I'm new to this forum, and want to let everyone know that I have learned so much here and have gotten so much support already, so many Thank You's!
I have UC for the last 22 years, and have been flaring twice a year for the last 4 years; the past two years have been the worst. I was put on prednisone this last flare for 6 months and had a hard time weaning off this drug once I got below 10mgs. The doctor also put me on Lialda twice a day, and Rowasa at night, I went into remission for a few months and here I am flaring since May and on Wednesday, 6/15 I almost fainted at work and went to the hospital, treated for dehydration.
The next day I had a follow up with my Colon Rectal Surgeon, he performed a flex sig and saw only mild inflammation. I told him I'm very sick, tired and weak and this disease is becoming all consuming; I'm living my life around the toilet. He said he has been working with Lailda for a while now, and some people get massive diarrhea from the drug, so he's taking me off and putting me back on Azulfidine 2 pills 4 times a day, and Cortfoam in the morning. He also called in my GI and we had a meeting, the plan is if I don't show signs of improvement they will admit me into the hospital for two days for complete evaluation and liquids, if nothing works after this then we will consider surgery. I told them I'm interested in the surgery and they said we don't just jump into surgery, steps have to be taken before we can remove the colon and do a j-pouch!
Note: I had lymphoma in 2002 and was treated with CHOP, so I cannot go on Remicade, Humira or 6mp, they could bring back my cancer.
I just want to know is this normal protocol? I just want my life back and this disease has been all consuming for me lately...
Any thoughts would help.
I'm a survivor and I have the battle scare to prove it."
Post Edited (Salamore) : 6/20/2010 6:35:40 AM (GMT-6)