What do I need to take to the hospital with me?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

WeirdBeard
Regular Member


Date Joined Aug 2008
Total Posts : 123
   Posted 6/27/2010 3:11 PM (GMT -6)   
I'll be going to the hospital for an ileostomy soon (the actual date has not been set yet). So what are some items that I should take with me to the hospital?

I don't watch much TV, so I was thinking of taking one of my older laptops. That way I could watch a movie, or listen to music.

I also need suggestions on the more practical things.

Any help appreciated. Thanks!

-Eric
51 - male - in North Carolina near Asheville
Prednesone
Asacol 10/day
Cortenemas
Citalopram (anxiety/depression)
Going for surgery consultation soon.


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5963
   Posted 6/27/2010 3:30 PM (GMT -6)   
     I am going in tomorrow for a total colectomy with end ileostomy.  My surgeon said to just bring a toothbrush..lol.  Looks like I will have a catheter in me after surgery, an NG tube...ew, and God only knows what else.  I have a small bag here packed as my hubby wouldn't know what to bring.  So when I start to feel better and can get into my own pj's all will be there for hubby to just pick up.
     I'm 63 by the way and scared as H***...but this has to be done..I am prednisone dependent.
 
Ulcerative Proctitis since Sept of 1998. Hospitalized for eight days.  Prednisone, Asacol, Rowasa enemas.  Two year remission. Flare..switched from Asacol to Colazal.  Two year remission.  Started 6MP in 2002.  Flared yearly from 2003 to May of 08.  Hospitalized for ten days in May of 08.  Flaring more often since.  Off 6MP. Remicade failed.  Humira failed.   Meds: 20 mgm prednisone, Colazal, Benicar, zolpidem for sleep, Calcium with D, Multivitamin.  Surgery scheduled for June 28th.

 


pam222
Veteran Member


Date Joined Jun 2009
Total Posts : 985
   Posted 6/27/2010 4:06 PM (GMT -6)   
i always just use the soap, tooth paste, toothbrush they give me at the hospital. I bring my Kindle, cellphone and charger, laptop, DVDs, comfy pajama pants, undies, and tank tops for when I get sick of the hospital gowns, lotion (I get really dry at the hospital), deodorant, slippers sometimes (though I like the hospital socks with the non slip bottoms)
27/F Diagnosed with unspecified UC 11/08 (symptoms for over a year before)
Asacol, Prednisone, Remicade with no success--no remission for over 2 years
8/09 colonoscopy shows that the whole colon is affected
12/18/09 Removal of colon, creation of J-Pouch and ostomy; recessed stoma; 12/30/09 Takedown too soon; RV fistula;1/9/10 Second Ileostomy Surgery;
1/25/10 Stoma Revision Surgery; 3/30/10 Takedown again; 6/9/10 Scope and Biopsy--Diagnosed with Crohns Disease (maybe...)
Tried gluten free and dairy free with no noticeable improvement; Was on TPN and IV fluids 2/10-6/10. Currently:Prednisone 40 mg, Culturelle, D, B12, Iron, Prenatal vitamin, Lomotil, Lortab, Starting Humira 6/28


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 6/27/2010 8:35 PM (GMT -6)   
i cannot stress this enough GAS-X!!!!
You will want it, because you will have gas and if you have to wait on an RX for it it will be forever, lol.
I bought some huge (like literally 3 sizes too big) gowns to wear and shorts so that they wouldnt rub the site.
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!


LittleSisSmurf
Regular Member


Date Joined Apr 2006
Total Posts : 164
   Posted 6/28/2010 12:23 AM (GMT -6)   
If you are going to be in a room with 3 other ppl like I was..you'll need ear plugs and maybe eye covers. I brought my music to listen to and my laptop to watch movies. Slippers that are easy to slip on cuz you wont be able to reach ur feet. I also took my house coat cuz it got cold in there at night. Wish u all the best. Celine
37 yr old woman diagnosed with crohn's colitis 1998.(symptom free for 10 yrs.) The last two yrs. Ive been on prednisone, Imuran, remicade, and humira. Had surgery and got permanent ileostomy may 28th 2010. 19 yr old son also diagnosed with crohns disease..


crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted 6/28/2010 6:20 AM (GMT -6)   
Take plenty of things to do the days are soooo long when your in hospital! good luck with the op and wishing you a speedy recovery.Bev x smilewinkgrin
Diagnosed with crohns at 13 now 43
Still battling with Doc's to get me on maintenance Meds only taking
Lomotil, 20mg citalopram,VSL#3 at the moment.

“I may not be where I need to be but,
I thank God I’m not where I use to be “


Marsky
Veteran Member


Date Joined Jul 2007
Total Posts : 1956
   Posted 6/28/2010 7:12 AM (GMT -6)   
Robe, slippers with a rubber sole or just velcro gym shoes, warm sox, plenty of magazines, books or crossword puzzle books to do possibly.

But my best advice? You'll possibly laugh. Tell very few people you're going in for surgery. Why? Because the fewer that know, the fewer that will pop in for long visits, phone your room at all hours of the day, etc.

While my last surgery was the reverse of what you're doing, colostomy reversal, I only told about 5 people. Compared to my first surgery (at least 50). I had to have the ringer on my phone turned off, it was nice that people cared about me to that extent but my hospital room wasn't an office, one kind nurse said - you know, you are not obligated to answer that phone!

So my last stay was ever so quiet, some might say too quiet, but it was a very nice way to recover from surgery. Another kind nurse figured out I had told very few people, she said and I quote - you were smart to do that!

So that's my 2 cents.......most people mean well but they have no idea what bowel surgery is like to recover from.
- Rectal CA 4/29/99, Stage I, 90% sigmoid/15" of colon/GB removed, temporary colostomy, reversed 6-26-99
- Chronic IBS/D symptoms, multiple bm's, on low residue diet
- Colace 50 mg + Renew Life/Ultimate Flora/Critical Care/80 Billion daily


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 6/28/2010 8:14 AM (GMT -6)   
marksy is right, either dont tell them, or explain that you would rather them wait until later before visiting because you have been told you will be sleeping alot or out of it and not good company, which isnt exactly true, but you dont want to hurt their feelings :D
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!


snugglesaurus
Regular Member


Date Joined Apr 2010
Total Posts : 206
   Posted 6/28/2010 8:20 AM (GMT -6)   
I had my mom become my secretary. If I was sleeping (or attempting) she would tell them so. If I was awake and alert - she'd ask if I wanted to talk on the phone. Usually I had her tell them the latest and I'd be fumbling off to the 'loo.
Diagnoses: Appendicitis, Terminal Ileitis, Crohn's, Celiac Disease, IBS-C, Chronic Constipation, Colonic Inertia, Rectocele, Anismus
Tests: 2 Colonoscopies, 2 CT scans, Sitzmark Test, Anorectal Manometry, Food Allergies, Thyroidism, Pudental Nerve Study, Defacogram, SMART Pill, Electromyogram, Celiac Panel, Small Bowel Study, Gastric Emptying Study - Solids
Tried: Pentasa, exercise, diet changes, pro-biotics, mineral oil, vitamins, laxatives, stool softeners, Miralax, Amitiza, anti-depressants, fiber supplements, water enemas, Fleet enemas, suppositories, mineral oil, phenergan, Zofran
 
Atlanta, GA


snugglesaurus
Regular Member


Date Joined Apr 2010
Total Posts : 206
   Posted 6/28/2010 8:22 AM (GMT -6)   
Oh - I really really wanted stretchy pants. I hate the hospital socks.. so if you're down with them - no need to bring your own.

Toiletries like you're staying at a hotel. You may or may not use them.

Entertainment of your choice - music, books (doubt you'll read them), fluffy periodicals, movies, laptop, phone, charger, camera!
Diagnoses: Appendicitis, Terminal Ileitis, Crohn's, Celiac Disease, IBS-C, Chronic Constipation, Colonic Inertia, Rectocele, Anismus
Tests: 2 Colonoscopies, 2 CT scans, Sitzmark Test, Anorectal Manometry, Food Allergies, Thyroidism, Pudental Nerve Study, Defacogram, SMART Pill, Electromyogram, Celiac Panel, Small Bowel Study, Gastric Emptying Study - Solids
Tried: Pentasa, exercise, diet changes, pro-biotics, mineral oil, vitamins, laxatives, stool softeners, Miralax, Amitiza, anti-depressants, fiber supplements, water enemas, Fleet enemas, suppositories, mineral oil, phenergan, Zofran
 
Atlanta, GA


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 6/28/2010 12:31 PM (GMT -6)   
Disinfectant wipes for the tv remote and the rails on your bed...they clean but I like to know it's been wiped down!

I always suggest the robe, slippers that slip on, hard candy and an ipod/mp3 player. Books don't always work when you are on pain meds:( Magazines are better and you cannot go wrong with your laptop since most places have wifi. Just remember the chargers for your electronics!!!

Like Marsky mentioned...you are in the hospital for a reason, and although people want to visit and show their concern, they should wait until you get home for that....recovery is different for all of us but it's not fun to have 5 people visiting when you don't feel well and should be resting!

Good luck and keep the questions coming as you come up with more:)
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008


pam222
Veteran Member


Date Joined Jun 2009
Total Posts : 985
   Posted 6/28/2010 1:00 PM (GMT -6)   
It's true about the books. I did bring my Kindle but I couldn't focus too well on books a lot of the time. I loved having my laptop
27/F Diagnosed with unspecified UC 11/08 (symptoms for over a year before)
Asacol, Prednisone, Remicade with no success--no remission for over 2 years
8/09 colonoscopy shows that the whole colon is affected
12/18/09 Removal of colon, creation of J-Pouch and ostomy; recessed stoma; 12/30/09 Takedown too soon; RV fistula;1/9/10 Second Ileostomy Surgery;
1/25/10 Stoma Revision Surgery; 3/30/10 Takedown again; 6/9/10 Scope and Biopsy--Diagnosed with Crohns Disease (maybe...)
Tried gluten free and dairy free with no noticeable improvement; Was on TPN and IV fluids 2/10-6/10. Currently:Prednisone 40 mg, Culturelle, D, B12, Iron, Prenatal vitamin, Lomotil, Lortab, Humira


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 6/28/2010 7:09 PM (GMT -6)   
oh yes alochol wipes are good, for your hands because you wont always feel like getting upa nd washing them! sanitzer just doesnt do it for me, cause i like to actually get the stuff off my hands, lol. Plus you can use those for the bedrails and such.
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!


WeirdBeard
Regular Member


Date Joined Aug 2008
Total Posts : 123
   Posted 6/30/2010 4:30 AM (GMT -6)   
Wow, Thanks for the great responses. Do you think audiobooks would work?

My appointment the surgeon has been moved up a day - wish me luck!

-Eric
51 - male - in North Carolina near Asheville
Prednesone
Asacol 10/day
Cortenemas
Citalopram (anxiety/depression)
Going for surgery consultation soon.


pam222
Veteran Member


Date Joined Jun 2009
Total Posts : 985
   Posted 6/30/2010 5:18 AM (GMT -6)   
Audiobooks might be fun. I DID read while in the hospital, but if you're on heavy pain meds at first, it can be hard to concentrate...plus all the activity the first couple days with yourself and the nurses and your roommate and his nurses.
27/F Diagnosed with unspecified UC 11/08 (symptoms for over a year before)
Asacol, Prednisone, Remicade with no success--no remission for over 2 years
8/09 colonoscopy shows that the whole colon is affected
12/18/09 Removal of colon, creation of J-Pouch and ostomy; recessed stoma; 12/30/09 Takedown too soon; RV fistula;1/9/10 Second Ileostomy Surgery;
1/25/10 Stoma Revision Surgery; 3/30/10 Takedown again; 6/9/10 Scope and Biopsy--Diagnosed with Crohns Disease (maybe...)
Tried gluten free and dairy free with no noticeable improvement; Was on TPN and IV fluids 2/10-6/10. Currently:Prednisone 40 mg, Culturelle, D, B12, Iron, Prenatal vitamin, Lomotil, Lortab, Humira


Collicat
Veteran Member


Date Joined May 2009
Total Posts : 827
   Posted 6/30/2010 10:34 AM (GMT -6)   
For us the most important thing was a fan. Most hospital rooms are VERY warm and just to move the air made such a huge difference....one of the best $16 I have ever spent.

Summerstorm said GasX....our surgeon does not want her patients using anything like that. She says it can mask potential problems .....so just make sure you check with your surgeon first.

I completely agree with the visitor thing. For the first while the last thing you will want is visitors!

Best of luck with your surgery and remember how important it is to get up and WALK. You will not feel like doing it but it is so important..it also helps greatly with any gas pains. Also take any liquids and foods VERY slowly at first. You will be very thirsty and hungry and the natural thing is that when you tell you you can have these things that you over indulge. Take this from experience....it will only set you back....take it REALLY SLOW!

Cathy
New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, June 19, 2018 4:30 PM (GMT -6)
There are a total of 2,973,359 posts in 326,083 threads.
View Active Threads


Who's Online
This forum has 160959 registered members. Please welcome our newest member, RBL.
416 Guest(s), 11 Registered Member(s) are currently online.  Details
Kent M., Glascis, jayce, Girlie, 142, NiceCupOfTea, Noah2112, Busted1, Chander, P34, Hoosierhousewife