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MACGIRL
Regular Member


Date Joined Jul 2009
Total Posts : 90
   Posted 6/15/2010 7:03 PM (GMT -6)   
How many times do you those of you with a J pouch have to go to the bathroom? Is leaking common? Will I still be always looking for a bathroom if I have this surgery? What should I expect?
34 year old female, one 13 year old son
diagnosed 1995 age 20 (was pregnant with son)
Currently taking : Imuran 200 mg, Remicade, 40 mg Prednisone


suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 6/15/2010 8:24 PM (GMT -6)   
I haven't needed to now the map of bathrooms since I gave up my colon. There is no urgency with a jpouch and no, you don't live in the bathroom. I got 6-8 times per day, most of those are when I go with the intention of urinating.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


Collicat
Veteran Member


Date Joined May 2009
Total Posts : 827
   Posted 6/16/2010 1:04 PM (GMT -6)   
My son who is 4 months post his reversal (J pouch is working) as about 4-6 BMs a day. Some nights he sleeps right through and sometimes is up once during the night. The only meds is takes are ~2 imodium in the evening. He had a little leakage the first few days in the hospital, when the output was very watery, but nothing since coming home. He has absolutely no urgency or discomfort...he can easily wait 30 mins or so after getting the feeling that he has to go and that is getting better all the time. His J pouch has completely given him his life back.

honestwoman50
Veteran Member


Date Joined May 2009
Total Posts : 833
   Posted 6/16/2010 1:15 PM (GMT -6)   
MACGIRL
  Are you haveing a total colecotmy with J-Pouch...?  Just like the others say, in the hospital you vomit, you pooo, very watery in the beginning.  Never had a accident at home ...Living life so much better now.  Getting ready to leave for Calif, for 16 days,  as long as I know where the bathrooms are everywhere I go I am good.  Cuz sometimes you have to run to get to the bathroom, but not too often.  When is your surgery and what kind?
 
Leslie
Leslie King
 
  1984 Tubligation  1992 Diagnosed with Thyroid tumor    
1993 Gallbladder Removed  1997 Hysterectomy  1998 Carpol Tunnel 
 1999 Spinal Cord Surgery for a Anacroid Syst
2001 Lower Lumbar Fusion L4-5  
2003 Sigmoid Colon Resection
 2006 Right Knee Replacement 2005 Breast Reduction
 2008 RE-did the Lower Lumbar Fusion/ lamanoctomy
2010 DX: colonic Inertia/ Pelvic Floor Disorder
2010 Total Colectomy ABD W/O proctectomy; w/Ileosto
 
  


MACGIRL
Regular Member


Date Joined Jul 2009
Total Posts : 90
   Posted 6/16/2010 7:46 PM (GMT -6)   
I have a consultation with a surgeon on July 15. Going to talk about J pouch. Not sure if I will go through with it. Nervous. Just tired of uc. NO meds seem to work. I'm tired of hurting and having to go all the time and not being able to enjoy life.
34 year old female, one 13 year old son
diagnosed 1995 age 20 (was pregnant with son)
Currently taking : Imuran 200 mg, Remicade, 40 mg Prednisone


honestwoman50
Veteran Member


Date Joined May 2009
Total Posts : 833
   Posted 6/16/2010 7:51 PM (GMT -6)   
MACGIRL
  Are you talking about getting a appliance?  I have a internal J-pouch.  Go see the surgeon, and talk to him.  Ask about all your options you don't have to make a commitment on that day.  But if you are like most of us...after trying everything under the sun and you just keep getting sicker...then you know its time...its time to do the unthinkable....just so you can be better.  I was at the end of my rope mentally, physically, and in every other way.  I had no life, could not go anywhere cuz of being so ill.  So take a deep breath, and just go talk to him..
 
Leslie
Leslie King
 
  1984 Tubligation  1992 Diagnosed with Thyroid tumor    
1993 Gallbladder Removed  1997 Hysterectomy  1998 Carpol Tunnel 
 1999 Spinal Cord Surgery for a Anacroid Syst
2001 Lower Lumbar Fusion L4-5  
2003 Sigmoid Colon Resection
 2006 Right Knee Replacement 2005 Breast Reduction
 2008 RE-did the Lower Lumbar Fusion/ lamanoctomy
2010 DX: colonic Inertia/ Pelvic Floor Disorder
2010 Total Colectomy ABD W/O proctectomy; w/Ileosto
 
  

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