Update on Christine 1946 condition

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Veteran Member

Date Joined Aug 2008
Total Posts : 5947
   Posted 6/30/2010 10:52 AM (GMT -6)   
This is Linda. I'm Christine's daughter. She had the surgery on Monday morning... total colectomy and permanent ileo. My mom came thru the surgery fine and is doing well. I will keep you posted.

Equestrian Mom
Veteran Member

Date Joined Mar 2008
Total Posts : 3115
   Posted 6/30/2010 10:55 AM (GMT -6)   
Great to hear! Make sure she walks...A LOT!

Please pass along a big (((HUG))) and hello:)
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008

Veteran Member

Date Joined Aug 2009
Total Posts : 832
   Posted 6/30/2010 11:24 AM (GMT -6)   
Glad she is doing well.  Keep us posted and please let her know she's in our thoughts.
Praying for a speedy recovery for her so she can get back to her life!! :)
*Amy, 33, dx with idiopathic colitis July 2009, confirmed UC Sept 2009

Asacol 4 pills 2 times daily
Rowasa (slow taper, skipping every 3rd night)
Probiotic: Not taking one now, experimenting

Veteran Member

Date Joined Mar 2008
Total Posts : 2855
   Posted 6/30/2010 1:20 PM (GMT -6)   
Thanks for letting us know, tell her about all the good wishes from us!
49 year old female attorney, diagnosed UC/pancolitis 1985. 
Asacol for 20+ years with Prednisone & Rowasa for flares (But nothing since Remicade). 
Food sensitivity test by Naturopath showed wheat/gluten, other intolerances, helped some. 
Remicade started April 2009 (Humira denied) and doing great~ learning what normal is~ wow

Regular Member

Date Joined Jul 2009
Total Posts : 321
   Posted 6/30/2010 2:08 PM (GMT -6)   
Glad to hear she came through ok...praying for her to have a speedy recovery.

Veteran Member

Date Joined Jun 2009
Total Posts : 985
   Posted 6/30/2010 2:39 PM (GMT -6)   
Great news! Let her know we've been thinking about her
27/F Diagnosed with unspecified UC 11/08 (symptoms for over a year before)
Asacol, Prednisone, Remicade with no success--no remission for over 2 years
8/09 colonoscopy shows that the whole colon is affected
12/18/09 Removal of colon, creation of J-Pouch and ostomy; recessed stoma; 12/30/09 Takedown too soon; RV fistula;1/9/10 Second Ileostomy Surgery;
1/25/10 Stoma Revision Surgery; 3/30/10 Takedown again; 6/9/10 Scope and Biopsy--Diagnosed with Crohns Disease (maybe...)
Tried gluten free and dairy free with no noticeable improvement; Was on TPN and IV fluids 2/10-6/10. Currently:Prednisone 40 mg, Culturelle, D, B12, Iron, Prenatal vitamin, Lomotil, Lortab, Humira, Rowasa

Veteran Member

Date Joined Jun 2008
Total Posts : 2865
   Posted 6/30/2010 2:51 PM (GMT -6)   
Tell her Elaine sent her a nice soft hug!!
Senior - diagnosed with proctosigmoiditis - 6/2008 Cannot tolerate mesalamines including rectal meds, etc. 
Prednisone for about 5 months - tried 6 MP with no help. 
No prescriptions now except for Cortifoam and anusol about once a week.  Now treating only with Imodium and Pepto Bismal and below....
Probiotic Align, Prilosec for GERD, Gas-X, vitamins, Calcium/D
Tylenol for knees and arthritis.

Veteran Member

Date Joined Jun 2010
Total Posts : 2335
   Posted 6/30/2010 4:12 PM (GMT -6)   
So glad to hear it. Pls wish here a speedy recovery and yay, no more UC!
2 Lialda/day  Rowasa nightly
Metamucil wafers

Regular Member

Date Joined Jan 2009
Total Posts : 413
   Posted 6/30/2010 5:13 PM (GMT -6)   
This is very very good news. Giver her a big kiss on the cheek for me. Def keep us posted on her progress! Thank you for letting us know.

Serenity Now
Veteran Member

Date Joined Jan 2009
Total Posts : 2077
   Posted 6/30/2010 5:15 PM (GMT -6)   
Glad to hear it! I've been wondering how she was doing.
Female, 43, Vancouver BC

DX: UC (Pancolitis) as of Jan2009.  Symptoms first began June2008.  Currently in remission.
Current Meds: None

Previous Meds:

 -Asacol 800 mg (1 pill x 4 daily), Jan-Mar2009
 -Ferrous sulfate, Jan2009-Apr2010 
Supplements: Probiotic, cod liver oil, Multi-vitamins, Calcium-Magnesium 

Veteran Member

Date Joined Jul 2006
Total Posts : 2105
   Posted 6/30/2010 5:54 PM (GMT -6)   
Great to hear. I am jealous now.
Proctitis DX 1999, Pancolitis DX 2008
Remicade, Sulfasalazine 3g/day, Rear meds as needed
Psyllium (palm full twice daily)
Probiotis/VitD3 5000IU+Ca/1000mg DHA

Veteran Member

Date Joined Feb 2005
Total Posts : 1373
   Posted 6/30/2010 6:10 PM (GMT -6)   
YAY!!! So gald to hear the surgery is all behind her now and that she is doing well :D Wish her well for all of us and we are waiting on PINS and NEEDLES to hear about her experience~!
 Diagnosed with Ulcerative Colitis January 31st, 2005, Testing for Crohn's 3/10
Prior Meds:

< <>Canasa, Rowasa, Lialda, Apriso, Pentasa, Nexium, Prednisone, 1 infusion of Remicade.. none of those worked for too long... Had neurological complications from the Remicade...

< <>Current Meds:
Rowasa Enema, 1x at night, Xanax as needed and Ambien 10mg for sleep.  B-50 Complex 1x Day, Vitamin D 5000 IU per day, Zyflamend 1x a day.  

Regular Member

Date Joined May 2005
Total Posts : 351
   Posted 6/30/2010 6:51 PM (GMT -6)   
So glad she is doing well...thinking of her!
Ulcerative colitis (whole colon)
since 2002
 Feeling well....as normal as we can I guess!
  • 6MP 50mg daily
  • Canasa supp prn 
  • Flinstone vitamins, folic acid, align probiotic, calcium with vit D, vit C
  • Asacol 3 pills 3 times a day..going to change to HD
  • Remicade started 9/09...increased to 10mg
  • tapering off prednsione....been on since 6/09
  • Had 1st baby 9/15/09!!!! Flared 20 weeks pregnant...and still trying to get into full remssion!  FINGERS CROSSED!!!

Veteran Member

Date Joined Jan 2007
Total Posts : 4147
   Posted 6/30/2010 7:37 PM (GMT -6)   

This is great news. Thanks for updating. Rosemary

Regular Member

Date Joined Jun 2008
Total Posts : 205
   Posted 6/30/2010 10:36 PM (GMT -6)   
Nice to know!
I wish her a speedy recovery.
Ulcerative proctitis diagnosed in July 2006. Medications: Salofalk enema nightly. Remission from Nov 2006 to Oct 2007. Then a bad cold and a bad flare for 1 year till Nov 2008.
Pancolitis diagnosed in April 2008. Previous medications: Salofalk enema, Salofalk suppositories, Salofalk tablets 1000mg x 4/day, Entocort enema

Supplements: Calcium with Vitamin D, Vitamin B Complex, Omega 3, Vitamin C, psyllium capsules (Metamucil), iron pills.

Flared since July 2009. Hospitalized from Nov 22 to Dec 14, 2009. Discharged with Prednisone and Cyclosporine. Hospitalized again on March 15, 2010. Had surgery on March 26, opted for permanent ileostomy and now live a new life.

Forum Moderator

Date Joined Dec 2008
Total Posts : 15902
   Posted 6/30/2010 10:47 PM (GMT -6)   
Thank you for the update! I have been looking around for one but missed your post on the UC board. I just scrolled through to page 2 to see if there was some news and there it was!! I am so happy to hear she is doing well and UC free. How exciting.

Miss you Christine!! xoxo
March 07: DIagnosed with Mild Proctitis - Canasa as needed.
August 08 - December 08: FLARE & Anemic - Started Asacol!!
January 09 - December 09: REMISSION!! Asacol (9) + Canasa 1g AM/PM
December 09 - January 10: FLARE!! Asacol + Prednisone + Canasa
February 10 - April 10: Colazal + Prednisone + Canasa
May 10 - June 10: Lialda + Cort Enema + Prednisone
Current: Mild / Moderate Active Pancolitis: Prednisone, 6mp, klonopin FEELING OKAY!!

Veteran Member

Date Joined Dec 2009
Total Posts : 2396
   Posted 7/1/2010 5:20 AM (GMT -6)   
Great! Enjoy your mom's new found health! Best wishes to your family.

Scrap Girl
Veteran Member

Date Joined Jan 2007
Total Posts : 653
   Posted 7/1/2010 11:23 AM (GMT -6)   
That's awesome news! Can't wait to hear from Christine.
Diagnosed with UC in Feb. 2005
Asacol, Colazal, Prednisone, Rectal Meds, Remicade, Humira
Now UC Free!
First step of j-pouch - April 1, 2010
Second Step - 9/14/10
Third Step - TBD

Regular Member

Date Joined Jun 2008
Total Posts : 109
   Posted 7/2/2010 3:14 PM (GMT -6)   
i've been checking the forum to see if any post on Christine, so happy to hear the good news.

I'm a survivor and I have the battle scare to prove it."

Veteran Member

Date Joined May 2009
Total Posts : 827
   Posted 7/3/2010 9:24 PM (GMT -6)   
Linda....thanks for the update. I am so happy that things went well.

Elite Member

Date Joined May 2003
Total Posts : 30198
   Posted 7/4/2010 12:46 PM (GMT -6)   
Christine....I'm so happy for you that all has gone well and that you're now recovering. Please let us know how you're doing.

Best wishes for a smooth recover and adjustment.
Heather xx

Veteran Member

Date Joined Oct 2009
Total Posts : 1054
   Posted 7/6/2010 11:22 AM (GMT -6)   
Hooray Christine!
I've been thinking about you. Walk a lot and chew a lot and you will be better soon! The worst is over now.
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
Total Proctocolectomy and Permanent Ileostomy 3/18/10! :)
Blockage/Ileo revision 6/8/10 :/
Tried: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas, Psyllium Seed Powder... Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
Currently taking: Prenatal Vitamin, Vitamin B 12 Complex, Biotin, Vitamin D, Calcium, Flomax (for urinary retention). 

Forum Moderator

Date Joined Dec 2008
Total Posts : 15902
   Posted 7/6/2010 10:56 PM (GMT -6)   
You've been in my thoughts Christine. Miss seeing you aorund!! I hope you're feeling good.
March 07: DIagnosed with Mild Proctitis - Canasa as needed.
August 08 - December 08: FLARE & Anemic - Started Asacol!!
January 09 - December 09: REMISSION!! Asacol (9) + Canasa 1g AM/PM
December 09 - January 10: FLARE!! Asacol + Prednisone + Canasa
February 10 - April 10: Colazal + Prednisone + Canasa
May 10 - June 10: Lialda + Cort Enema + Prednisone
Current: Mild / Moderate Active Pancolitis: Prednisone, 6mp, klonopin FEELING OKAY!!

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