What's in a name? Would a stoma by any other name smell as...wait.

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not creative
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Date Joined Mar 2007
Total Posts : 469
   Posted 6/15/2010 11:29 AM (GMT -6)   

This is an excerpt from my blog at http://nomdenomphotos.blogspot.com about stoma names:

 

When I first learned that a lot of people name their stomas, I was really turned off by the idea. I didn't really understand why they would do such a thing, my bum didn’t have a proper name before my surgery, so why should my stoma?

 

Honestly, I still don't know why anyone else names their stoma, but after drama over pyoderma gangrenosum, I did decide to name mine: Veruca Salt, or just Veruca for short. Yes, the Veruca you might be thinking of from the wonderful mind of Roald Dahl (Charlie and the Chocolate Factory). Why Veruca? One might ask. Well, because sometimes, when I look down at that little glistening pink rosette just southeast of my belly button I can almost hear it yelling out orders regarding its proclivities towards golden geese (or squirrels, if you prefer the Johnny Depp version) and bean feasts and whatnot. I can hear it telling all my friends and family what a disappointment I am for not giving it all the attention it so truly deserves. Thus, I decided on Veruca Salt; no cutesy stuff here. Nope, it’s named after the super cute but demanding little girl who was definitely a bad egg (nut). I'm not much for cutesy, anyway. Winky face, smiley face, exclamation point.

 

Does your stoma have a name? What is it?

 

If yours doesn't have a proper name, what do you call it? Even though mine does have a name, I've still be known to rant about my "abdominal a*hole" in times of extreme annoyance.


Laurenne, 25 Graduate from University of California, Davis. BA-Anthropology
Dx'd w/ IBS and CD in 2002. Was in flare from 2006-2010 with almost no relief from any meds I tried.
Three abscesses that are now fistulas, with three setons! All gone as of March 9
Tried: LDN- Did nothing good, Remicade- allergic, Humira- no reaction
On: Zoloft, Abilify, folic acid, b12, vitamin c, multivitamin

3-9-10: Total protectomy and Sigmoid colostomy installed. Haven't spent more than 3 minutes on the toilet since- it's fantastic! Now I'm just waiting to get regulated so I can irrigate.

Post Edited (not creative) : 6/15/2010 4:05:47 PM (GMT-6)


NewShinyCD
Regular Member


Date Joined Oct 2009
Total Posts : 474
   Posted 6/15/2010 5:21 PM (GMT -6)   
Sir Charles the First. I have no idea why I came up with that but I did before surgery cause I was on that happy medicine they give you right before it.
21 y/o male livin' in Georgia. Diagnosed with Left-Sided Colitis in 2002; re-diagnosed with Pancolitis in Nov. 2009.
June 2010 I beat UC by having surgery.
Drugs tried: Just about every 5ASA medicine, enemas, prednisone, turmeric, fish oil, Remicade, psyllium seed powder, Metamucil.
Unable to take 6MP.
Step one of Jpouch surgery scheduled - 6/2/2010


summerstorm
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Date Joined Aug 2006
Total Posts : 6571
   Posted 6/15/2010 5:29 PM (GMT -6)   
mine doesnt have a name, i kind of think its silly, its a part of me, i didnt name my arms or anything!
But when i talk about it i just usually say, my thing, lol. I dont really talk about it much.
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!


flchurchlady
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Date Joined Jul 2007
Total Posts : 2765
   Posted 6/15/2010 5:45 PM (GMT -6)   
I named my stoma Paloma, because she's the reason why I can enjoy Italian food again. smilewinkgrin
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.


Shaz032
Forum Moderator


Date Joined Feb 2003
Total Posts : 1251
   Posted 6/15/2010 9:35 PM (GMT -6)   
Mine is named Harriet, cos that's the best name my 10 year old mind could come up with at the time :) Much better than calling her 'The Old Bag'.

The best names I've heard are: "The Stoma Formerly Known As Anus", "Vesuvius" (cos it erupts without warning) and "Oscar the Pouch".
Ileostomy for 34 years due to UC. I had my surgery at 10 years of age.

Moderator of the Ostomy and Psoriasis Forums

_______________________________________________

I'm not a complete idiot - some parts of me are missing!


Allison77
Regular Member


Date Joined Feb 2005
Total Posts : 421
   Posted 6/15/2010 10:53 PM (GMT -6)   
My colostomy is Oscar the pouch, Or Oscar the grouch....depending on how he's acting that day. LOL.
I named him about a month before the surgery, didn't realize the grouch part would come true sometimes!

-Allie
RX Crohn's 1999, over 30 surgeries, 3 strokes, permanent colostomy and rectum removal.
 
"The most unfortunate thing that happens to a person who fears failure is that he limits himself by becoming afraid to try anything new."


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 6/16/2010 4:41 AM (GMT -6)   
Laurenne, I checked out your blog, and you are so not 'not creative'! smilewinkgrin
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.


not creative
Regular Member


Date Joined Mar 2007
Total Posts : 469
   Posted 6/16/2010 9:18 AM (GMT -6)   
haha, well, thanks. The not creative thing was only because I couldn't think of a clever name for this forum!
Laurenne, 25 Graduate from University of California, Davis. BA-Anthropology
Dx'd w/ IBS and CD in 2002. Was in flare from 2006-2010 with almost no relief from any meds I tried.
Three abscesses that are now fistulas, with three setons! All gone as of March 9
Tried: LDN- Did nothing good, Remicade- allergic, Humira- no reaction
On: Zoloft, Abilify, folic acid, b12, vitamin c, multivitamin

3-9-10: Total protectomy and Sigmoid colostomy installed. Haven't spent more than 3 minutes on the toilet since- it's fantastic! Now I'm just waiting to get regulated so I can irrigate.


2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 6/16/2010 9:31 AM (GMT -6)   
sorry to jump in the middle of this like that, but Allison, what do you mean grouch? does it make noises??

Hodaya

06/05/2007 - STARR procedure

colonic inertia w/pelvic floor dysfunction

08/16/2009 - total colectomy w/ileorectal anastomosis


80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 6/16/2010 1:32 PM (GMT -6)   
Mine is named Zoe, cuz Zoe means life and she gave me a whole new life! I named her before my surgery.
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
Total Proctocolectomy and Permanent Ileostomy 3/18/10! :)
Blockage/Ileo revision 6/8/10 :/
 
Tried: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas, Psyllium Seed Powder... Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
 
Currently taking: Prenatal Vitamin, Vitamin B 12 Complex, Biotin, Vitamin D, Calcium, Flomax (for urinary retention). 


damagedgoods41
Regular Member


Date Joined Sep 2009
Total Posts : 377
   Posted 6/16/2010 7:15 PM (GMT -6)   
HELLO NOT CREATIVE I'VE HAD MY ILEOSTOMY FOR NEARLY 10 YEAR'S NOW AND I TOO THOUGHT GIVING MY STOMA ANAME WAS STUPID THEN about 3 YEARS AGO I GAVE IT A NAME (ROSE-BUD) AS TO ME IT RESEMBLES A ROSE PETAL BUT CERTAINLY DOESN'T SMELL LIKE ONE. LOL. HEHE. MAYBE IF YOU DO GIVE IT A NAME YOU CAN EXCEPT IT A LITTLE MORE. HOPE THIS HELP'S. I ALSO REALLY FEEL FOR YOU AS IT'S NOT EASY HAVING ONE.
 
REGARD'S.
 
BEVERLEY-DAMAGEDGOODS.
turn   smilewinkgrin turn smilewinkgrin turn smilewinkgrin turn smilewinkgrin turn
Permanent ileostomy,radical hysterectomy & bi-lateral ophrectomy,bi-lateral mastectomy,atonic bladder.
DX chronic depression,bi-polarr11,panic disorder,o.c.d. and just dx with agoraphobia!!!!!!!!
Currently taking Avanza 30mg,Abilify 20mg,Seroquel 200mgs,Asprin,Valium 5mgs & Sandrena HRT gel 1.0mgs
Strive to be a success but rather to be of value!!!!!!!
 
Dont count the day's,make the day's count!!!!!!
 
No more revenge now;I will think upon revenge!!!!
  • I dont knowthe key to success,but the key to failure

    is trying to please everybody!!!!!!!!!!!

    Life becomes harder for us, when we live life for others!!!

    Without music, life would be a mistake!!!!!!!!!

    Im not young enough to know everything!!!!!!!!

     

     
     
     
     
     
     
     


    summerstorm
    Veteran Member


    Date Joined Aug 2006
    Total Posts : 6571
       Posted 6/16/2010 9:09 PM (GMT -6)   
    LOL ron! i never understand that, but i dont know many men that havent done that at one point!

    As for naming it helping you accept it, i think it would be the opposite, that would just draw more attention to it. To me anyway.
    UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
    -I have gone to find myself, if i get back before i return, keep me here-
    No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!


    Trigirl
    Veteran Member


    Date Joined Jan 2006
    Total Posts : 768
       Posted 6/16/2010 9:55 PM (GMT -6)   
    Mine is named bubbles and lives up to it's name grandly! It is a unique and special part of who I am. I needed to make friends with it because I didn't really like it at first.
    Those things we keep trying to do get easier not because the feat gets easier but our ability to "do" gets better.
    Thyroid cancer removed 1988
    Stomach problems finally figured out 2001 Crohn's/Colitus
    Tried every drug without much success
    Colon/rectal cancer removed Aug 2009
    6 Grown kids, grandkids and a great husband to keep me busy


    Allison77
    Regular Member


    Date Joined Feb 2005
    Total Posts : 421
       Posted 6/16/2010 11:38 PM (GMT -6)   
    2B - Oscar makes noises, and when he does my husband always say`s ``well hello Oscar` Some nights he is just angry and makes me get up 2 or 3 times to change him, other times he is a lamb and is great. It really depends on what i`ve eaten though so it`s my fault when he gets grouchy. Over all, I love him.

    -Allie
    RX Crohn's 1999, over 30 surgeries, 3 strokes, permanent colostomy and rectum removal.
     
    "The most unfortunate thing that happens to a person who fears failure is that he limits himself by becoming afraid to try anything new."


    2b ColonFree
    Veteran Member


    Date Joined Nov 2008
    Total Posts : 2603
       Posted 6/17/2010 4:07 AM (GMT -6)   
    hey glad you love him Allison :))) i'm going to have an ileostomy surgery, hopefully the begining of July. i once started a thread asking whether the stoma is noisy or not and i think you were among the ppl who answered and said it's usually not noisy???? well, so now i don't know, i'm confused..... :/

    BTW everyone, i don't see a need to give the stoma a name, well at least not at this point. i think like summer, i also see it as part of me/of my body, and i agree, it's like drawing more attention to it and i don't see a point in that either. but i have a feeling i'm going to love him/her/it ;))

    Hodaya

    06/05/2007 - STARR procedure

    colonic inertia w/pelvic floor dysfunction

    08/16/2009 - total colectomy w/ileorectal anastomosis


    Allison77
    Regular Member


    Date Joined Feb 2005
    Total Posts : 421
       Posted 6/17/2010 8:51 AM (GMT -6)   
    2b- as I said, it depends on me and what I have eaten. He's noisy when I eat gassy foods....and thats when he becomes a grouch.

    -Allie
    RX Crohn's 1999, over 30 surgeries, 3 strokes, permanent colostomy and rectum removal.
     
    "The most unfortunate thing that happens to a person who fears failure is that he limits himself by becoming afraid to try anything new."


    summerstorm
    Veteran Member


    Date Joined Aug 2006
    Total Posts : 6571
       Posted 6/17/2010 11:27 AM (GMT -6)   
    its noisy if you DONT eat and let yourself get hungry, and its noisy if you eat like a bunch of gassy foods, other than that not usually
    UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
    -I have gone to find myself, if i get back before i return, keep me here-
    No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!


    2b ColonFree
    Veteran Member


    Date Joined Nov 2008
    Total Posts : 2603
       Posted 6/17/2010 12:31 PM (GMT -6)   
    thanks summer! ever since i had my colon removed i dont have much gas at all, so chances are it'll also be like that when i'm hoocked to a bag, at least it seems so to me. but when it does make noises, are those very embarrasing noises?

    Hodaya

    06/05/2007 - STARR procedure

    colonic inertia w/pelvic floor dysfunction

    08/16/2009 - total colectomy w/ileorectal anastomosis


    summerstorm
    Veteran Member


    Date Joined Aug 2006
    Total Posts : 6571
       Posted 6/17/2010 8:24 PM (GMT -6)   
    well they are embarrasing to me, but so far only twice have what i thought were hugely loud noises been heard by anyone else!
    What i do if its noisy is, take a square of cloth and fold it and put it on top of my bag, or if i am out and dont have that, i just fold up some tp and use it
    UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
    -I have gone to find myself, if i get back before i return, keep me here-
    No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!


    2b ColonFree
    Veteran Member


    Date Joined Nov 2008
    Total Posts : 2603
       Posted 6/18/2010 7:21 AM (GMT -6)   
    OMG....... you guys are scaring me!

    Hodaya

    06/05/2007 - STARR procedure

    colonic inertia w/pelvic floor dysfunction

    08/16/2009 - total colectomy w/ileorectal anastomosis


    Equestrian Mom
    Veteran Member


    Date Joined Mar 2008
    Total Posts : 3115
       Posted 6/18/2010 1:58 PM (GMT -6)   
    Hodaya~Don't be scared!!! Mine rarely makes noise :-) I eat 5-6 small meals a day (foods I know stick with me) and I don't have gassy problems anymore...I did in the beginning but by keeping track of how foods affect me and how often I should eat has helped!

    You'll also be a little different from Allie since she has a Colostomy...Ileostomies definitely act differently!

    NASCARon...you are hysterical shocked

    Oh, and mine has a name...Stanley...it just happened one day when I was changing my appliance...didn't plan on it!
    Crohn’s dx 1989
    some terrible years before my
    Proctocolectomy in 2008


    fish1
    Regular Member


    Date Joined Jan 2010
    Total Posts : 106
       Posted 6/18/2010 5:16 PM (GMT -6)   
    I just call mine the fish tank....seems like it bubbles alot and needs to be constantly cleaned!

    50 yr old man, Colon Cancer survivor 2005
    90 % of colon removed 2005 The rest 2-23-10
    Illistomy scheduled for Feb-23-10 Done!
    Healing up March 2010
    <*(((((><


    2b ColonFree
    Veteran Member


    Date Joined Nov 2008
    Total Posts : 2603
       Posted 6/19/2010 12:47 PM (GMT -6)   
    oh thanks ohio for calming me down lol! you're right, there's a difference between a colostomy and an ileostomy. i also rarely have gas now, but there are some certain foods that would give me BAD gas, like citrus... OMG!!! this fruit is fatal for me. or peanuts/peanut butter and cheese. so as long as i stay away from those, i don't have gas. i guess that's what i'll have to keep doing after i have my ileostomy done.

    Hodaya

    06/05/2007 - STARR procedure

    colonic inertia w/pelvic floor dysfunction

    08/16/2009 - total colectomy w/ileorectal anastomosis

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