Newbie with an ileostomy, need your help!

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racerwife15
New Member


Date Joined Jun 2010
Total Posts : 12
   Posted 6/5/2010 9:00 PM (GMT -6)   
Just recently went from a colostomy to an ileostomy and I am having a very tough time with sore raw skin below and above my stoma, it hurts confused and I am having a hard time getting my bag to seal without the output wetting the paste and all of that good stuff before it can get a good seal. Does anyone have any tips to help? I just started using the Eakin but it doesn't seem to stick and starts to get a leak through the bottom. I am really getting down on this, I was able to get used to the colostomy but this is really a much harder challenge.

Thanks in advance for your opinions!
Exploratory surgery Sept/2009 after having "female issues", the doctor found a diverticula abscess, the "not so confident doctor" kept sending me all over town for ultrasounds and doing nothing. In the meantime, I am still wondering around in sever pain. I ended up finally getting a new gynecologist who is the greatest! She saw good reason for a hysterectomy and once in the OR, found I had severe diverticulitis and called in the greatest surgeon ever! Severe diverticulitis had buried itself underneath my uterus and had completely turned my insides to "concrete", my organs were unidentifiable. The surgeon had to "chisel" his way in just so I could have the hysterectomy. I came out of surgery with a colostomy which was NOT expected. 6 months later, May/2010, they went in to do the the colostomy take down and I still had a leak in my large intestines and now I have an ileostomy hopefully for only 6-8 weeks. This is the "short version" of my story.

Post Edited (racerwife15) : 6/5/2010 8:39:08 PM (GMT-6)


polishdan
Veteran Member


Date Joined Mar 2010
Total Posts : 1595
   Posted 6/5/2010 9:58 PM (GMT -6)   
racerwife
Tell us what pouch, cleaners, powders, etc. that you use and how you clean and put on your pouch. Some of us should have some suggestions.

Dan

esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 6/5/2010 10:18 PM (GMT -6)   
When you take the old adhesive off, just wash the area with water or ivory soap (NO LOTION SOAPS) then rinse very well. You want nothing on your skin to break the seal.

Then use ALL care wipe to put on like a layer of shellack. Let dry.

THen Stoma hesive powder on the burn likely right under the stoma.

Then the Eakin seal.

Then the wafter. THen click on the bag.
Then run your finger around on the soft part of the wafer around the stoma to apply a bit of pressure and the heat from your hand should get it nice and sealed to your skin.

If the stoma goes active while you are changing, hold a tissue there and catch the output, then rewash where it landed. That stuff is like battery acid. Never just continue without rewashing and drying where that effluent has landed.

WIsh you well. Rosemary

racerwife15
New Member


Date Joined Jun 2010
Total Posts : 12
   Posted 6/5/2010 10:22 PM (GMT -6)   
To polishdan:
I currently have the one piece coloplast bags (which I had with my colostomy), skin prep wipes (which burn of course), hollister stomahesive paste and powder and a sample of the Eakin seal from my OWC nurse. I really didn't have trouble getting the colostomy bag to seal but this ileostomy is about to make me crazy, it will always get active of course when I am trying to change the bag. The raw spots are realy concerning me, how can I get them healed?

Thnx sooo much!
Exploratory surgery Sept/2009 after having "female issues", the doctor found a diverticula abscess, the "not so confident doctor" kept sending me all over town for ultrasounds and doing nothing. In the meantime, I am still wondering around in severe pain. I ended up finally getting a new gynecologist who is the greatest! She saw good reason for a hysterectomy and once in the OR, found I had severe diverticulitis and called in the greatest surgeon ever! Severe diverticulitis had buried itself underneath my uterus and had completely turned my insides to "concrete", my organs were unidentifiable. The surgeon had to "chisel" his way in just so I could have the hysterectomy. I came out of surgery with a colostomy which was NOT expected. 6 months later, May/2010, they went in to do the the colostomy take down and I still had a leak in my large intestines and now I have an ileostomy hopefully for only 6-8 weeks. This is the "short version" of my story.


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 6/6/2010 5:57 AM (GMT -6)   
Try warming the Eakin Seal (armpit or between hands for a minute or so) before applying it...do you apply it to your skin or the wafer? I have found that it is easier to keep it dry if you apply it to the wafer and then apply the wafer to your skin.

Could you need convexity? It pulls the stoma up/out so output cannot get behind your wafer. You may want to try a two piece appliance, so that you can see where the wafer is being applied, and you'll be able to tell if your stoma becomes active. Ask your WOC Nurse for a sample or call/email the manufacturers for samples.

The likelihood that the appliance that worked for your colostomy would work for your ileostomy are slim...sometimes it is trial and error to find the perfect one for you:( Hang in there, you'll get the hang of it...ileostomies are a little trickier but not bad once you get through the learning curve!

Welcome to the forum!
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008


crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted 6/6/2010 5:59 AM (GMT -6)   
Hi, I feel for you I had a very challenging ileo and suffered greatly with sore skin until I came on here and was told to use eakin seals (I was using paste) along with ostomy belt, sure seals as NASCARron mentioned and had no problems hope you soon get some relief Bevx
Diagnosed with crohns at 13 now 43
Meds: Iron syrup,Loperimide,Folic acid & Citalopram 30mg (for Anxiety.)

" I may not be there yet, but I'm closer than I was yesterday."


polishdan
Veteran Member


Date Joined Mar 2010
Total Posts : 1595
   Posted 6/6/2010 11:03 AM (GMT -6)   
I was having ulcers at my stoma. My cousin, with a 2 inch stoma suggested I try Friars Balsam. He had constant ulcers until he used Friars. He applies it at every change and has no ulcers. I no longer need Friars.
The full name is "Friar's balsam compound benzoin tincture usp". It is from Canada. The phone number is 866-470-6886. Website is www.rougier.com.
I used Friar's alone under my wafer...no skin preps or powders. Friars is sticky when it dries.
Dan

polishdan
Veteran Member


Date Joined Mar 2010
Total Posts : 1595
   Posted 6/6/2010 6:35 PM (GMT -6)   
OHIO76
You should say to warm the Eakin seal in your armpit BEFORE you take the paper off.

Dan

Trigirl
Veteran Member


Date Joined Jan 2006
Total Posts : 768
   Posted 6/6/2010 8:51 PM (GMT -6)   
I find the hair dry warms the eakin seal stuff greaat and then i warm the wafer before I stick that on and it has helped alot. I used to have it sore all the time. I tried to let skin air lots when I ha to change.
Those things we keep trying to do get easier not because the feat gets easier but our ability to "do" gets better.
Thyroid cancer removed 1988
Stomach problems finally figured out 2001 Crohn's/Colitus
Tried every drug without much success
Colon/rectal cancer removed Aug 2009
6 Grown kids, grandkids and a great husband to keep me busy


Bennie
Veteran Member


Date Joined Nov 2006
Total Posts : 552
   Posted 6/7/2010 11:38 PM (GMT -6)   
My daughter would eat a few marshmallows before changing her appliance. Most often, it seemed to slow down her output enough to get everything back on. Of course two years after her reversal, she now hates the sight of marshmallows. (She also can't look at lemon-lime gatorade because she used to use it for her preps.)

--Mom of bratcat (19 years old) and nonamejames (21 years old)--
Daughter bratcat was diagnosed with pancolitis October 2006
Flared Fall 2006, Fall 2007, Spring 2008
Asacol, Rowasa, hydrocortisone enemas, prednisone, 6-mp, Remicade
7/3/08-Step 1 j-pouch surgery and no more meds!
11/10/08-Step 2 reconnect!
Living and loving life as a teenager should!
 
Son nonamejames was diagnosed with Crohns in Spring 2008
Asacol, Pentasa, 6-mp


esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 6/8/2010 9:11 PM (GMT -6)   
I warm the Eakin seal bit in the microwave for like 10 seconds. Makes it real sticky and good seal. Rosemary

racerwife15
New Member


Date Joined Jun 2010
Total Posts : 12
   Posted 6/9/2010 8:58 PM (GMT -6)   
Thanks everyone for the responses. Do any of you have "Loop Ileostomies"?
Exploratory surgery Sept/2009 after having "female issues", the doctor found a diverticula abscess, the "not so confident doctor" kept sending me all over town for ultrasounds and doing nothing. In the meantime, I am still wondering around in severe pain. I ended up finally getting a new gynecologist who is the greatest! She saw good reason for a hysterectomy and once in the OR, found I had severe diverticulitis and called in the greatest surgeon ever! Severe diverticulitis had buried itself underneath my uterus and had completely turned my insides to "concrete", my organs were unidentifiable. The surgeon had to "chisel" his way in just so I could have the hysterectomy. I came out of surgery with a colostomy which was NOT expected. 6 months later, May/2010, they went in to do the the colostomy take down and I still had a leak in my large intestines and now I have an ileostomy hopefully for only 6-8 weeks. This is the "short version" of my story.

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