I hope the humira works for you. Although 2 doses of remicade did put me into remission I cannot take it anymore due to side effects. I am on canassa for now but have no idea how long this will last. I had an ostomy for a year and hated every minute of it but I'm actually more terrified of having more surgery at this point. Pouch removal is another major surgery and I have had too many surgereis, too many complications, etc, etc. BTW, I also had pouchitis while having the ostomy so I would have to have it permanent at this point.
I'm in G-D's hands and trying to acept it. I have tried everything. I only hope that if it does come down to removal that I don't get rediagonised with crohns and end up back to square one again.
I hate UC or whatever I have-I'm calling it the skinny disease.
5 asa, predisone, 6 mp
X-mas present- Dec 26, 2000
Emergency j-pouch surgery
J-pouch redo- July 3, 2001
Take down-Jan 3, 2002
Chronic pouchitis: cipro, pentassa, xifican, cortioam, canassa, leviguin, lexapro, vit D, fish oil, probiotics, lot's of other vit's
Latest flare April 27 2010 Hosptial for 1 week-remciade
Possible CD, Possible pouch removal-anxiety-can you blame me?
Post Edited (susans53) : 6/29/2010 9:49:00 AM (GMT-6)