For those who still have their often do u "go"?

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Veteran Member

Date Joined Dec 2007
Total Posts : 739
   Posted 6/28/2010 10:01 PM (GMT -6)   
Ok so i know that some of us who have temp ileo's and still have our rectums kinda feel the urge to go and have some output. but how often does this happen for u? lately iv actually been having gas and "going" quite often, and was wondering if this is normal?
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!
 Temp Ileostomy performed 1/29/08
Still Adusting has been my Godsend...Thank you

Veteran Member

Date Joined Jun 2009
Total Posts : 985
   Posted 6/28/2010 10:11 PM (GMT -6)   
When I had the ostomy, that started happening at the end. It would be a few times a day, but I found out I had pouchitis then, too. At the very end, the last few days before takedown, I had HUGE leaks at night.
27/F Diagnosed with unspecified UC 11/08 (symptoms for over a year before)
Asacol, Prednisone, Remicade with no success--no remission for over 2 years
8/09 colonoscopy shows that the whole colon is affected
12/18/09 Removal of colon, creation of J-Pouch and ostomy; recessed stoma; 12/30/09 Takedown too soon; RV fistula;1/9/10 Second Ileostomy Surgery;
1/25/10 Stoma Revision Surgery; 3/30/10 Takedown again; 6/9/10 Scope and Biopsy--Diagnosed with Crohns Disease (maybe...)
Tried gluten free and dairy free with no noticeable improvement; Was on TPN and IV fluids 2/10-6/10. Currently:Prednisone 40 mg, Culturelle, D, B12, Iron, Prenatal vitamin, Lomotil, Lortab, Humira

Regular Member

Date Joined Jan 2009
Total Posts : 413
   Posted 6/29/2010 2:59 PM (GMT -6)   
I do have stuff coming out, but it is not a lot. I don't have gas, but I was assured that this was all normal. do you feel pain when going? How often is often for you? I Think the most I had to evacuate was like twice for the day. I do have a temp ileo. Most of it is still mucus, no blood.

Equestrian Mom
Veteran Member

Date Joined Mar 2008
Total Posts : 3115
   Posted 6/29/2010 3:45 PM (GMT -6)   
When I had my temp ileo (~8 years) I went about once a week...and in the months before my proctocolectomy the amount slowly increased sad
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008

Regular Member

Date Joined Apr 2008
Total Posts : 139
   Posted 7/1/2010 11:16 PM (GMT -6)   
It happened for me every time I went to the bathroom until takedown.
Ducridr - 36 - female

Diagnosed w/ severe pancolitis 11/20/2007
Asacol - 6 (400mg) 2x/day, Xifaxin 2 (200mg) 2x/day, Prednisone 15 mg (started at 40mg Nov 08 - off June 09), multi-vitamin, calcium and vit d supplement, potassium supplement, B-12 supplement, Junel FE (BCP),metamucil capsule (1/day) Coumadin (for blood clot) 5mg/day, 1st Remicade treatment 2/4/2009, 2nd - 2/18/09. Currently getting Remicade every 4 weeks.

J-Pouch surgery #1 of 3 on 8/21/2009!!!
Surgery #2 on 1/4/2010
Surgery #3 on 3/23/2010

Regular Member

Date Joined Aug 2007
Total Posts : 212
   Posted 7/2/2010 9:21 PM (GMT -6)   
I've had my temp ileo for three years. I go about once every three weeks. Sometimes more. It depends on the time of the month. I notice it more around my period. Weird!

Regular Member

Date Joined Oct 2009
Total Posts : 474
   Posted 7/2/2010 9:26 PM (GMT -6)   
Pretty much every time I go to the bathroom. Although, some days I won't have anything at all.
21 y/o male livin' in Georgia. Diagnosed with Left-Sided Colitis in 2002; re-diagnosed with Pancolitis in Nov. 2009.
June 2010 I beat UC by having surgery.
Drugs tried: Just about every 5ASA medicine, enemas, prednisone, turmeric, fish oil, Remicade, psyllium seed powder, Metamucil.
Unable to take 6MP.
Step one of Jpouch surgery - 6/2/2010
Readmitted back to hospital because of blockage (my fault cause I ate Steak n Shake 3 days after being released from surgery) - 6/10/2010
Step two of Jpouch surgery - 9/?/2010

New Member

Date Joined May 2010
Total Posts : 10
   Posted 7/4/2010 1:23 PM (GMT -6)   
Hi there,
When I had my temp ileostomy I passed nothing for about six months after surgery, before starting to experience the urge to "go." Thereafter, I would pass mucous at least once a week, and sometimes every day. The rate of discharge seemed to bear no relationship to the output from the stoma, i.e. at times I was passing a lot of mucous, I would have solid output. Often I would pass mucous after drinking a cup of coffee, etc. Occasionally I would pass a little blood with the mucous. It didn't have any effect on the surgeon's decision to perform a reversal, as I feared it might.
Ulcerative Colitis diagnosed 1996
Medication tried- Salazopyrin, Prednisilone, Immuran, Prednisilone, Pentasa, Prednisilone, 6MP, (Does anyone want to have the steroid conversation?), Infliximab, Humira.
2008- Subtotal Colectomy with end ileostomy formation
April 2010- Proctocolectomy with ileorectal anastomosis.
One or two Immodium a week now and 3/4 very manageable b/ms a day.
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