Coffee and Temp Ileo

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Anthony1977
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Date Joined Jan 2009
Total Posts : 413
   Posted 6/21/2010 9:33 AM (GMT -6)   
I haven't drank coffee in years because of UC. So I have been enjoying a few cups in the morning now, but I have noticed my output has increased and not sure if it is due to the coffee or not. Sounds like a stupid question, but just curious if anyone has noticed such. Thank you!

NewShinyCD
Regular Member


Date Joined Oct 2009
Total Posts : 474
   Posted 6/21/2010 11:04 AM (GMT -6)   
Does it to me also. I believe it has something to do with the caffeine and it being a hot drink.
21 y/o male livin' in Georgia. Diagnosed with Left-Sided Colitis in 2002; re-diagnosed with Pancolitis in Nov. 2009.
June 2010 I beat UC by having surgery.
Drugs tried: Just about every 5ASA medicine, enemas, prednisone, turmeric, fish oil, Remicade, psyllium seed powder, Metamucil.
Unable to take 6MP.
Step one of Jpouch surgery - 6/2/2010
Readmitted back to hospital because of blockage (my fault cause I ate Steak n Shake 3 days after being released from surgery) - 6/10/2010
Step two of Jpouch surgery - 9/?/2010


Anthony1977
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Date Joined Jan 2009
Total Posts : 413
   Posted 6/21/2010 11:24 AM (GMT -6)   
Thanks, bro!

Equestrian Mom
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Date Joined Mar 2008
Total Posts : 3115
   Posted 6/21/2010 1:47 PM (GMT -6)   
Coffee (it's the caffeine) and sugar/sugar substitutes increase output...you can take Imodium a half hour before to help. You can also eat before you drink your am coffee to help slow things down and thicken, too.

I love coffee all day long and as long as I eat before it nothing changes smilewinkgrin
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008


CorgiMama
Regular Member


Date Joined May 2010
Total Posts : 26
   Posted 6/22/2010 11:01 AM (GMT -6)   
I've noticed the same thing. I love Coffee!! Even before my iliostomy if I drank it on an empty stomach (first thing in the morn) it would have me in the bathroom. I just thought because caffiene is a stimulant it sped things up quite a bit. When my Crohns got bad I gave up on coffee because i was in the bathroom enough as it was. Now that I've had my perm iliostomy I can enjoy coffee again! Although it does make me "go" a little more, it doesn't cause discomfort any more, and for that I'm greatful! Cheers!! *takes another sip of coffee*

Anthony1977
Regular Member


Date Joined Jan 2009
Total Posts : 413
   Posted 6/22/2010 6:58 PM (GMT -6)   
LOL, Corgi!

Thanks, Ohio .... I am bad ... very bad. I am eating everything I possibly can. I put ice-cream on my lasagna now in order to gain some weight before next surgery!

esoR
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Date Joined Jan 2007
Total Posts : 4147
   Posted 6/22/2010 9:13 PM (GMT -6)   
Try the dunkin decaf coffee lightly sugared or with stevia sweetner. Steveia is a derivative of corn. This is a NICE non-stimulating morning drink. I love coffee too.

Ice cream on Lasagne, Anthony? Interesting combo! :-)

Rosemary

summerstorm
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Date Joined Aug 2006
Total Posts : 6571
   Posted 6/22/2010 10:06 PM (GMT -6)   
oh my anthony and i thought i would try some interesting combos (btw, tartar sauce and peppermint patties, not good)
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!


Allison77
Regular Member


Date Joined Feb 2005
Total Posts : 421
   Posted 6/24/2010 3:00 PM (GMT -6)   
LOL @ Anthony! I was doing much of the same thing, though now have gained 40lbs since surgery amd have jiggly bits in the wrong places..ACK!
Try peanut butter on buttermilk pancakes, thats sure to add some lbs. I also put butter on EVERYTHING, butter on bread? yes, butter on corn? yes, deep fry a pancake battered Mars bar and add butter? SIGN ME UP!

-Allie
RX Crohn's 1999, over 30 surgeries, 3 strokes, permanent colostomy and rectum removal.
 
"The most unfortunate thing that happens to a person who fears failure is that he limits himself by becoming afraid to try anything new."


Anthony1977
Regular Member


Date Joined Jan 2009
Total Posts : 413
   Posted 6/24/2010 3:36 PM (GMT -6)   
lol, allison .... i carry a stick of butter with me to snack on while driving to work. BTW, peanutbutte on pancakes is heaven. The other weekend morning I woke up at like 4:30 am and was like what do I do now ..... duhhhhz pancakes. I ate 8 large pancakes and nearly a small jar of peanutbutter. Trust me, I am at the point where I could deep fry my sneakers and eat those. I can't stop eating. Even better, was I up in the middle of the night go to the fridge pull out the chocolate syrup and pour it into the bucket of cool whip. I think I am pregnant.

pam222
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Date Joined Jun 2009
Total Posts : 985
   Posted 6/24/2010 10:16 PM (GMT -6)   
Haha
The one good thing about the malabsorption issues I was having was that I could eat anything and LOSE weight. Now I'm back on the pred, though, and it's not the same :D
27/F Diagnosed with unspecified UC 11/08 (symptoms for over a year before)
Asacol, Prednisone, Remicade with no success--no remission for over 2 years
8/09 colonoscopy shows that the whole colon is affected
12/18/09 Removal of colon, creation of J-Pouch and ostomy; recessed stoma; 12/30/09 Takedown too soon; RV fistula;1/9/10 Second Ileostomy Surgery;
1/25/10 Stoma Revision Surgery; 3/30/10 Takedown again
6/9/10 Scope and Biopsy--Diagnosed with Crohns Disease (maybe...)
Tried gluten free and dairy free with no noticeable improvement
Was on TPN and IV fluids 2/10-6/10
Flagyl 500mg (3/day), Prednisone 40 mg, Culturelle, D, B12, Iron (2/day), Prenatal vitamin, Lomotil (2 tsp 4/day), Lortab, Starting Humira 6/28


Anthony1977
Regular Member


Date Joined Jan 2009
Total Posts : 413
   Posted 6/25/2010 8:22 AM (GMT -6)   
pam, I was reading your signature ... you went for two takedowns?

pam222
Veteran Member


Date Joined Jun 2009
Total Posts : 985
   Posted 6/25/2010 8:43 AM (GMT -6)   
Yes, I had the first one early because my stoma was below skin level and my skin was getting eaten away. I developed a rectal/vaginal fistula and had to have another ostomy put in on the other side. Then we waited 3 months or so and had the takedown again. I am so lucky that the fistula healed on its own and has not come back.
27/F Diagnosed with unspecified UC 11/08 (symptoms for over a year before)
Asacol, Prednisone, Remicade with no success--no remission for over 2 years
8/09 colonoscopy shows that the whole colon is affected
12/18/09 Removal of colon, creation of J-Pouch and ostomy; recessed stoma; 12/30/09 Takedown too soon; RV fistula;1/9/10 Second Ileostomy Surgery;
1/25/10 Stoma Revision Surgery; 3/30/10 Takedown again; 6/9/10 Scope and Biopsy--Diagnosed with Crohns Disease (maybe...)
Tried gluten free and dairy free with no noticeable improvement; Was on TPN and IV fluids 2/10-6/10. Currently: Flagyl, Prednisone 40 mg, Culturelle, D, B12, Iron, Prenatal vitamin, Lomotil, Lortab, Starting Humira 6/28


Anthony1977
Regular Member


Date Joined Jan 2009
Total Posts : 413
   Posted 6/25/2010 10:04 AM (GMT -6)   
wow, that is pretty crazy. I originally thought the surgeon tried doing the takedown with your jpouch like 2 weeks after step 1. I was like holy &*&$ that can't be good. Well, I hope all is going well with you. I know you said you may have crohns now. I was originally diagnosed with indeterminate colitis so sometimes I kinda get a little whacked out wondering. Anyway, time to go eat something ;)

NewShinyCD
Regular Member


Date Joined Oct 2009
Total Posts : 474
   Posted 6/25/2010 11:23 AM (GMT -6)   
I've been eating like crazy also. I've been afraid to eat peanut butter though, but the other day I bought some Reese's Pieces and I ate the whole bag and it didn't bother me so I dunno.

I've been eating like 9 times a day now. And since my energy is starting to come back I've been staying up till midnight and waking up at 8ish. Not working, though, is driving me nuts. I feel like I have enough energy to go back to my old job, which was an office job as tech support, but it is stressful so I'm kinda iffy about going back so soon instead of waiting until after step two.
But going outside right now is a no because the heat index is getting up to 100+ and I'd rather not get dehydrated. The other day I braved the heat cause I had errands to do and I had to take 3 bottles of water while out.

Any ideas on what do to while out of work and recovering? All I do right now is surf the internet, practice forex trading and play my DS.
I was trying to go back to college but because of the surgery I missed the deadline for registration, so now I have to wait until July 5 when they do drop/add so I can sign up for classes then.
21 y/o male livin' in Georgia. Diagnosed with Left-Sided Colitis in 2002; re-diagnosed with Pancolitis in Nov. 2009.
June 2010 I beat UC by having surgery.
Drugs tried: Just about every 5ASA medicine, enemas, prednisone, turmeric, fish oil, Remicade, psyllium seed powder, Metamucil.
Unable to take 6MP.
Step one of Jpouch surgery - 6/2/2010
Readmitted back to hospital because of blockage (my fault cause I ate Steak n Shake 3 days after being released from surgery) - 6/10/2010
Step two of Jpouch surgery - 9/?/2010


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 6/26/2010 8:43 PM (GMT -6)   
Anthony,
I'm trying to figure out which flavor ice cream would taste best on lasagne... is it vanilla? chocolate? butter pecan? All three?? Isn't it fun to be able to eat again? Drinking coffee on an empty stomach makes my output watery, too, but it's totally worth it! wink

NewShinyCD,
So, you've got 2 months before your next surgery and are looking for something to do? Have you ever tried selling on eBay? It's a fun and easy way to get rid of stuff while making some extra money. Plus, it's time-consuming to take pictures of the items you're going to sell, upload them into eBay, write detailed descriptions about them, answer questions from potential buyers, and package and ship the things once they sell. But, at the end of the day, you've done some work and made some money, without any stress.

Glad you're both feeling better!

:-) Cecilia
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.

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