was able to contact surgeon's assistant today

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Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5962
   Posted Today 11:40 AM (GMT -6)   
     Since I didn't hear back from the office yesterday, I decided to give it another shot this morning and was able to speak to the surgeon's assistant.  Good thing too!!!  I had to tell him I was placed on medicine for Type 2 diabetes this week because the prednisone really shot my sugar up.  But the important thing is.....I am now down to 20 mgm of prednisone and was going to taper down to 15 tomorrow.  He said not to do that because they don't want me flaring going into surgery.  Whenever I would get down to about 7.5 mgm...wham...bleeding, urgency, pain.  So, they want me to stay at the 20 mgm of prednisone and hopefully, after surgery they can ween me off the prednisone...yaaaaa!!!
     I am not on any blood thinner and that is a med they would want to stop a week ahead of time.  Next Thursday I go in for all the pre-op stuff and meet with the ostomy nurse.
 
Ulcerative Proctitis since Sept of 1998. Hospitalized for eight days.  Prednisone, Asacol, Rowasa enemas.  Two year remission. Flare..switched from Asacol to Colazal.  Two year remission.  Started 6MP in 2002.  Flared yearly from 2003 to May of 08.  Hospitalized for ten days in May of 08.  Flaring more often since.  Off 6MP. Remicade failed.  Humira failed.   Meds: Colazal, prednisone, Cort & canasa suppositories, Benicar (Blood pressure).  Surgery scheduled for June 28th...maybe sooner if possible.  Still flaring

 


Anthony1977
Regular Member


Date Joined Jan 2009
Total Posts : 413
   Posted Today 2:26 PM (GMT -6)   
do you feel a little better that you got in contact with them now? Things are going to work out!

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted Today 2:32 PM (GMT -6)   
I bet that helped to settle the anxiety!! Glad you got some answers...have a good weekend and make a list, of any other questions that might come up, for when you have your pre-op appointment. Once they're on paper your mind can relax!!!
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008


Scrap Girl
Veteran Member


Date Joined Jan 2007
Total Posts : 653
   Posted Today 3:07 PM (GMT -6)   
Glad to hear things are all falling into place for you. I was on 20 mg of prednisone going into surgery and was able to taper off completely in less than three weeks - might have even been two. Good luck! Can't wait to hear how it all goes.

Diagnosed with UC in Feb. 2005
 
Asacol, Colazal, Prednisone, Rectal Meds, Remicade, Humira
 
Now UC Free!
First step of j-pouch - April 1, 2010
Second Step - 9/14/10
Third Step - TBD


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5962
   Posted Today 3:39 PM (GMT -6)   
     Yes, I am able to breathe a bit better now..lol.  OHIO....you read my mind.  I told my husband today that tomorrow I am making a list of all the questions I want to ask next Thursday.
     Scrapgirl...how was your condition following surgery?  How long were you hospitalized?  I won't be having the j-pouch but the perm ileo. 
 
Ulcerative Proctitis since Sept of 1998. Hospitalized for eight days.  Prednisone, Asacol, Rowasa enemas.  Two year remission. Flare..switched from Asacol to Colazal.  Two year remission.  Started 6MP in 2002.  Flared yearly from 2003 to May of 08.  Hospitalized for ten days in May of 08.  Flaring more often since.  Off 6MP. Remicade failed.  Humira failed.   Meds: Colazal, prednisone, Cort & canasa suppositories, Benicar (Blood pressure).  Surgery scheduled for June 28th...maybe sooner if possible.  Still flaring

 


80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted Today 4:03 PM (GMT -6)   
Christine,
I was on 40 mg of pred going into my surgery and was fine post-op (meaning I had no prednisone-related problems). I was tapered down to 25 a few days after surgery and then went down by 5 mg every week until I was off for good. It really wasn't much of an issue at all.
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
Total Proctocolectomy and Permanent Ileostomy 3/18/10! :)
Blockage/Ileo revision 6/8/10 :/
 
Tried: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas, Psyllium Seed Powder... Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
 
Currently taking: Prenatal Vitamin, Vitamin B 12 Complex, Biotin, Vitamin D, Calcium, Flomax (for urinary retention). 


Anthony1977
Regular Member


Date Joined Jan 2009
Total Posts : 413
   Posted Today 5:46 PM (GMT -6)   
This is great news, Christine! I am glad you are able to have a breather now. All the best wishes to you. You have a whole bunch of us rooting for you here.

esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 6/19/2010 4:32 PM (GMT -6)   
Christine,

Sooooo glad you called. Good for you. The list of questions is the best idea. Glad you're feeling better about all this now. Like Anthony said we're all rooting for you. Rosemary
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