Can this hurt me?

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answers4me2
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Date Joined Dec 2008
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   Posted 6/30/2010 8:55 AM (GMT -6)   
I have had my ileostomy for 9 days now and have had a crazy craving... Pickle juice. Lots and lots of pickle juice. It is like I have to drink some pickle juice RIGHT NOW, even if it is in the middle of the night. My output is still high, so I am drinking plenty of gatorade, tea, water, etc. to ward off dehydration....will drinking pickle juice hurt me? smhair Thanks, Tracy

cleo35
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Date Joined Feb 2007
Total Posts : 430
   Posted 6/30/2010 9:02 AM (GMT -6)   
Whenever I go thru a "pickle juice" period the next round of blood tests usually shows my sodium level has taken a nose-dive. I honestly wouldn't worry about it because in my experience I chug it a couple of times and then I'm done with it. I was told that since I have an ostomy I need to eliminate plain water and drink only Gator Aide to keep myself hydrated. Plain water depletes sodium. Watch how much tea you're drinking too - it's a diaretic (sp?) and will dehydrate you as well.

summerstorm
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Date Joined Aug 2006
Total Posts : 6571
   Posted 6/30/2010 9:05 AM (GMT -6)   
it wont hurt you, althoughif you drink all the little floatie things in there they will probably come out the way they went in, lol.
 
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!


summerstorm
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Date Joined Aug 2006
Total Posts : 6571
   Posted 6/30/2010 9:06 AM (GMT -6)   
drinking plain water will not hurt you btw, plain water is far better for you than anything else! If you have trouble with it, add a tiny bit of salt, or increase your salt intake
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!


Collicat
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Date Joined May 2009
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   Posted 6/30/2010 11:22 AM (GMT -6)   
We were told to stay away from Gaterade. It has 35g of sugar which can increase our output. In Canada we have G2 ( I do know if it is available in the States) which is Gaterade with only 7g of sugar. Still same electrolytes but not the sugar.....much better for keeping you hydrated. We were also told to drink lots of water but not when you are eating. You should drink 30 min before your meal or 30 min after. Sipping water during a meal is okay but large amounts will push the food bolus through your intestine very quickly and you will get much less nutrition.

Equestrian Mom
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Date Joined Mar 2008
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   Posted 6/30/2010 11:53 AM (GMT -6)   
You definitely need salt!! Start eating pretzels and peanut butter crackers to help out...and of course, drink the pickle juice!

I crave olives when I am low...my indicator to watch my level of sodium smilewinkgrin

Just be careful with any of the electrolyte drinks...they have quite a bit of sugar and the G2 has artificial sweeteners both of which CAN cause high amounts of output! skull You might just be over drinking right now...do you have Imodium instructions, too?

Like everything else...we all respond to sugar differently...what works for one might not work for another and you will learn your body:-)

Excess amounts of CAFFEINATED tea/coffee will also cause high output which can lead to dehydration. Switch to decaf if it isn't already.
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008


summerstorm
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Date Joined Aug 2006
Total Posts : 6571
   Posted 6/30/2010 8:51 PM (GMT -6)   
artifical sweeteners are just bad for you in general, as are any sugary drinks. I'm so proud of myself, i havent had anything to drink but water (well save for one sip of punch and two beers) in almost 2 months! and i feel amazingly better just from doing that!
You could drink pedialyte, that would be good.
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!


esoR
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Date Joined Jan 2007
Total Posts : 4147
   Posted 6/30/2010 8:59 PM (GMT -6)   
Tracy,

Echoing the thoughts of others then some more info I've learned the hard way. Too much salt as in pickle juice can increase ileo output. You do need to replace the salt, but then if you take in too much salt it will increase the flow of effluent. (At lease this happens with me.) This is a serious balancing act. Sugar and Fake sugar also speed my small intestine. Caffeine is a NO NO too for me. Orange juice which I use for potassium whales right through me. Not drinking a lot with meals is good advice unless you are eating something heavy (works that way with me anyway). I've drunk a full glass of water and had dinner come out as water in about 30 minutes. This is very hard to manage. I know I'm always slightly dehydrated no matter what I do. That's likely why I feel lightheaded all the time.

Just for an experiment, I know you are measuring ileo output for awhile as you mentioned to me, so also measure your urine output. I was told by a GI that I should output 2 quarts of urine per day to avoid kidney stones (never had one but don't want one and with ileo's we are "prone" due to losing so much water in our effluent.)

Somehow or other we are supposed to have effluent pudding consistency so that our distal ileum (end of small intestine) absorbs water back into our body the best it can to take over for the colon. The trick is to balance everything so you urinate 2 quarts per day, put out around 200-700 cc's of effluent per day, keep salt and potassium levels good along with other electrolytes, chew enough to never get a food blockage, never get an adhesion blockage or a bowel twist, and continue life as if it were "normal." Whatever that is :-)

One GI also told me to avoid oxalates to avoid kidney stones. Oxalates are mostly in tea, coffee, grape juice, chocolate, and wheat germ cereals.

It's like what the h----- how can we do all this? You are still very new at this, but all the "shoulds" and "ought to's" got me so twirled up that for about a year I just feasted on all my favorite oxalates, slugged gator ade, ate chocolate, and ate ice cream. It overwhelmed me too much. But now I am trying to settle into this as I'm finally approaching "full acceptance" and it's not easy. Those 3 food blockages I had have me scared. But I gotta just keep trying real food (will just avoid those mashed potatoes though; they are just not my friend for whatever reason.) Glad my CT enterography showed all open, but I still had the food blockages; nothing changes that.

If anyone on here gets the right combo of foods, please let me know. We are all different in our response to foods but there must be some common threads. No doc seems to be able to even give generalities regarding diet except I was told no nuts, seeds, or peels. I think this is all trial and error and not easy to do. These are just my experiences and what I was told. We were all likely told different things and certainly have different reactions to things; but these are mine.

Glad you are coming along Tracy, you may find the "key diet" before I do. :-) Rosemary

answers4me2
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Date Joined Dec 2008
Total Posts : 1325
   Posted 6/30/2010 9:07 PM (GMT -6)   
I do not do artificial sweeteners of any kind. I just can not stand the taste, plus I don't think the artificial sweeteners are safe anyway.

One of the residents that came to see me at the hospital basically told me I need to be drinking gatorade or powerade more than anything else. I always assumed water was best, but this guy said I NEED the electrolytes, so not too much free water???? What is the truth? How much water should I be drinking? My paperwork from my doctor says 10 to 12 glasses of fluids a day and drink an extra glass each time I change my pouch....it says "good options for fluid and electrolyte replacements are broth, sports drinks, fruit juices, vegetable juice, orange juice, or tea and crackers" Water is not listed as an electrolyte replacement....I am confused!

Thanks so much for responding....I am still drinking pickle juice and can't seem to get enough. LOL Tracy

esoR
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Date Joined Jan 2007
Total Posts : 4147
   Posted 6/30/2010 10:35 PM (GMT -6)   
Hi Tracy,

Enjoy that pickle juice. Sometimes you just gotta do what makes you feel good. You will find that each doc and each GI doc and each nutritionist, and each patient will tell you something different about what to drink or what works for them. I'm still confused and it's 2.5 years for me. I don't have a clue.

One GI told me 3 quarts of water per day AND a quart of gator ade with salt added. Gross man! So the gator ade makes me dump even now so we skip that and do pedialyte. I used to do a total of 4 quarts of liquid a day but now It's more like 3 quarts.

In a day this is what I usually drink right or wrong: orange juice and decaf coffee for breakfast.

Then about 5 cups of water. One cup of tea. one glass of grape juice. 2 glasses of milk.

For food it is usually: rice cereal for breakfast with yogurt. Lunch low fat cottage cheese and crackers with tomato juice or tom. soup.

Dinner croissant and scrambled egg. Maybe ice cream. Then I do a LOT of vitamins! I'm basically clueless about what to do even after this long. It got so confusing I had to stop and do what came naturally (which likely isn't the right things to do, but.....)

Rosemary

summerstorm
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Date Joined Aug 2006
Total Posts : 6571
   Posted 6/30/2010 11:09 PM (GMT -6)   
i dont understand why anyone would tell you that water is BAD for you!!! Its not bad for you! all that other stuff is bad for you! If you simply must drink something else, milk would be good, or juice, in moderation. Juice really isnt good for you, unless it is absolute 100%juice, and has no sweeteners! really it's just empty calories.
Add salt to your diet (i was so happy to NEED to eat more salt, lol) or add a small amount to your water, i drink about 6 or so bottles of water a day, i just refill them each time with my water from home, we have well water so its very tasty! And i eat different things each day, but i try to always eat at least two bananas and some apples, or some other types of fruit, then some popcorn (thats my extra salt) and something like peanut butter for protein, i dont do alot of actual mean anymore, or i eat cottage cheese or cheese something. just cause i love cheese :D
There are ways to tell if you are dehydrated, if your pee is dark colored, or you arent peeing or sweating much, if you feel dizzy or lightheaded.
I can always tell because i get a headache and feel icky, so i just chug some water and then feel much better!
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!


Equestrian Mom
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Date Joined Mar 2008
Total Posts : 3115
   Posted 7/1/2010 5:04 AM (GMT -6)   
Also remember that we obtain fluids from the foods we eat too. Ice cream, applesauce and soups and broth (salty, too) are ones that I can think of right now (too early!!!).

I think we all start off thinking that we MUST drink A LOT from the beginning and the truth is that we are all different!!!! Our bodies process things differently and we all have different activity levels and fluid needs. Yes, be aware of your output and make sure your urine is light to clear to make sure you are hydrated but right now your body is learning it's new way of going and it WILL take a little while to figure it out idea You are still in recovery and learning!

I don't have a need for electrolyte drinks unless I am exercising and losing a lot of fluids that way...I've never been restricted of 'free water' either...just another view to show it's not cookie cutter for us...Hang in there, it does slow down and get easier smilewinkgrin
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008


answers4me2
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Date Joined Dec 2008
Total Posts : 1325
   Posted 7/1/2010 10:23 AM (GMT -6)   
I have just been drinking a little bit of everything. I even had 1/4 of a coke this AM...so far I haven't noticed any problems with drinking it. I am drinking sweet tea, water, juice, and powerade...as much as I can basically. I have been OVERdrinking to be sure I don't have any dehydration issues. I noticed this morning I did have urine which is a good thing because I have noticed that the past few mornings, I seemed behind and could not produce any urine until the afternoon. I may cut back a little on fluids this afternoon since the output is thickening up.

Tracy

2b ColonFree
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Date Joined Nov 2008
Total Posts : 2603
   Posted 7/1/2010 10:55 AM (GMT -6)   

hey Tracy, how are you doing? are you getting the whole bag thing under control? is it hard to manage changing it, emptying it etc? have you been discharged from the hospital yet?? well for me it's final, my sugery is on the 8th this month..... SO SCARED.... i'm even more scared of this one than i was before the colectomy, cause this is totally going to change my life.... my pooping habbits lol... just one more week - YIKES!!!!!!

BTW,  i LOVE pickle juice, always have. i used to drink it ALL THE TIME as a kid.. YUMMY!!


Hodaya

06/05/2007 - STARR procedure

colonic inertia w/pelvic floor dysfunction

08/16/2009 - total colectomy w/ileorectal anastomosis


esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 7/1/2010 10:13 PM (GMT -6)   
Tracy,

Yeah, not having to pee in the a.m. has been an issue for me some days. I try to drink enough at night to start peeing in the a.m. as nights I don't, it is real hard to get myself out of bed in the a.m. I think I dehydrate overnight. This is such a balancing act. Also just know if you ever get the stomach flu and vomiting and diarrhea, just get right to the hospital and get IV's. This is just the standard thing ileostomates need to do in that event. I don't think It's even the season for that now, so not to worry, but if you ever do catch that, just head to the ER. They should get it. They would just hydrate you and send you home. Then that virus passes off rather quickly anyway. Just hits us ileostomates harder than those with a working colon. Rosemary

summerstorm
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Date Joined Aug 2006
Total Posts : 6571
   Posted 7/1/2010 10:46 PM (GMT -6)   
yes i got a stomach bug a while back and had my mom take me on to the er (my husband manages an er, so no wait for me, lol) and i got some ivs and such and felt much better!
Its a good idea to keep some phenogren on hand, sometimes if you get the vomiting undercontrol early enough you wont have to go
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!


cleo35
Regular Member


Date Joined Feb 2007
Total Posts : 430
   Posted 7/7/2010 10:18 AM (GMT -6)   
Tracy: I get a lot of great feedback and suggestions on this site but I follow my doctor's medical advice because he's one of the best in the US - and he adamantly said GATOR AIDE not free water in my case because I've been hospitalized several times for dehydration and my electrolytes fluctuate constantly and wildly. Some may have problems with the sugar content - I don't. It doesn't cause me problems - being dehydrated to the point of needing to visit the ER is what causes me problems.

answers4me2
Veteran Member


Date Joined Dec 2008
Total Posts : 1325
   Posted 7/7/2010 5:37 PM (GMT -6)   
Cleo, what do you drink and how much? I did not drink enough today and I got really weak....when I realized I had not peed, I drank 12 ounces of gatorade and 16 ounces of water.

80sChick
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Date Joined Oct 2009
Total Posts : 1054
   Posted 7/7/2010 6:50 PM (GMT -6)   
I drink pretty much only water and I pee all the time! I work at Disney World doing sometimes up to 6 parades a day in 100 degree heat. They constantly are pushing water and Powerade on us, but always say water is best. If you have one Powerade, you should have at least two waters, because too much Powerade can cause kidney stones (and we are already prone to them as ileostomates).
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
Total Proctocolectomy and Permanent Ileostomy 3/18/10! :)
Blockage/Ileo revision 6/8/10 :/
 
Tried: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas, Psyllium Seed Powder... Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
 
Currently taking: Prenatal Vitamin, Vitamin B 12 Complex, Biotin, Vitamin D, Calcium, Flomax (for urinary retention). 


summerstorm
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Date Joined Aug 2006
Total Posts : 6571
   Posted 7/7/2010 7:39 PM (GMT -6)   
cleo may be the exception, but regular water is better!  we are made of 60%water!  Not 60% juice or gatorade, or soda!
Gatorade has been around for like 50 years, and water has been around for billions of years and is what we and are world are primarily made of, that tells me what i need to know.
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

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