery

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 5/29/2010 4:54 AM (GMT -6)   
Bella~hang in there...I am sure suebear will be along...I don't have any experience with a j-pouch shakehead so I'm really no help on this one!

Think back to what you have been eating or drinking...could that be a cause?

Are you taking imodium?...could you take it at night?

I hope school is going/went well :-)
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 5/29/2010 7:21 PM (GMT -6)   
Hey Bella,
I'm so sorry this happened to you. sad But, I'm glad you felt comfortable enough to vent your frustrations to us. Most of us have had accidents at one time or another, so you are in good company here. (((Big Hug)))

SueBear is one of our j-pouch experts, so hopefully she will be along soon to answer your question. From what I understand, this should not be happening over a year after surgery, but I may be wrong. I would let your surgeon know what's going on and also see if you can find some answers at www.j-pouch.org.

You will get through this, because you're a strong woman of faith. :-) And, I'll be praying that you find a quick resolution to this.

Cecilia
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.


Bella_lostmybag
Regular Member


Date Joined Dec 2008
Total Posts : 104
   Posted 5/30/2010 9:30 PM (GMT -6)   
at least its not every single night lol but i usually just wear a pad to bed when i eat kinda late..at first i thought it was because i was drinking a bottle of water before i layed down bc im always dehydrated and i thought maybe thats why it was happening but even when i didnt drink water it still happened..and the other night was the first time there was THAT much uggh it was awful..my PA wont be back until June 7th and shes really the only person i talk to about it besides my surgeon since she knows everything thats been going on. But should i just call and talk to someone else and have them let my surgeon know?
Im 18, freshman at college :) I was diagnosed with Ulcerative Colitis on March 18,2008...had a total colectomy November 19,2008 with a temporary ileostomy for 6 months..Reversed it April 29,2009 and my life is AMAZING living UC free :D


Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 5/30/2010 11:00 PM (GMT -6)   
:(
that's disappointing. I'm very sorry you're having those problems.
Have you gone to j-pouch.org and asked anyone there?
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
i only take vitamins now, when I WANT to. :)
(temporary ileostomy....maybe)

"Things turn out the best for those who make the best of the way things turn out."


ducridr
Regular Member


Date Joined Apr 2008
Total Posts : 139
   Posted 5/31/2010 9:58 AM (GMT -6)   
Do you take an immodium before bed? I have found that when I have leakage problems (haven't had a full-out loss since recovering from surgery *fingers crossed*) I find that it is related to having had or done something that led to an excessive amount of gas. If I take immodium multi-symptom (it has anti-gas meds in it) I don't have any problems. Have you changed your diet recently?
Ducridr - 36 - female

Diagnosed w/ severe pancolitis 11/20/2007
Asacol - 6 (400mg) 2x/day, Xifaxin 2 (200mg) 2x/day, Prednisone 15 mg (started at 40mg Nov 08 - off June 09), multi-vitamin, calcium and vit d supplement, potassium supplement, B-12 supplement, Junel FE (BCP),metamucil capsule (1/day) Coumadin (for blood clot) 5mg/day, 1st Remicade treatment 2/4/2009, 2nd - 2/18/09. Currently getting Remicade every 4 weeks.

J-Pouch surgery #1 of 3 on 8/21/2009!!!
Surgery #2 on 1/4/2010
Surgery #3 on 3/23/2010


Bella_lostmybag
Regular Member


Date Joined Dec 2008
Total Posts : 104
   Posted 6/3/2010 8:07 PM (GMT -6)   
no i havent went to j-pouch.org yet but i definitely will..i actually never have used that site lol ive always came here :) but, no i havent changed my diet recently and i dont take immodium. I actually went to Cedar Point which was a 4 hr trip and didnt have to stop the whole way up and only went once the way back yeah haha it happened last night too i had to change my undies twice bc there was a surprise in them...im thinking maybe when i drink or eat past like 10 or late at night is when its happening the most. But its hard to NOT eat bc i work or am out til like 9 or 10 so i always eat lol and ive noticed too that when i drink water before bed it happens...hopefully its just something stupid like that instead of something serious. My PA comes back the 7th so im gonna call and ask her bc i had a colonscopy in April and she said everything looks amazing :)
Im 18, freshman at college :) I was diagnosed with Ulcerative Colitis on March 18,2008...had a total colectomy November 19,2008 with a temporary ileostomy for 6 months..Reversed it April 29,2009 and my life is AMAZING living UC free :D


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 6/4/2010 5:34 AM (GMT -6)   
Bella~ I bet it's the eating/drinking so late...ask your PA about Imodium and if they recommend that you take it when you eat/drink so late. It sounds like figuring out your jpouch to go along with a young person's lifestyle:)

Glad you had a good time at Cedar Point! we haven't gone yet this year and I'm looking forward to it:)!
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008


Collicat
Veteran Member


Date Joined May 2009
Total Posts : 827
   Posted 6/4/2010 9:48 PM (GMT -6)   
Bella.... I apologize that I thought you had your surgery just this last April. I am sure your doctor will have some answers.
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