Had my proctocolectomy surgery on Friday the 11th!

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Regular Member

Date Joined Mar 2005
Total Posts : 457
   Posted 6/14/2010 6:59 AM (GMT -6)   
I feel so much better. The weeks leading up to the surgery I was in so much pain and was so weak and couldn't even eat anything. I thought I would be depressed and in a lot of pain when I got out. I really don't even feel the affects from the surgery that much. The only pain I really have is from the catheter and the gauze that they packed in my rear. Its making it hard to move around. They put me on a water diet yesterday and since I was doing well on it I got upgraded to a full clear liquid diet. Hopefully I can eat FOOD soon. Its weird cause I feel kinda tired but I have been staying up like 5am-11pm. Normally I would just want to sleep. Oh and another exciting thing is they are bringing the prednisone down really fast. I've been on 60mg since october and hopefully I will be on 10-15 later in the week when I get out.
Anyway I just thought I would post an update. Without the help and support of you guys and my family and friends I really don't know what would have happened. Thank you all,

Veteran Member

Date Joined Mar 2009
Total Posts : 1118
   Posted 6/14/2010 9:45 AM (GMT -6)   
Hi, so glad to hear all went well hope you get home soon wishing you all the very best Bev x wink
Diagnosed with crohns at 13 now 43
Still battling with Doc's to get me on maintenance Meds only taking
Lomotil, 20mg citalopram,VSL#3 at the moment.
" I may not be there yet, but I'm closer than I was yesterday."

Veteran Member

Date Joined Aug 2006
Total Posts : 6571
   Posted 6/14/2010 10:28 AM (GMT -6)   
YAY!!! You are healthy now, isnt it great???
One thing i will caution you about, when i got out i was on like 15 mg of steroids too and it was gonna be like 3 weeks until i was off completly, and i decided i was tired of them and stopped taking them, and that was a mistake, the withdrawal sucked, lol.
Other than that, have fun with your new life now!
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

Veteran Member

Date Joined Jul 2007
Total Posts : 2765
   Posted 6/14/2010 11:41 AM (GMT -6)   
Wow, Brian, that's great news! I'm so happy for you. Thanks for posting so quickly, and congrats on being disease-free!! yeah

:-) Cecilia
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.

Veteran Member

Date Joined May 2009
Total Posts : 827
   Posted 6/14/2010 12:56 PM (GMT -6)   
This is great news! Be prepared for some ups and downs though. Just remember that if there is a "down" day that an "up" one is just around the corner. Remember to get up and WALK and CHEW your food really well.

With every week you will find that you are stronger and stronger and healthier and healthier.


Veteran Member

Date Joined Oct 2009
Total Posts : 1054
   Posted 6/14/2010 1:56 PM (GMT -6)   
Hooray, Brian!
Thats the way I felt on the days after my surgery as well. :) Just know that it's going to get EVEN BETTER!!!! Go slowly on the eating at first, chew a lot and definitely try to walk around as much as possible--it helps pain and helps your digestion. You'll be out of there soon and able to live your LIFE! :)
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
Total Proctocolectomy and Permanent Ileostomy 3/18/10! :)
Blockage/Ileo revision 6/8/10 :/
Tried: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas, Psyllium Seed Powder... Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
Currently taking: Prenatal Vitamin, Vitamin B 12 Complex, Biotin, Vitamin D, Calcium, Flomax (for urinary retention). 

Regular Member

Date Joined May 2010
Total Posts : 37
   Posted 6/15/2010 6:22 AM (GMT -6)   
wow congrats Brian!! im a bout to have the same surgery in 2 weeks and i hope i do as well as u r so far.
80schick i jst saw that u also have had a proctocolectomy..how was ur surgery/recovery?

Regular Member

Date Joined Mar 2005
Total Posts : 457
   Posted 6/20/2010 5:15 PM (GMT -6)   
Just an updateim STILL here in the hospital unfortunately. After they advanced me to a food diet I ate a half of a ham and cheese sandwhich and had a blockage later that night. I thew up and ever since then I am on a nothing by mouth diet. Not even water :(
they also put a catheter in my stoma cause they think it might be inflamed. It keeps falling out though. I am just hoping I get out of here soon because I have so much pain in my back from the hospital bed and they are drawing blood, poking me every few hours.
Anyone else have these problems after surgery?

Regular Member

Date Joined May 2010
Total Posts : 26
   Posted 6/22/2010 11:37 AM (GMT -6)   
I definatley had the back pain too. I think it was partly fom the bed and the fact that I couldn't stand up perfectly straight. I was a little hunched forwrd for a while because if i tried to straighten up my incisions would stretch. The pain meds they gave me helped with that though (tylenol w/ codiene). Once they get you stable and your able to go home I think your progress will thrive. When I got home and was comfortable again my appetite came back full force! I gained back all the weight I lost (25lbs) in a little over a month! Sounds crazy, i know. Just stay positive and you'll feel better in no time!

Equestrian Mom
Veteran Member

Date Joined Mar 2008
Total Posts : 3115
   Posted 6/23/2010 7:14 AM (GMT -6)   
Brian84~sorry to hear you had a set back. They can happen with major surgery:( Ileus is common and it's where your intestine goes back to sleep after waking up (pain/vomiting and no output)...did they do a CT Scan and find a blockage?

Back pain comes with the surgery...there was a lot of activity in your abdomen and that affects your back, too:( A heating pad works well to help with back discomfort. That way you don't have to over do pain meds for that pain. Just remember~do not put a heating pad on your incision!

You will walk a little hunched over for a while. As thing heal it will get easier and before you know it you'll be able to stand straight again:)

It is best to be in the hospital with complications...I hope they have gotten things straightened out now! Keep us posted!
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008

Regular Member

Date Joined Sep 2009
Total Posts : 81
   Posted 6/30/2010 5:11 PM (GMT -6)   
Brian I am currently still in the hospital too after a total proctocolectomy and its been over 2 weeks. Im having the whole illeus issue but slowly my intestine is waking up. Don't force yourself to eat just take it slow, heck for lunch I had a spoonful of soup and was full or bloated. Plus the narcotics you are on slows things down but we need pain control too. I feel for you and wish you the best.
Diagnosed in 2004 with Crohn's disease. Resection in 2009. Have tried almost every medication and nothing has worked. Next step permanent ostomie.

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