+1 on wait for your stamina to return. It takes time. I learned to drive the scooters at Walmart really well during each recovery from surgery and walking through the grocery store was something I left to hubby for the first several weeks. I went from 165 (too much) to 123 before surgery, 113 when I got home (Jr High weight - which was a really really long time ago).
After surgery #1, once my small intestine started absorbing more food and fluids, I started gaining weight...very easily. It was a little harder with the loop but somehow I succeeded. I am a big cheese eater and really enjoy my potato chips so that might have something to do with it.
Now a few months after takedown I gained weight with no problems and am trying to keep some of it off now. I eat throughout the day now but in the beginning I would take a whole day to eat a sandwich and I would eat it in quarters.
Also - the spasms are possibly just because your rectum still has UC and the blood from it is very irritating to the anus if I remember what my surgeon said. Basically he told me you still have UC in your rectum so you will feel like you have UC which for me also mean the spasms and bathroom visits with almost nothing coming out and I would have the urge to push. After doing this for a few days and just having mucus come out I would end up having a nice long sit on the toilet and relief would come as I would finally pass the blood that was causing the issue.
Ducridr - 36 - female
Diagnosed w/ severe pancolitis 11/20/2007
Asacol - 6 (400mg) 2x/day, Xifaxin 2 (200mg) 2x/day, Prednisone 15 mg (started at 40mg Nov 08 - off June 09), multi-vitamin, calcium and vit d supplement, potassium supplement, B-12 supplement, Junel FE (BCP),metamucil capsule (1/day) Coumadin (for blood clot) 5mg/day, 1st Remicade treatment 2/4/2009, 2nd - 2/18/09. Currently getting Remicade every 4 weeks.
J-Pouch surgery #1 of 3 on 8/21/2009!!!
Surgery #2 on 1/4/2010
Surgery #3 on 3/23/2010