diets?? do they work?

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julsgirl
Regular Member


Date Joined May 2010
Total Posts : 37
   Posted 6/7/2010 8:26 PM (GMT -6)   
so i have Crohns/UC and i have a temo ilio for those who havnt read.
im scheduled to have a protocoloctomy(um excuse the spelling) on the 28th of June.Im convinced that this is the right thing for me to do, iv been sick for yrs n yrs and i jst want the dam thing out! my small seems to be fine so im told, its my Colon n rectum that r killing me even with the temp ilio.
my mum n family r still trying to shuve diet books under my nose, they want to 'save my colon'. im convinced that diets done work.. have other ppl found this aswell??obvouesly so i guess since we all have stomas..but my fam still seem to think in way that the docs all confince us to have these surgerys, that we dont give the diets a good go..?
id really like some advice? i guess i jst want to feel better going in.
 
Ta

NewShinyCD
Regular Member


Date Joined Oct 2009
Total Posts : 474
   Posted 6/7/2010 9:26 PM (GMT -6)   
Diets can work but people need to remember that your body can reach the point where it is unable to repair itself.
If your colon has too much scar tissue your body maybe unable to heal it. Also there is the fact that doctors still don't know what causes UC and Cronhs. Diet may have a factor, or genes or the environment.
Also people seem to try and reach for desperate fixes when something doesn't work. Thing is, surgery IS a cure for UC. It may not be the best solution, but the fact that it does work and that you don't have to go around worrying about when your next flare up will happen.
If you think that that diet maybe a solution and want to try it go ahead. For me though I felt that I reached the end of the road: I tried all the 5ASA medicines, home remedies, Remicade, and changing my diet and nothing worked, so I opted for surgery.
I'm 6 days post surgery so I still have some healing to go, but all in all it has been completely worth it. I feel so much better; I'm able to eat food without running to the restroom.
Yea I'm still sore and I'm still trying to adjust to the bag (trying to tell when it is full when I'm asleep but wearing it isn't an issue) but compared to being in a flareup...this is like cake.
21 y/o male livin' in Georgia. Diagnosed with Left-Sided Colitis in 2002; re-diagnosed with Pancolitis in Nov. 2009 and been in a flare ever since.
Colazal 4 2x daily and the occasional Immodium.
Drugs tried: Just about every 5ASA medicine, enemas, prednisone, turmeric, fish oil, Remicade, psyllium seed powder, Metamucil.
Some medicines helped but none of them put me back in remission.
Unable to take 6MP.
Step one of Jpouch surgery scheduled - 6/2/2010


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 6/7/2010 9:32 PM (GMT -6)   
here was my thing about diets, it might have helped, but i was already missing so much of my life, so then i was gonna give up sugar, and wheat and milk and whatever else, well ok it might help, but thats not much of a life!
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!


julsgirl
Regular Member


Date Joined May 2010
Total Posts : 37
   Posted 6/8/2010 10:41 PM (GMT -6)   
i was thinking the exact same thing summerstorm. and i dnt even know if thats the cause!!im sick of worrying about it,10yrs on and i still havnt been able to figure it out. Dam Crohns.

Thankyo for ur advice aslo DC. i hope u get better soon, i also had trouble with the bag at nite, after a while i jst kinda wokeup when i felt it was full.. i hope u have a speedy recovery ;)

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 6/9/2010 5:37 AM (GMT -6)   
I tried before I had ostomy surgery and they didn't help me...since we are all different, I would think you'd have to try one to see if it would work for you.

Sorry there is no clear cut answer:(
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 6/10/2010 5:24 AM (GMT -6)   
I also tried all of the so-called "cure diets" like the Maker's Diet and Breaking the Vicious Circle (basically, I became a vegetarian who ate no wheat, carbs, or sugar), but the Crohn's did not go into remission. It was really hard to follow, too. Surgery was the closest thing to a cure for me. Eating is one of the basic pleasures in life, and I'm glad I can enjoy that again. wink
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.

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