I have had a few problems with my appliances leaking so I went to see my stoma nurse who said I needed a flat base rather than a convexity base plate so she gave me some to try and they worked like a charm. Until this morning I woke up with s@#$ all over me, so straight in the shower I go. I was so annoyed cause it had stuck so well for 2 days then it decided to fall apart on me, Do you think perhaps it may have just needed to be changed on day 2 instead of stretching it for the third day? I dont understand why it would all of a sudden leak. Anyway I cleaned up and then got a phone call from my mum she was distressed cause my dad was struggling to breath (he has pancreatic cancer) and has been going through chemo now for the past 7 weeks and my dad is a stubborn man and didnt want mum to call for an ambulance. So I got there as fast as I could and called for an ambulance straight away as my dad knows better than to argue with me
. So the paramedics arrived very fast and took him to the ER, only to inform us he now has marks on his lungs which are suspicious and all we can do now is keep him as comfortable as possible. I am also having serious pain around my stoma and have been for some time now so I went to my doc the other day and said since I am such a complex patient with all my illnesses that I would need to go back to my surgeon to see what kind of tests will need to be run to find out whats going on, its possible the crohns may be coming back as I have been getting several mouth ulcers as well.
I got home late tonight to an empty house as I do live alone but tonight was probably one of the hardest nights I have felt. I feel so alone and helpless right now so I decided to come and get some off my chest before I try to get some much needed sleep. I have spent the entire night in tears and really would love a hug right now. I wish there was more they could do for my dad, I hate to see him like this its so hard and I don't want to lose him. He is the best dad anyone could ever ask for, I am putting on the strong front for my mum too as I know how its tearing her apart too and I need to be there for her as well. Anyway thanks for listening and if you could give me your thoughts on my leaking pouch I would appreciate it.
Thanks and take care