Sorry this is late in reply. Our computer had a virus and we just got it straightened out today.
I have ulcerative proctitis and have become prednisone dependent over the last few years. Sometimes I wonder if I have made the correct decision as reading some of these horror stories with complications following surgery really scares me. about every other day I will have urgency issues. My stools are soft, not really formed. Depending on my diet, if I am BAD..lol...I pay dearly for it. I feel constant pressure in the rectum. I did take 2 teaspoons of liquid Immodium this morning after going about three times and I needed to get out of my house at 9:30 am. The prednisone has stopped the bleeding. I was tapered down to 7.5 mgm but the week before Memorial Day my flare worsened and I phoned the surgeon's office and was told to increase the prednisone in order to stay out of the hospital. I increased it to 40 mgm (the dose my GI usually starts me at) and the bleeding stopped. I am now tapered down to 35 mgm and will stay at this for five days. I know the surgeon wants me on as little prednisone as possible going into surgery.
I am scheduled to undergo a Nuclear stress echo next Tuesday. This has me concerned because I don't like the idea of a dye being injected into me and it most likely will go through my intestines and I have no idea whether that will affect this flare. I talked with the technician who will perform this procedure and she said it SHOULD have no effect...BUT does she know that for sure?? I am just so frustrated at this point.
I know they will have to take out the rectum...that is my main problem. If they could just take the rectum out and leave the colon, that would be great, but according to the surgeon, that is just not done in patients with ulcerative colitis.
Ulcerative Proctitis since Sept of 1998. Hospitalized for eight days. Prednisone, Asacol, Rowasa enemas. Two year remission. Flare..switched from Asacol to Colazal. Two year remission. Started 6MP in 2002. Flared yearly from 2003 to May of 08. Hospitalized for ten days in May of 08. Flaring more often since. Off 6MP. Remicade failed. Humira failed. Meds: Colazal, prednisone, Cort & canasa suppositories, Benicar (Blood pressure). Surgery scheduled for June 28th...maybe sooner if possible. Still flaring