Is it necessary to see your GI doctor following surgery?

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Christine1946
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Date Joined Aug 2008
Total Posts : 5975
   Posted 6/27/2010 1:57 PM (GMT -6)   
I thought my GI doctor was caring. However, when I went to him after my surgical consult (something I did on my own, as my GI doctor wanted my to see another GI for yet other treatments), he seemed rather distressed at my decision to have surgery. He was the one who mentioned surgery to me after Remicade failed and I still agreed to try Humira. Anyway, it has been six weeks, he never called to ask how I was feeling (I was a patient of this guy for 12 yrs) BUT when I left his office, he had me make an appointment with him for July 29th!! What the heck for?
How soon after discharge from the hospital following surgery does the surgeon ask to see you?

pam222
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Date Joined Jun 2009
Total Posts : 985
   Posted 6/27/2010 2:14 PM (GMT -6)   
I saw my surgeon pretty regularly (and still do see him, even though I am also going back to my GI), but I had a lot of issues. But I think if things had been fine, he still would have seen me in 4-6 weeks for a regular follow-up. If I didn't have problems still, I would have not gone back to my GI at all. He never requested to see me again after I went for my surgery consult
27/F Diagnosed with unspecified UC 11/08 (symptoms for over a year before)
Asacol, Prednisone, Remicade with no success--no remission for over 2 years
8/09 colonoscopy shows that the whole colon is affected
12/18/09 Removal of colon, creation of J-Pouch and ostomy; recessed stoma; 12/30/09 Takedown too soon; RV fistula;1/9/10 Second Ileostomy Surgery;
1/25/10 Stoma Revision Surgery; 3/30/10 Takedown again; 6/9/10 Scope and Biopsy--Diagnosed with Crohns Disease (maybe...)
Tried gluten free and dairy free with no noticeable improvement; Was on TPN and IV fluids 2/10-6/10. Currently:Prednisone 40 mg, Culturelle, D, B12, Iron, Prenatal vitamin, Lomotil, Lortab, Starting Humira 6/28


Christine1946
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Date Joined Aug 2008
Total Posts : 5975
   Posted 6/27/2010 3:02 PM (GMT -6)   
Yeah...I see no reason to go to the GI doctor on July 29th. It's probably just for the $$$

NewShinyCD
Regular Member


Date Joined Oct 2009
Total Posts : 474
   Posted 6/27/2010 3:59 PM (GMT -6)   
My GI thought that surgery would be the best thing for me an referred me to my surgeon. My GI wanted to see me after surgery, but he decided to call me instead cause he just wanted to check up on me. He said that I should probably make an appointment with him after the second surgery, which would make since cause from what I understand most people don't keep seeing their surgeon after takedown.
21 y/o male livin' in Georgia. Diagnosed with Left-Sided Colitis in 2002; re-diagnosed with Pancolitis in Nov. 2009.
June 2010 I beat UC by having surgery.
Drugs tried: Just about every 5ASA medicine, enemas, prednisone, turmeric, fish oil, Remicade, psyllium seed powder, Metamucil.
Unable to take 6MP.
Step one of Jpouch surgery - 6/2/2010
Readmitted back to hospital because of blockage (my fault cause I ate Steak n Shake 3 days after being released from surgery) - 6/10/2010
Step two of Jpouch surgery - 9/?/2010


Anthony1977
Regular Member


Date Joined Jan 2009
Total Posts : 413
   Posted 6/27/2010 10:08 PM (GMT 0)   
my GI doctor gave a rat's *** about me. I went the distance with all the meds and then referred to a surgeon, albeit a world reknown one. Unfortunately the surgeon he referred me to didn't accept my insurance, blah blah blah. When all is said and done I will be seeing a different GI doc. I don't like saying good luck ... so I am going to say ... you will do well tomorrow. stay in touch, get rest, and try to walk as much as possible!

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 6/27/2010 4:34 PM (GMT -6)   
Glad to see you back online Anthony. I have had a lot of positive vibes today!!! Went to Mass at a new church and got a special blessing from the deacon and lit a candle. Starting to feel more positive. I did some reading about total colectomies with end ileos on C3 Life forums. By the way....I didn't bother with the prep....just clear liquids. Hubby is stuffing his face with all kinds of goodies . Not at all nice huh? I am down to 115 lbs..wow, I should drag out my old yellow bikini..hehehehe.
How you feeling Anthony?

pam222
Veteran Member


Date Joined Jun 2009
Total Posts : 985
   Posted 6/27/2010 5:03 PM (GMT -6)   
NewShinyCD said...
My GI thought that surgery would be the best thing for me an referred me to my surgeon. My GI wanted to see me after surgery, but he decided to call me instead cause he just wanted to check up on me. He said that I should probably make an appointment with him after the second surgery, which would make since cause from what I understand most people don't keep seeing their surgeon after takedown.


I thought the surgeon still sees you for pouchoscopies and stuff. I know my surgeon wants to continue seeing me, even though I am also seeing my GI now
27/F Diagnosed with unspecified UC 11/08 (symptoms for over a year before)
Asacol, Prednisone, Remicade with no success--no remission for over 2 years
8/09 colonoscopy shows that the whole colon is affected
12/18/09 Removal of colon, creation of J-Pouch and ostomy; recessed stoma; 12/30/09 Takedown too soon; RV fistula;1/9/10 Second Ileostomy Surgery;
1/25/10 Stoma Revision Surgery; 3/30/10 Takedown again; 6/9/10 Scope and Biopsy--Diagnosed with Crohns Disease (maybe...)
Tried gluten free and dairy free with no noticeable improvement; Was on TPN and IV fluids 2/10-6/10. Currently:Prednisone 40 mg, Culturelle, D, B12, Iron, Prenatal vitamin, Lomotil, Lortab, Starting Humira 6/28


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 6/27/2010 9:38 PM (GMT -6)   
i havent seen my GI, although the surgeon said that i needed to check back in with him some, about the other side effects UC can have on your body
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 6/27/2010 9:38 PM (GMT -6)   
oh and the surgeon is like one to two weeks
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!


80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 6/28/2010 10:56 AM (GMT -6)   
I went to my surgeon about 10 days after surgery, and then about a month after that for a second follow up for both surgeries. I have been to see my GI just once after surgery, but I LOVE my GI and also I have Crohn's (or UC, he's not entirely sure), so it makes sense for me to see him still. Unsure about if you have UC, cuz you're supposedly "cured" now that you don't have a colon...so I'm not sure. I'd say as long as you're feeling ok you probably dont' have to go see him. YOu could always call the office and ask for the reasoning and then decide for yourself.
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
Total Proctocolectomy and Permanent Ileostomy 3/18/10! :)
Blockage/Ileo revision 6/8/10 :/
 
Tried: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas, Psyllium Seed Powder... Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
 
Currently taking: Prenatal Vitamin, Vitamin B 12 Complex, Biotin, Vitamin D, Calcium, Flomax (for urinary retention). 


Collicat
Veteran Member


Date Joined May 2009
Total Posts : 827
   Posted 6/28/2010 8:58 PM (GMT -6)   
My son saw the surgeon and his GI about 8 weeks after his take down. The GI told us that we did not have to see him again, BUT he would always consider my son his patient and that at any time that we felt we needed him all we had to do was call. ... we do not have to go through the referral system even if it is years from now. The surgeon....my son is to see once per year for ever.

Anthony1977
Regular Member


Date Joined Jan 2009
Total Posts : 413
   Posted 6/29/2010 7:07 AM (GMT -6)   
Collicat: That is awesome. It is good to have doctor's like that. BTW, how is your son doing? If I recall correctly, he was having some issues with going to the bathroom a lot recently.

suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 6/29/2010 8:28 AM (GMT -6)   
I think for ostomates the follow-up after initial recovery will be with a GI but only if you are having problems. Jpouchers need more followup as we are at higher risk for colon cancer so we need occasional screening. Jpouchers can see either their GI or their surgeon. Some surgeon's prefer to keep the jpouch patient, others refer them back to their GI. In your case Christine, after a few months of recovery you won't need to see anyone but your regular doctor.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


cleo35
Regular Member


Date Joined Feb 2007
Total Posts : 430
   Posted 6/30/2010 9:11 AM (GMT -6)   
Even if you've had surgery you should be on maintenance medication - you need to be seeing a GI regularly in my opinion.

suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 6/30/2010 9:14 AM (GMT -6)   
Cleo,

Not all ostomates or jpouchers are on maintenance meds. Those who had surgery for FAP, Ulcerative Colitis, or CI, don't normally need maintenance meds, or meds related to their surgical decision, post surgery. Crohn's patients likely need to continue with maintenance meds.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


Collicat
Veteran Member


Date Joined May 2009
Total Posts : 827
   Posted 6/30/2010 11:14 AM (GMT -6)   
Anthony1977:

Thanks for the concern. Dillon does seem to be fine now. I guess it was something he had eaten or a bit of some bug. I know that I over anxious concerning pouchitis and that with every bout of "something" that clears on its own that I will start to be less over-reactive. It is just that over the last few years every time that he "seemed" to be getting ill....it actually ended up being a big deal. It will take a while to realize that his bowels can have D like those of us that have never had colitis issues and that it will go away on it's own.

I hope that "things" are okay with you and that you can enjoy this long weekend.

Cleo: My son has a J pouch and is on no prescription medications. He does take imodium a couple of times a day but he does not have to see his GI because of this.

Cathy....Happy Canada Day OR Independence Day..... !! yeah turn

Anthony1977
Regular Member


Date Joined Jan 2009
Total Posts : 413
   Posted 6/30/2010 6:17 PM (GMT -6)   
This is very good to hear, Collicat! I am going for my takedown next week. I can't believe I am finally going for it. I am glad everything worked out with your son. You are a mother, it is expected to overreact ;) Trust me, my mommy does all the time ;) Have a happy 4th!

Collicat
Veteran Member


Date Joined May 2009
Total Posts : 827
   Posted 6/30/2010 10:45 PM (GMT -6)   
Anthony1977: What day is your takedown?....you will be on all our minds. You will find this operation so much easier than what you have previously been through.

honestwoman50
Veteran Member


Date Joined May 2009
Total Posts : 833
   Posted 7/2/2010 2:28 PM (GMT -6)   
Christine1946
For me it was the very next week, and then every 2 weeks....hope you are well?  What kind of surgery did you have?
 
Leslie
Leslie King
 
  1984 Tubligation  1992 Diagnosed with Thyroid tumor    
1993 Gallbladder Removed  1997 Hysterectomy  1998 Carpol Tunnel 
 1999 Spinal Cord Surgery for a Anacroid Syst
2001 Lower Lumbar Fusion L4-5  
2003 Sigmoid Colon Resection
 2006 Right Knee Replacement 2005 Breast Reduction
 2008 RE-did the Lower Lumbar Fusion/ lamanoctomy
2010 DX: colonic Inertia/ Pelvic Floor Disorder
2010 Total Colectomy ABD W/O proctectomy; w/Ileosto
 
  

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