I did not get my period after my colectomy for over 2 months, then had a period for over a month until my takedown! Now it has finally settled. My doctor told me that I should have done something - as they can use meds to sort it out and avoid all the fall out. By the time I told them about
it they could not do anything as it was too close to the second surgery.
Hopefully you will get some answers. I posted the same thing on JPouch and there were some answers there. Others have had similar - but yours has been a very long time. Hope you get some answers!
Diag proctitis 97 - major flare and extension to left sided colitis Aug 2006 - present.
I bled every day from Aug 2006 (I quit smoking in June 2006) to Jan 2010.
Imuran (Azathioprine) game me liver damage. LDN no luck. Asacol and mesalazine enemas - seemed to make worse. Lots of Prednisone :( No luck on drugs!
JPouch, total colectomy and ileostomy (part 1) completed Jan 2010 :)
Takedown (part 2) April 15 2010.
UC no more!!!