Christine1946 ...

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Regular Member

Date Joined Jan 2009
Total Posts : 413
   Posted 6/16/2010 8:00 PM (GMT -6)   
12 days to your new life, girl! Stick in there, and stop worrying!!!!!!

Veteran Member

Date Joined Aug 2006
Total Posts : 6571
   Posted 6/16/2010 10:11 PM (GMT -6)   
what he said!
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

Veteran Member

Date Joined Aug 2008
Total Posts : 5975
   Posted 6/17/2010 6:31 AM (GMT -6)   
     Yeah, and still no word from the surgeon's info whatsoever...what's with this?  The prednisone has increased my blood glucose.  I saw my family doctor yesterday and now I have to take 1 mg of Glimepiride (generic for Amaryl) with my morning meal.  I was spilling out anywhere from a 2+ to 4+ glucose in my urine...know that was bad.  My 2 hr pp registered anywhere from 172 to 217.  Watching my diet carefully too. I know it is from the prednisone but doctor said it was way too high.  Last night, after taking the pill it was down to 88..whew. 
Ulcerative Proctitis since Sept of 1998. Hospitalized for eight days.  Prednisone, Asacol, Rowasa enemas.  Two year remission. Flare..switched from Asacol to Colazal.  Two year remission.  Started 6MP in 2002.  Flared yearly from 2003 to May of 08.  Hospitalized for ten days in May of 08.  Flaring more often since.  Off 6MP. Remicade failed.  Humira failed.   Meds: Colazal, prednisone, Cort & canasa suppositories, Benicar (Blood pressure).  Surgery scheduled for June 28th...maybe sooner if possible.  Still flaring


Veteran Member

Date Joined Feb 2006
Total Posts : 5698
   Posted 6/17/2010 8:12 AM (GMT -6)   

It's normal not to hear from the surgeon's office this far out from surgery. Hang tight or if you feel the need to have more information right now, call them.

dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free

Regular Member

Date Joined Jan 2009
Total Posts : 413
   Posted 6/17/2010 8:49 AM (GMT -6)   
suebear is right ... i didn't hear from my surgeon until the day of the surgery when I saw him. I did call a week ahead to make sure that everything was up-to-par. The financial department surely called me many times to make sure I would pay the admission fees because of my stupid deductible. Like I said, don't wait for them ... you call them if you need answers. I am sure they expect that to happen.

Veteran Member

Date Joined Dec 2008
Total Posts : 1325
   Posted 6/17/2010 9:20 AM (GMT -6)   
Christine, since you have your pre-op and stoma locator appt all set up, you are probably in the clear. They gave me lots of info at my stoma locator appointment....showed me the bags and went over what is going to happen during the surgery, exactly what I am having down, etc.

They also gave me 2 bags to wear, one on the right and one on the left. This is because I have alot of excess skin and fat at the bottom of my stomach, so my stoma is going to be higher up than normal..almost exactly across from my belly button. She said the bag wouldn't stick any lower. It was great! I am hoping this isn't going to be a problem for me, but since this is temporary, I guess it doesn't matter. I was also marked for my stoma on the right and on the left and this is because the doctor plans to place the stoma on the right, but if he gets in there and there is alot of scar tissue on the right, then he will move it to the left side....

When I went for my pre-op, after my colonoscopy, they drew blood and are now making me wear this red hospital band until my surgery on Monday. They said it is a blood typing band and if I take it off before my surgery, then my surgery could either be canceled, delayed, or I would have to pay more money to have the blood typing redone....

If I were you, I would atleast call the doctors office and see if you are supposed to be doing any type of prep before your surgery though....

It will be a good thing for you to be able to get off of the predisone....those sugar levels don't seem safe!
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