Jpouch Step #2 Surgery Is Set!!!

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Anthony1977
Regular Member


Date Joined Jan 2009
Total Posts : 413
   Posted 6/18/2010 6:50 PM (GMT -6)   
Well, I passed that Barium Enema test. It was the 2nd time I had to go for it since my jpouch was leaking. Well, I got the green light, and set the date for the surgery in 3 weeks. I am so friggin happy it is unbelievable. My surgeon is awesome. He was like I will be expecting emails from you. I had to laugh and told him I am sure he is going to be happy when I am done questioning him ... he was like ... I am actually going to miss it. I can't believe I got this far!! I am just excited because me being a fireman will start all over again. Man, this is a good feeling. Thank you all for the help and support. For those of you that have gone for this procedure I am sure I you will be beckoned upon for answers ... no doubt! Have a great weekend all.

- Anthony

suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 6/18/2010 7:06 PM (GMT -6)   
Anthony,

This is terrific news but I want to temper your excitement because you may find that the adaption period is choppy. There will be ups and downs as your new plumbing gets used to it's new job. Certainly it will be better than having UC but don't be surprised to get frustrated along the way. Be patient and remember that improvements will come in increments measured in weeks, not days.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


Anthony1977
Regular Member


Date Joined Jan 2009
Total Posts : 413
   Posted 6/18/2010 7:12 PM (GMT -6)   
Can I just ask you what it was like at least the 1st month after the surgery? pain-wise, bathroom visits, etc? Thank you, Sue!!

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 6/18/2010 7:19 PM (GMT -6)   
     Good luck Anthony!!!  I will keep you in my prayers.
 
Ulcerative Proctitis since Sept of 1998. Hospitalized for eight days.  Prednisone, Asacol, Rowasa enemas.  Two year remission. Flare..switched from Asacol to Colazal.  Two year remission.  Started 6MP in 2002.  Flared yearly from 2003 to May of 08.  Hospitalized for ten days in May of 08.  Flaring more often since.  Off 6MP. Remicade failed.  Humira failed.   Meds: Colazal, prednisone, Cort & canasa suppositories, Benicar (Blood pressure).  Surgery scheduled for June 28th...maybe sooner if possible.  Still flaring

 


Anthony1977
Regular Member


Date Joined Jan 2009
Total Posts : 413
   Posted 6/18/2010 7:20 PM (GMT -6)   
Like-wise, Christine. I may just email ya while I am driving morphine through my veins ;)

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 6/18/2010 7:29 PM (GMT -6)   
     Sounds good to me.  I won't have access to a computer while in the hospital but I won't be admitted till the day of surgery.  NOW some of my friends are asking me why I didn't have a second opinion on whether I needed this surgery or not...ugh.  I don't believe the surgeon would operate if he didn't feel I absolutely was a candidate for surgery.  Prednisone dependency, chronic ulcerations in my rectum, history (paternal grandmother) of rectal cancer....  these are enough reasons.   Sad that I have to say goodbye to the rest of the colon though.
 
Ulcerative Proctitis since Sept of 1998. Hospitalized for eight days.  Prednisone, Asacol, Rowasa enemas.  Two year remission. Flare..switched from Asacol to Colazal.  Two year remission.  Started 6MP in 2002.  Flared yearly from 2003 to May of 08.  Hospitalized for ten days in May of 08.  Flaring more often since.  Off 6MP. Remicade failed.  Humira failed.   Meds: Colazal, prednisone, Cort & canasa suppositories, Benicar (Blood pressure).  Surgery scheduled for June 28th...maybe sooner if possible.  Still flaring

 


suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 6/18/2010 8:35 PM (GMT -6)   
Christine,

Most of us who had surgery for UC DID not get a 2nd opinion. You are very hard headed!!!

Anthony, No pain after 2nd surgery. Frequency for me was about 15X per day in the first few weeks; keep a food log, stay away from sugar if your frequency is high; take fiber and imodium.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


Anthony1977
Regular Member


Date Joined Jan 2009
Total Posts : 413
   Posted 6/19/2010 6:23 AM (GMT -6)   
Thank you, Sue ... was urgency a huge issue. I can deal with 15x+ since I was already going about 20-25x per day. I just couldn't deal with the urgency and pain and started to have many accidents.

suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 6/19/2010 7:25 AM (GMT -6)   
No, there will be no urgency!! If so in the first few days it might feel like you gotta go but it's not like that UC gotta-go sensation.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


NewShinyCD
Regular Member


Date Joined Oct 2009
Total Posts : 474
   Posted 6/19/2010 8:10 AM (GMT -6)   
I'm glad there will be no urgency. I remember during my last flare up I had never had an accident. I had some close calls, mostly when I was driving, so I had to bite down on something to ignore the pain from the urgency.
Then 3 days before the surgery I dropped my fiancee off at work and the urgency hit...I told her that I was going to go use the restroom inside, but it was kinda hard to run cause you have to do that weird running/walking thing where people think you have some mental problem lol...but yea I made it halfway to the front door and couldn't hold it anymore.

All I remember thinking was, after surgery this will never happen again.
21 y/o male livin' in Georgia. Diagnosed with Left-Sided Colitis in 2002; re-diagnosed with Pancolitis in Nov. 2009.
June 2010 I beat UC by having surgery.
Drugs tried: Just about every 5ASA medicine, enemas, prednisone, turmeric, fish oil, Remicade, psyllium seed powder, Metamucil.
Unable to take 6MP.
Step one of Jpouch surgery - 6/2/2010
Readmitted back to hospital because of blockage (my fault cause I ate Steak n Shake 3 days after being released from surgery) - 6/10/2010
Step two of Jpouch surgery - 9/?/2010


Scrap Girl
Veteran Member


Date Joined Jan 2007
Total Posts : 653
   Posted 6/19/2010 9:29 AM (GMT -6)   
That's awesome news, Anthony! It seems like you just had your first surgery a couple of weeks ago. You lucky dog! I go for #2 of three surgeries in mid-September. Yes, I'm jealous but I'm happy for you. Good luck!

Diagnosed with UC in Feb. 2005
 
Asacol, Colazal, Prednisone, Rectal Meds, Remicade, Humira
 
Now UC Free!
First step of j-pouch - April 1, 2010
Second Step - 9/14/10
Third Step - TBD


Anthony1977
Regular Member


Date Joined Jan 2009
Total Posts : 413
   Posted 6/19/2010 10:18 AM (GMT -6)   
Thanks again, Sue. Scrap Girl, the time went by very very quickly. It does still feel like it was only a few weeks ago. Before you know it, yours will be all over with as well. Shiny, yeah, bro ... many times I laid down the law at the front door, car seat, just standing thee waiting to get popcorn at the movies. It was horrible. The bag has saved me that embarrasment as well as the extreme urgency so I am greatful for that.

capecodder33
Regular Member


Date Joined Oct 2009
Total Posts : 69
   Posted 6/20/2010 1:20 AM (GMT -6)   
anthony, i successfully went through the two j-pouch surgeries in december and february so if you have any questions just shoot them my way. my email address is in my profile.

but yea, for the first week to two weeks you may have a kinda uncomfortable sensation in your j-pouch when stool passes into it, which is completely normal. it's a pressure sensation and makes you want to go even though you don't have to... i think some people refer to it as a j-pouch spasm. these sensations went away for me after 10 days.

post-op pain wasn't an issue for me after a week or so... it really subsides quickly after that.
Male, 30 years old. dx ulcerative proctitis 1987; left-sided ulcerative colitis in 1993.
Tried sulfasalazine, asacol, colazal, rowasa, prednisone, imuran, 6-MP, remicade, and humira.


J-Poucher since 2/11/10. Now UC free and healthy! :-)


Anthony1977
Regular Member


Date Joined Jan 2009
Total Posts : 413
   Posted 6/20/2010 5:26 PM (GMT -6)   
Thx, Cap! I will def stay in touch. Most likely when I am in the hospital ... again!
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