No Pam, you are NOT nuts. In fact when I had this last flare up I told the GI to tell the surgeon just take the darned pouch out and be done with it but no........the GI and surgeon were like, you have to try more things. So now, I am suffering from an axiety disorder wondering when the next attack will hit since remi is no longer an option and after that expericence I would not even consider anything else. Personally, in your case with a CD diagoinises I would not leave the pouch in if you go that route. Also, you might still need to be humira anyway so at this point you have nothing to gain by taking out the pouch if intead the humira works. In my case everything is still showing UC but my GI is still looking for that CD marker, if I even have it-lol. Having an endoscopsy tomorrow.-More tests, more tests, can't take it either. It's just sad that we go thru this surgery only to find more problems.
Me, with the "skinny disease"
5 asa, predisone, 6 mp
X-mas present- Dec 26, 2000
Emergency j-pouch surgery
J-pouch redo- July 3, 2001
Take down-Jan 3, 2002
Chronic pouchitis: cipro, pentassa, xifican, cortioam, canassa, leviguin, lexapro, vit D, fish oil, probiotics, lot's of other vit's
Latest flare April 27 2010 Hosptial for 1 week-remciade
Possible CD, Possible pouch removal-anxiety-can you blame me?