Echoing the thoughts of others then some more info I've learned the hard way. Too much salt as in pickle juice can increase ileo output. You do need to replace the salt, but then if you take in too much salt it will increase the flow of effluent. (At lease this happens with me.) This is a serious balancing act. Sugar and Fake sugar also speed my small intestine. Caffeine is a NO NO too for me. Orange juice which I use for potassium whales right through me. Not drinking a lot with meals is good advice unless you are eating something heavy (works that way with me anyway). I've drunk a full glass of water and had dinner come out as water in about
30 minutes. This is very hard to manage. I know I'm always slightly dehydrated no matter what I do. That's likely why I feel lightheaded all the time.
Just for an experiment, I know you are measuring ileo output for awhile as you mentioned to me, so also measure your urine output. I was told by a GI that I should output 2 quarts of urine per day to avoid kidney stones (never had one but don't want one and with ileo's we are "prone" due to losing so much water in our effluent.)
Somehow or other we are supposed to have effluent pudding consistency so that our distal ileum (end of small intestine) absorbs water back into our body the best it can to take over for the colon. The trick is to balance everything so you urinate 2 quarts per day, put out around 200-700 cc's of effluent per day, keep salt and potassium levels good along with other electrolytes, chew enough to never get a food blockage, never get an adhesion blockage or a bowel twist, and continue life as if it were "normal." Whatever that is
One GI also told me to avoid oxalates to avoid kidney stones. Oxalates are mostly in tea, coffee, grape juice, chocolate, and wheat germ cereals.
It's like what the h----- how can we do all this? You are still very new at this, but all the "shoulds" and "ought to's" got me so twirled up that for about
a year I just feasted on all my favorite oxalates, slugged gator ade, ate chocolate, and ate ice cream. It overwhelmed me too much. But now I am trying to settle into this as I'm finally approaching "full acceptance" and it's not easy. Those 3 food blockages I had have me scared. But I gotta just keep trying real food (will just avoid those mashed potatoes though; they are just not my friend for whatever reason.) Glad my CT enterography showed all
open, but I still had the food blockages; nothing changes that.
If anyone on here gets the right combo of foods, please let me know. We are all different in our response to foods but there must be some common threads. No doc seems to be able to even give generalities regarding diet except I was told no nuts, seeds, or peels. I think this is all trial and error and not easy to do. These are just my experiences and what I was told. We were all likely told different things and certainly have different reactions to things; but these are mine.
Glad you are coming along Tracy, you may find the "key diet" before I do.