Recovering from surgery kinda sad

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NewShinyCD
Regular Member


Date Joined Oct 2009
Total Posts : 474
   Posted 6/16/2010 1:14 PM (GMT -6)   
I've been kinda blah lately and I've been having some questions run through my head.

How long after surgery should my strength come back? I've been so run down. Today I went grocery shopping with my fiancee and after walking through the food section, I had to go back to the car while she checked out.

Also I'm extremely skinny. Before my flareup I weighed around 175, then right before surgery 128, then when I was re-admitted because of the obstruction they weighed me at 109. I look like a drug addict :/

Another thing with the leaking, which I've got better at controlling, but I've noticed that I'm having "spasms". They seem similar to the spasms when I was flaring up but MUCH less worse. They only last about 3-5 seconds and they aren't even really painful, just annoying. I'm still having leaking at night and when I do feel the spasm and I go to the restroom nothing comes out. Is this normal and should I be worried about what will happen after takedown?

It's probably just me but I keep asking myself if I did the right thing. I mean, I went through an extremely horrible flareup where I wasn't able to hangout with my friends and couldn't eat anything, opted for surgery, and now after surgery eventhough my stomach doesn't hurt anymore my body does. Body aches and pains in the morning, no energy all day. That and I keep having this horrible cough and occasionally my nose will run and my ears feel "stuffy" (like when I talk sometimes I hear my voice echo in my ears and I can hear outside sounds until I stop talking).
21 y/o male livin' in Georgia. Diagnosed with Left-Sided Colitis in 2002; re-diagnosed with Pancolitis in Nov. 2009.
June 2010 I beat UC by having surgery.
Drugs tried: Just about every 5ASA medicine, enemas, prednisone, turmeric, fish oil, Remicade, psyllium seed powder, Metamucil.
Unable to take 6MP.
Step one of Jpouch surgery scheduled - 6/2/2010


suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 6/16/2010 1:21 PM (GMT -6)   
Holy Crap! You just had surgery! You need to be patient!!!!

It took a full year for my post surgery/post UC fatigue to leave. It will get better but gradually. Expect improvement in 6 week increments. So six weeks from today you will be better than you are today. Spasms are normal and will go away too. Well gosh, everything you are experiencing is normal post surgery.

My advice is to be patient and to take good care of yourself. Eat well, get plenty of rest and plenty of exercise (as you can tolerate), and let your body heal on its own time.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


NewShinyCD
Regular Member


Date Joined Oct 2009
Total Posts : 474
   Posted 6/16/2010 1:38 PM (GMT -6)   
lol guess I'm just being a worry wort :/ depression and anxiety do run I'm my family, but I've never wanted to get tested for that stuff.

It's just after being sick for so long...

In other news I ate fish last night and when I went to the bathroom this morning, oh Lord the smell LOL!
21 y/o male livin' in Georgia. Diagnosed with Left-Sided Colitis in 2002; re-diagnosed with Pancolitis in Nov. 2009.
June 2010 I beat UC by having surgery.
Drugs tried: Just about every 5ASA medicine, enemas, prednisone, turmeric, fish oil, Remicade, psyllium seed powder, Metamucil.
Unable to take 6MP.
Step one of Jpouch surgery scheduled - 6/2/2010


Anthony1977
Regular Member


Date Joined Jan 2009
Total Posts : 413
   Posted 6/16/2010 2:02 PM (GMT -6)   
yeah, dude ... trust me ... I was in the same boat as you. Weight before surgery 248 lbs. Weight After surgery 220 lbs .. Readmitted To Hospital Because I was stupid and didn't hydrate correctly .. Weight: 201 lbs. So, yeah, I looked like skeletor and had absolutely no energy at all! When I got home I was lucky to be able to walk from the bedroom to the bathroom w/o getting winded. It has been about 7 weeks post op and I am working out a little again, able to ascend a flight of stairs .. but still get extremely exhausted. Mind you, I used to be able to wear a 75 lb. vest and walk up 30 stories ... this was all pre-UC. It takes a lot of time, but I will tell you, it goes by quick and you will notice the strength coming back to you. BTW, I probably could have gotten away with shopping at Baby Gap. It will all be good. Give it time.

Collicat
Veteran Member


Date Joined May 2009
Total Posts : 827
   Posted 6/16/2010 2:31 PM (GMT -6)   
Our story is the same. My 18 yr old son weighed 109 after surgery and is 5'11" but in four months he has put on 30 lbs. It all takes time but it slowly does get better and better. You probably have a cold as well which can make the best of us feel like crap....take it easy, look after yourself, push yourself a little every day and before you know it it will be a few months down the road and you will not believe how much better you feel. You have to remember that your body has been very sick for a long time and then had the stress of major surgery...you do not get over that quickly.

As an aside...does your family doctor know that you are also sick with some sort of a bug? I would let them know. Depending on how long you have had these symptoms you could easily have a bacterial sinus infection that needs some antibiotics. Since your body has been under such stress it is common for the immune system to not be able to handle the infection.

Take is easy. You will feel better soon.

NewShinyCD
Regular Member


Date Joined Oct 2009
Total Posts : 474
   Posted 6/16/2010 2:50 PM (GMT -6)   
Yea I'm prolly going to the doctor tomorrow.

@Anthony1977, wow 7 weeks post op? I thought you were like 4 weeks post op or something. Lol I don't know what I was thinking.

The heat is also probably making me more tired. The heat index where I'm is like 100F. Its crazy.
21 y/o male livin' in Georgia. Diagnosed with Left-Sided Colitis in 2002; re-diagnosed with Pancolitis in Nov. 2009.
June 2010 I beat UC by having surgery.
Drugs tried: Just about every 5ASA medicine, enemas, prednisone, turmeric, fish oil, Remicade, psyllium seed powder, Metamucil.
Unable to take 6MP.
Step one of Jpouch surgery scheduled - 6/2/2010


stillhere2010
New Member


Date Joined May 2010
Total Posts : 7
   Posted 6/16/2010 6:53 PM (GMT -6)   
It just takes time. Your gut gets angry when you "play" with it. Really,  had a temp illeo in august 2010. Still waiting for flare to get under control to reverse it. But, after I healed from the surgery life is much better with the illeo. At night, don't drink or eat for like 2 hrs b/4 you g to bed. Also, set your alarm clock to go off every 2.5 hrs to empty. Talk to you woc nurse about leakage, I had a lot at the beginning, but after finding the right product ( convexity with belt) my leakage problems decreaed. With  the weight , I'm a female, but I started at 127 ... after the 1st weigh in after release from hospital I was 87lbs. Now I'm at 140, trying to get to 131 wink . Stay Up and give it a little time, Your body has been through a lot;

Allison77
Regular Member


Date Joined Feb 2005
Total Posts : 421
   Posted 6/17/2010 12:47 AM (GMT -6)   
NSCD- relax!!!!! It takes time for your body to repair and heal!
I was uber thin when I had surgery in Nov. now Im fat. LOVE IT!!!!! Ferserious, im enjoying being a chunky bum. I figure my body has been in starvation mode for 15 years, I can handle being chubby for a year, then work it off.

-Allie
RX Crohn's 1999, over 30 surgeries, 3 strokes, permanent colostomy and rectum removal.
 
"The most unfortunate thing that happens to a person who fears failure is that he limits himself by becoming afraid to try anything new."


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 6/17/2010 5:35 AM (GMT -6)   
Like it's been said, BE PATIENT :-)

You have been through a lot and it is true that it does take a full year for your body to recover!!! Every day will get easier and the leaks are probably a by product of the post op weight loss. Whenever your weight fluctuates the way the wafer fits can change...for me it can be as little as 5 lbs...and you've lost 20 since surgery.

Protein will help with healing and any time you've had a set back you kind of start over sad

Stay positive...you are on the road to a full recovery and great life ahead of you...and NO UC smilewinkgrin
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008

Post Edited (OHIO76) : 6/18/2010 2:15:36 PM (GMT-6)


cleo35
Regular Member


Date Joined Feb 2007
Total Posts : 430
   Posted 6/17/2010 11:57 AM (GMT -6)   
It really depends on the shape you're in at the time of surgery, how much weight you've lost and how fast; what you metabolic readings are; how anemic you are, etc. My first surgery was at 25 and I recovered quickly. My last surgery was at 53 and it took a lot longer. And the last thing to "come back" was my stamina. I did go back to work full-time at 6 weeks and 4 years later I'm still doing great.

ducridr
Regular Member


Date Joined Apr 2008
Total Posts : 139
   Posted 6/17/2010 10:44 PM (GMT -6)   
+1 on wait for your stamina to return. It takes time. I learned to drive the scooters at Walmart really well during each recovery from surgery and walking through the grocery store was something I left to hubby for the first several weeks. I went from 165 (too much) to 123 before surgery, 113 when I got home (Jr High weight - which was a really really long time ago).

After surgery #1, once my small intestine started absorbing more food and fluids, I started gaining weight...very easily. It was a little harder with the loop but somehow I succeeded. I am a big cheese eater and really enjoy my potato chips so that might have something to do with it. smilewinkgrin Now a few months after takedown I gained weight with no problems and am trying to keep some of it off now. I eat throughout the day now but in the beginning I would take a whole day to eat a sandwich and I would eat it in quarters.

Also - the spasms are possibly just because your rectum still has UC and the blood from it is very irritating to the anus if I remember what my surgeon said. Basically he told me you still have UC in your rectum so you will feel like you have UC which for me also mean the spasms and bathroom visits with almost nothing coming out and I would have the urge to push. After doing this for a few days and just having mucus come out I would end up having a nice long sit on the toilet and relief would come as I would finally pass the blood that was causing the issue.
Ducridr - 36 - female

Diagnosed w/ severe pancolitis 11/20/2007
Asacol - 6 (400mg) 2x/day, Xifaxin 2 (200mg) 2x/day, Prednisone 15 mg (started at 40mg Nov 08 - off June 09), multi-vitamin, calcium and vit d supplement, potassium supplement, B-12 supplement, Junel FE (BCP),metamucil capsule (1/day) Coumadin (for blood clot) 5mg/day, 1st Remicade treatment 2/4/2009, 2nd - 2/18/09. Currently getting Remicade every 4 weeks.

J-Pouch surgery #1 of 3 on 8/21/2009!!!
Surgery #2 on 1/4/2010
Surgery #3 on 3/23/2010


NewShinyCD
Regular Member


Date Joined Oct 2009
Total Posts : 474
   Posted 6/17/2010 11:11 PM (GMT -6)   
Well I'm getting more of my appetite back. Today I've been eating lots of fruit loops, yogurt and ensures. Even some ravioli.
I also cleaned my house, although I was wiped out afterward.

Tomorrow I'm going to my doctor to see what can be done about the cough. And since I'll be out of work for the next couple of weeks I'll be able to take some online classes over the summer. :D
21 y/o male livin' in Georgia. Diagnosed with Left-Sided Colitis in 2002; re-diagnosed with Pancolitis in Nov. 2009.
June 2010 I beat UC by having surgery.
Drugs tried: Just about every 5ASA medicine, enemas, prednisone, turmeric, fish oil, Remicade, psyllium seed powder, Metamucil.
Unable to take 6MP.
Step one of Jpouch surgery - 6/2/2010
Readmitted back to hospital because of blockage (my fault cause I ate Steak n Shake 3 days after being released from surgery) - 6/10/2010
Step two of Jpouch surgery - 9/?/2010

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