Prolapsed Stoma

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lechies
New Member


Date Joined May 2010
Total Posts : 1
   Posted 5/29/2010 12:19 PM (GMT -6)   
Hey all,
 
I'm new on the board and just wondered if anyone could give me some advice before I set off to see my General Practitioner next Wednesday. I had an ileostomy performed a year and a half ago, since then I have not seen my Surgeon for any follow up appointments and my Stoma has prolapsed to an alarming size, it also causes me a great deal of pain as well as tearing the skin from the weight of it just hanging there. It now measures, 13 Inches in length and 10 Inches in width, the skin surrounding frequently becomes inflamed to due to faeces escaping. I have the biggest bag available in the UK and this has now become inadequate for the purpose. I was told by my GP that I was to lose 70 pounds in weight before they would perform the Ostomy reversal due to it being Major Surgery, however, my quality of life is being severely affected now as I cannot sleep properly on either of my sides and lying on my back is a big no no, I'm getting by on something like 4 hours sleep every day and that is not uninterrupted sleep. I'm worn out, I've not been able to carry my son since he was born, I feel like I'm getting nowhere with my GP, apart from lose weight (Which let's face it, is not going to just dissolve over night) I don't see any solution to my problem and I believe I'm being misled by my GP as to what can be done for me.
 
Please, please, help, I'm desperate.

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 5/29/2010 3:17 PM (GMT -6)   
i think you need to see your surgeon that sounds really bad, and i have no idea what to do about it.
But i hope you get fixed!
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!


answers4me2
Veteran Member


Date Joined Dec 2008
Total Posts : 1325
   Posted 5/29/2010 4:12 PM (GMT -6)   
You need to see a colorectal surgeon. Maybe a revision of your stoma will help you and then you can lose the weight to get the reversal. There is a guy on youtube.com that shows how he deals with his prolapsed stoma. He even shows how he tucks it back in....just go to youtube.com and put ostomies in the search engine. It should come right up...Good luck, Tracy

polishdan
Veteran Member


Date Joined Mar 2010
Total Posts : 1595
   Posted 5/30/2010 9:42 AM (GMT -6)   
Lechies
The size of your prolapsed stoma seems impossible! I connot see why any doctor would not treat this as an emergency situation.

Also, I wonder why if you are in the UK you are not measuring the size of your stoma and your weight in the METRIC SYSTEM instead of inches and pounds.


Dan
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