Shouldn't I be receiving some kind of info from the surgeon's office by now?

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Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 6/15/2010 6:15 PM (GMT -6)   
     So far I haven't gotten any info regarding my surgery scheduled for June 28th.  Is this the norm or should I call?  I feel like I was lost in the shuffle somewhere.
 
Ulcerative Proctitis since Sept of 1998. Hospitalized for eight days.  Prednisone, Asacol, Rowasa enemas.  Two year remission. Flare..switched from Asacol to Colazal.  Two year remission.  Started 6MP in 2002.  Flared yearly from 2003 to May of 08.  Hospitalized for ten days in May of 08.  Flaring more often since.  Off 6MP. Remicade failed.  Humira failed.   Meds: Colazal, prednisone, Cort & canasa suppositories, Benicar (Blood pressure).  Surgery scheduled for June 28th...maybe sooner if possible.  Still flaring

 


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 6/15/2010 6:30 PM (GMT -6)   
yeah its normal, you probably wont get anything until about a week before
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 6/15/2010 7:24 PM (GMT -6)   
     They are probably waiting to receive word from my cardiologist too.  They did the nuclear stress echo today.
 
Ulcerative Proctitis since Sept of 1998. Hospitalized for eight days.  Prednisone, Asacol, Rowasa enemas.  Two year remission. Flare..switched from Asacol to Colazal.  Two year remission.  Started 6MP in 2002.  Flared yearly from 2003 to May of 08.  Hospitalized for ten days in May of 08.  Flaring more often since.  Off 6MP. Remicade failed.  Humira failed.   Meds: Colazal, prednisone, Cort & canasa suppositories, Benicar (Blood pressure).  Surgery scheduled for June 28th...maybe sooner if possible.  Still flaring

 


esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 6/15/2010 11:04 PM (GMT -6)   
Yep, this is normal. Give it until around the 21st then give them a call. They train you well in the use of the appliance prior to your leaving the hospital so no worries there. Just go easy with food and all should be good. Best wishes, Rosemary

80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 6/16/2010 2:36 PM (GMT -6)   
As long as you know when to go into the hospital and what kind of prep to do, you're good. I had to go to the hospital for like paperwork and stuff the day before, but that was it. I agree--call if you haven't heard anything like 5 days before. Did your stress test go ok then?
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
Total Proctocolectomy and Permanent Ileostomy 3/18/10! :)
Blockage/Ileo revision 6/8/10 :/
 
Tried: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas, Psyllium Seed Powder... Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
 
Currently taking: Prenatal Vitamin, Vitamin B 12 Complex, Biotin, Vitamin D, Calcium, Flomax (for urinary retention). 


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 6/17/2010 1:22 PM (GMT -6)   
     Stephanie....yes, I passed the stress echo.  The nurse phoned me yesterday.  I gave her the fax number for the surgeon's office.
     Still no word from colorectal surgeon.  I have oodles of questions.  No one told me what kind of prep to take..nothing!!!!  I phoned my surgeon's assistant and left a message on his voicemail about an hour ago.  It is now 2:15 pm here in Jersey.  I have to tell them that I am now on medicine to control my blood sugar.  Down to 20 mgm of prednisone hoping to cut that down to 10 mgm by Saturday and maybe to 5 by the time of my operation.  Just keeping my fingers crossed I don't flare.  UC wise I feel great...no bleeding, finally have "normal" looking stool.  Don't remember stool being this formed since beginning of January! Only go once or twice a day.
     Tracy said she received a list of meds she cannot take one week prior to her operation.  Well, where the heck is MY list????  I'm an old lady for cryin out loud.  Maybe they just don't give a rat's behind.  Having all sorts of second thoughts here.   Should have gone to another surgeon for another opinion????? UGH!  It isn't like I am a pain in the butt to these people.  The last time I phoned their office was three weeks ago when I started flaring when down to 7.5 mgm of prednisone.  They said to increase the prednisone in order to stay out of the hospital and take the rectal meds, which I did.
 
Ulcerative Proctitis since Sept of 1998. Hospitalized for eight days.  Prednisone, Asacol, Rowasa enemas.  Two year remission. Flare..switched from Asacol to Colazal.  Two year remission.  Started 6MP in 2002.  Flared yearly from 2003 to May of 08.  Hospitalized for ten days in May of 08.  Flaring more often since.  Off 6MP. Remicade failed.  Humira failed.   Meds: Colazal, prednisone, Cort & canasa suppositories, Benicar (Blood pressure).  Surgery scheduled for June 28th...maybe sooner if possible.  Still flaring

 


snugglesaurus
Regular Member


Date Joined Apr 2010
Total Posts : 206
   Posted 6/17/2010 2:46 PM (GMT -6)   
My gastro, local surgeon, and CC surgeon - all the assitants know who I am because I call frequently :)

As long as your cordial - they shouldn't be too peeved!
Diagnoses: Appendicitis, Terminal Ileitis, Crohn's, Celiac Disease, IBS-C, Chronic Constipation, Colonic Inertia, Rectocele, Anismus
Tests: 2 Colonoscopies, 2 CT scans, Sitzmark Test, Anorectal Manometry, Food Allergies, Thyroidism, Pudental Nerve Study, Defacogram, SMART Pill, Electromyogram, Celiac Panel, Small Bowel Study, Gastric Emptying Study - Solids
Tried: Pentasa, exercise, diet changes, pro-biotics, mineral oil, vitamins, laxatives, stool softeners, Miralax, Amitiza, anti-depressants, fiber supplements, water enemas, Fleet enemas, suppositories, mineral oil, phenergan, Zofran
 
Atlanta, GA


Anthony1977
Regular Member


Date Joined Jan 2009
Total Posts : 413
   Posted 6/17/2010 7:09 PM (GMT -6)   
OMG, Christine. I have been following all of your posts. I know you must be stressed out to the extreme. First of all, lets get one thing straight ... you are not OLD!!! ;) ... now ... don't settle for messages ... keep calling until you reach someone. I did all the time. Trust me, I just got a message two minutes ago for my barium enema prep tomorrow stating that I need to do a full prep for this exam ... meanwhile I have a diverted ileostomy so all I need to do is an enema ... great! I called my surgeon 3 times till I got in touch with him to find out what I had to do and he told me. He was actually pissed that they gave me the wrong info. Call, call, call ... keep calling until you get the answers you need. Waiting around and just worrying is going to make you feel even worse. You are working yourself into a frenzy here. I am not downplaying your situation. I know you have a few med issues that need to be remedied. I can't even imagine what your husband must be saying about you on this site ;).

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 6/17/2010 7:41 PM (GMT -6)   
     LOL...Anthony...I'm drivin my husband friggin nuts.  Poor guy could hardly sleep last night.  But he agrees that someone should have called me by now.  Makes me think they are just runnin some production line over there in Philly.  Get em in...take the colon out...get em out.
     Snugglesaurus...where did you dig up that name anyway?   Very cute...I like it.
 I am as cordial as I could be and it isn't easy for a stressed out Jerseygirl to be cordial...believe me.
     Off topic...have any of you seen the show "It's always Sunny in Philadelphia" with Danny DeVito?  It's on the Comedy station on Monday night at 10pm.  First time we watched it Monday....it's hilarious!!! 
 
Ulcerative Proctitis since Sept of 1998. Hospitalized for eight days.  Prednisone, Asacol, Rowasa enemas.  Two year remission. Flare..switched from Asacol to Colazal.  Two year remission.  Started 6MP in 2002.  Flared yearly from 2003 to May of 08.  Hospitalized for ten days in May of 08.  Flaring more often since.  Off 6MP. Remicade failed.  Humira failed.   Meds: Colazal, prednisone, Cort & canasa suppositories, Benicar (Blood pressure).  Surgery scheduled for June 28th...maybe sooner if possible.  Still flaring

 

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