I'm new on the board and just wondered if anyone could give me some advice before I set off to see my General Practitioner next Wednesday. I had an ileostomy performed a year and a half ago, since then I have not seen my Surgeon for any follow up appointments and my Stoma has prolapsed to an alarming size, it also causes me a great deal of pain as well as tearing the skin from the weight of it just hanging there. It now measures, 13 Inches in length and 10 Inches in width, the skin surrounding frequently becomes inflamed to due to faeces escaping. I have the biggest bag available in the UK and this has now become inadequate for the purpose. I was told by my GP that I was to lose 70 pounds in weight before they would perform the Ostomy reversal due to it being Major Surgery, however, my quality of life is being severely affected now as I cannot sleep properly on either of my sides and lying on my back is a big no no, I'm getting by on something like 4 hours sleep every day and that is not uninterrupted sleep. I'm worn out, I've not been able to carry my son since he was born, I feel like I'm getting nowhere with my GP, apart from lose weight (Which let's face it, is not going to just dissolve over night) I don't see any solution to my problem and I believe I'm being misled by my GP as to what can be done for me.
Please, please, help, I'm desperate.