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Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 6/15/2010 11:11 AM (GMT -6)   
     Do most people have to have this following surgery?  Or, is this from complications?
 
Ulcerative Proctitis since Sept of 1998. Hospitalized for eight days.  Prednisone, Asacol, Rowasa enemas.  Two year remission. Flare..switched from Asacol to Colazal.  Two year remission.  Started 6MP in 2002.  Flared yearly from 2003 to May of 08.  Hospitalized for ten days in May of 08.  Flaring more often since.  Off 6MP. Remicade failed.  Humira failed.   Meds: Colazal, prednisone, Cort & canasa suppositories, Benicar (Blood pressure).  Surgery scheduled for June 28th...maybe sooner if possible.  Still flaring

 


Anthony1977
Regular Member


Date Joined Jan 2009
Total Posts : 413
   Posted 6/15/2010 11:20 AM (GMT -6)   
this is mostly due to complications.

suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 6/15/2010 12:23 PM (GMT -6)   
I did not have one.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


Collicat
Veteran Member


Date Joined May 2009
Total Posts : 827
   Posted 6/15/2010 1:24 PM (GMT -6)   
It is usually only needed it you have a ileus or blockage after surgery. "Stuff" in the stomache either has to go down through the intestine or vomited out. If it cannot go through the intestine you need an NG tube which brings almost instant relief from nausea and vomiting.

Collicat
Veteran Member


Date Joined May 2009
Total Posts : 827
   Posted 6/15/2010 1:27 PM (GMT -6)   
My son had an NG tube on four separate occasions and says the insertion is not as bad as the anticipation. The first time he refused it and waited out 6 hours of constant vomiting until finally relenting. He said it was such a relief when they actually inserted it.

Janiepain
Veteran Member


Date Joined Jan 2007
Total Posts : 662
   Posted 6/15/2010 2:14 PM (GMT -6)   

My surgeon inserted one before surgery because I told him there was no way I wanted one inserted while I was awake!  I had heard horror stories, but never experienced it.   He said actually he almost always used them.  I kept it in for 5 days because it took awhile before my intestine woke up.  BUT  no nausea at all, thank goodness! I didn't like it, but it wasn't has horrible as I expected.

 

 



esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 6/15/2010 2:46 PM (GMT -6)   
Hi Chris,

Even I had an OK experience with NG tube after surgery for my ileo. My intestines didn't wake up and I bloated bad, had pain, nausea and actually was asking for an NG tube. I felt soooooo much better after they got it in. They just sprayed the back of my throat with a numbing agent, had me swallow the tube with a drink of water and bingo it was in. Throat gets a bit sore from having it in, but that is sooooo worth the stomach feeling better.

Then what they did with me was clamped trials. This is a great idea because it prevents them from having to take the tube out and reinsert it in case your intestines have not yet awakened. They just take you off the suction, clamp the end of the tube while it's still in you. Then you go walking around and take advantage of the time to be out of bed, talk to other patients, pass the time. Then in a few hours they rehook the tube to the suction machine and see if you have started to process your own fluid transit. This sure beats them having to reinsert the tube.

When they determine that your intestines have woken up they take the tube out. They just had me look down and I think take a breath and they take it out sooooo fast that you don't even feel it. It's amazing how they can do that. Does not hurt at all.

Then you just take it easy on what you eat. Some people have no issues and their intestines wake right up. WIth MY case being so unusual, I had not been able to eat for 7 months prior to this surgery. Sooooo naturally my intestines did not wake right up as they had not been able to work for 7 months due to all my adhesions. So, you may not even have an issue post-surgical. Rosemary

pam222
Veteran Member


Date Joined Jun 2009
Total Posts : 985
   Posted 6/15/2010 4:59 PM (GMT -6)   
I had one in for the first day after just my first surgery
27/F Diagnosed with unspecified UC 11/08 (symptoms for over a year before)
Asacol, Prednisone, Remicade with no success--no remission for over 2 years
8/09 colonoscopy shows that the whole colon is affected
12/18/09 Removal of colon, creation of J-Pouch and ostomy; recessed stoma; 12/30/09 Takedown too soon; RV fistula;1/9/10 Second Ileostomy Surgery;
1/25/10 Stoma Revision Surgery; 3/30/10 Takedown again
6/9/10 Scope and Biopsy--Diagnosed with Crohns Disease
Currently in Hospital: Flagyl 500mg (3/day), TPN 24 hrs/day, IV steroid 100mg (3/day), Florinef .05mg (1/day), Probiotic (12/day), B12 (4/day), Iron (2/day), Multivitamin, Protonix, Dilaudid, Benadryl


taurus
Regular Member


Date Joined Jul 2007
Total Posts : 65
   Posted 6/15/2010 6:37 PM (GMT -6)   
I had one when I woke up from surgery. And THANK GOD! I have had many NG tubes in my lifetime. And I personally think the insertion is very traumatic. It's awful. Some nurses are good at it. And some nurses are just ok. Plus, some people have different problems with the inside of their noses. So it's different for everybody.

I would prefer having an NG put in during surgery. You are pretty out of it the first 24 hours or so after surgery. By the time the anesthesia wears off completely you are used to the NG. Not to mention the other tubes you'll have in you.

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 6/27/2010 2:01 PM (GMT -6)   
My surgeon said I will have it inserted during surgery..whewie!

cleo35
Regular Member


Date Joined Feb 2007
Total Posts : 430
   Posted 6/30/2010 10:12 AM (GMT -6)   
I had my last surgery in 2006 - didn't have one but the surgeon told me they put one in before they started the surgery and took it out when they finished. He's at a teaching hospital though so I find those docs a little more progressive than your run of the mill surgeons and GIs.

sno92c
Regular Member


Date Joined Sep 2009
Total Posts : 81
   Posted 6/30/2010 2:28 PM (GMT -6)   
I've had two surgeries and both time had an ng tube. After my second surgery had to get it put back in which was the most horrific thing I have been through. Made me feel better through.
Diagnosed in 2004 with Crohn's disease. Resection in 2009. Have tried almost every medication and nothing has worked. Next step permanent ostomie.


Dusti
New Member


Date Joined Jun 2010
Total Posts : 2
   Posted 7/1/2010 7:34 PM (GMT -6)   
It depends on your gag reflex too, I have had several and I don't like them but they do help. For me it's because I got blockages and the NG tube helped a lot!

polishdan
Veteran Member


Date Joined Mar 2010
Total Posts : 1595
   Posted 7/1/2010 9:19 PM (GMT -6)   
Strange,,,after my colectomy I did not have an ng tube, unless it was in during surgery and taken out before I woke up. However, I was home 4 days after the surgery and on the seventh day post op I developed peritonitis and was flown to a Detroit hospital. Our small town hospital could not handle peritonitis. I woke up after the surgery in intensive care with an NG tube. It was terrible. They said it was necessary to keep my stomach and intestines empty of digestive juices. I had it for three days in IC. Guess they knew what they were talking about because I am still here.

Dan

esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 7/1/2010 10:02 PM (GMT -6)   
Yeah Dan. Those NG tubes are worth their weight in gold when you need them. Glad you made it. I had a month of post-op ileus after an ileostomy with take down of adhesions needed to save my life after what turned out to be an unneeded pelvic surgery that left my colon and rectum permanently scarred and no longer functional and my small intestine imbedded in dense scar tissue that left me unable to eat for 7 months. After I threw up poop I begged for the tube. (Sorry to be so graphic, but they do have their time and their place.) So far so good after that adhesion lysis and ileostomy surgery and it's going on three years. PRAYING I stay OK as I have been. Rosemary

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 7/22/2010 8:14 PM (GMT -6)   
They did place an NG tube in during surgery. I woke up with it in. The day after surgery they removed it but then I started vomiting five days later and had to have one put in. Beats vomiting ....you should have seen all the bile that thing drew out of my gut! It came out a day and a half later while I was napping..lol. The doctor thought I pulled it out...I thought it broke off inside me.

NewShinyCD
Regular Member


Date Joined Oct 2009
Total Posts : 474
   Posted 7/22/2010 8:52 PM (GMT -6)   
LOL I'm sure I had one in. But I don't remember going into surgery or even after the surgery.
They gave me something in pre-op which made me feel awesome. I was laughing while the nurse was trying to get the 16 gauge IV needle in my arm. Then I started playing with the gown that they give you. I had the fancy kind that you can hook up to these hair dryer like things that keep you warm while you wait. I figured out that if you connect the hose just right on the gown and then cover up the holes, you could blow up the gown and look like a snowman LOL.
Next thing I remember was waking up a couple of hours later and then morphine :D :D :D
21 y/o male livin' in Georgia. Diagnosed with Left-Sided Colitis in 2002; re-diagnosed with Pancolitis in Nov. 2009.
June 2010 I beat UC by having surgery.
Drugs tried: Just about every 5ASA medicine, enemas, prednisone, turmeric, fish oil, Remicade, psyllium seed powder, Metamucil.
Unable to take 6MP.
Step one of Jpouch surgery - 6/2/2010
Readmitted back to hospital because of blockage (my fault cause I ate Steak n Shake 3 days after being released from surgery) - 6/10/2010
Step two of Jpouch surgery - 9/?/2010


SocalJohn
Regular Member


Date Joined Oct 2008
Total Posts : 160
   Posted 7/23/2010 11:46 AM (GMT -6)   
Ive had one inserted while I was awake and one while I was in surgery. The scene when I had mine inserted while awake was similar to Linda Blair turning her head around 360 degrees then projectile vomitting.

The one I woke up to from surgery just sucked big time. The tape used to keep it on my nose was super sticky. I have a nasty scar on my nose from when that was removed.

All I can say is they're almost worse than death.

taurus
Regular Member


Date Joined Jul 2007
Total Posts : 65
   Posted 7/23/2010 5:42 PM (GMT -6)   
I actually had one in that came out on it's own. I think.

It was so weird. I was absolutely miserable with it. I had it less then 24 hours so I still wasn't used to it. I went to sleep and woke up and it was OUT!!!! Weird thing is my Mom was had stayed the night and she was asleep in the chair across the room. I woke her up and she was astonished. The doctors and nurses didn't even know how it could have happened. They had only just put it in several hours before so it was taped down pretty good. Plus, I hadn't been vomiting so it was definately down far enough. It was so weird because even when you pull an NG out it's still a bit uncomfortable. No way could I have pulled it out on my own without knowing.

Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 7/25/2010 9:32 PM (GMT -6)   
I had one inserted during both of my surgeries. They were no fun, but after reading your stories, I'm very glad i was asleep when they were put in, lol.
I had my first one for 3 days-total colectomy, and the second in for 2 days for the emergency laparotomy. Two different surgeons and two different hospitals. I guess it just depends on your surgeons protocol.
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
i only take vitamins now, when I WANT to. :)
(temporary ileostomy....maybe)

"Things turn out the best for those who make the best of the way things turn out."

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