Going For Takedown in 6 days ...

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Anthony1977
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Date Joined Jan 2009
Total Posts : 413
   Posted 7/1/2010 3:55 PM (GMT -6)   
gah, I think I am more nervous about this procedure than the first. All i Know is that I am going to walk and breath into that stupid measuring cup with that tube thing coming out of it. Last time I neglected both and, hooray, I got pneumonia and gave myself the wondrous gift of staying in the hospital for another 1.5 weeks.

I know the basics of what I should bring, but are there other things that would be valuable for this procedure and stay at the hospital? I can't believe all this time went by this fast.

suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 7/1/2010 4:30 PM (GMT -6)   
I don't recall the lung thing for step 2. In fact I think we were just kicked out of bed hours after surgery and forced to walk around the hospital grounds pushing our IV towers. Step 2 is relatively a breeze in terms of surgery/recovery. Now adaption to food can be another wrinkle. Take a bathrobe and some butt burn creams. I like Desitin and Calmoseptine. Calmoseptine is the granddaddy of all ointments. You won't want to be without it.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


pam222
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Date Joined Jun 2009
Total Posts : 985
   Posted 7/1/2010 5:46 PM (GMT -6)   
They gave me several different ointments in the hospital and Lidocaine and Hydrocortisone cream, but if you want something specific, bring it. Don't use the hospital toilet paper! It will make your butt hurt. My surgeon told me not to use the TP at all and just use washcloths in the hospital. They have plenty. Have them bring you a whole pile. If you start getting butt burn anyway, ask for the sitz bath. It's soothing.
I believe they gave me the breathing thing after every surgery. I was up and walking that day, though.
After my first takedown, I had issues with nausea/vomiting and stayed longer than normal (then got the fistula and another surgery so ended up being there a long time). I was having a difficult time going and I was throwing up green bile all over the place. Ugh, the floor was covered. It was crazy. My second takedown wasn't bad, and I was able to eat normally pretty quickly.

Good luck! I'm sure everything will be just fine
27/F Diagnosed with unspecified UC 11/08 (symptoms for over a year before)
Asacol, Prednisone, Remicade with no success--no remission for over 2 years
8/09 colonoscopy shows that the whole colon is affected
12/18/09 Removal of colon, creation of J-Pouch and ostomy; recessed stoma; 12/30/09 Takedown too soon; RV fistula;1/9/10 Second Ileostomy Surgery;
1/25/10 Stoma Revision Surgery; 3/30/10 Takedown again; 6/9/10 Scope and Biopsy--Diagnosed with Crohns Disease (maybe...)
Tried gluten free and dairy free with no noticeable improvement; Was on TPN and IV fluids 2/10-6/10. Currently:Prednisone 40 mg, Culturelle, D, B12, Iron, Prenatal vitamin, Lomotil, Lortab, Humira, Rowasa

Post Edited (pam222) : 7/1/2010 4:49:29 PM (GMT-6)


Anthony1977
Regular Member


Date Joined Jan 2009
Total Posts : 413
   Posted 7/1/2010 7:50 PM (GMT -6)   
thanks, guys!

esoR
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Date Joined Jan 2007
Total Posts : 4147
   Posted 7/1/2010 10:05 PM (GMT -6)   
Good luck Anthony. Wishing you all the best. Rosemary

firstrozier
New Member


Date Joined Jun 2010
Total Posts : 7
   Posted 7/2/2010 11:48 AM (GMT -6)   
The miracle worker for me (just had mine taken down three weeks ago) was a powder called "anti-monkey butt" powder. As my doctor explained the creams are soothing but the area needs to be dry for healing to occur. The powder was a miracle worker. I also asked for one of the water squirt bottles they use for women who've had babies, and used that to clean instead of toilet paper. After that, just dab dry and use the powder liberally. It really, really worked, much better than the creams.

Collicat
Veteran Member


Date Joined May 2009
Total Posts : 827
   Posted 7/3/2010 10:33 PM (GMT -6)   
Anthony....soon this will all be over and you will be feeling so much better and getting on with your life!

This surgery is much easier than what you have already been through and recovery is much quicker.

You can buy flushable wipes that are less irritating than toilet paper. The hospital gave Dillon butt cream that worked really well but you have to use it EVERY time you have a BM.

Just like before remember to get up and WALK...more than you want to.

Is your surgery on the 7th?....we will be thinking of you!

Cathy (and Dillon)

Marsky
Veteran Member


Date Joined Jul 2007
Total Posts : 1956
   Posted 7/4/2010 9:50 AM (GMT -6)   
Hello there - I had a temporary colostomy after my colon resection for cancer, 11 years ago. It was reversed 8 weeks later. My first surgery was extremely painful to recover from. I had pain for 4 straight weeks, day in, day out. Figured out I couldn't tolerate Morphine, so they switched me to Demerol. Instructing me to remind my surgeon for the takedown surgery so I could go straight to Demerol. It worked. I remember lying on that operating table, nervous, giving ole Nelly one more look (I was wearing the clear ostomy bags again. No I hadn't really named my ostomy but I do remember giving her one more look. And saying - Demerol!)

That said, I remember so much about my post-takedown surgery, the recovery room, the ride in the hospital use only elevator, the two surgical techs taking me to my room, getting settled into my room, seeing my husband sitting there working on his laptop. All of it, not a hazy blur but somewhat clear. First time I swear but I lost 48 hours after that surgery. I was literally out of it they said, I needed 2 blood transfusions, I was doing so bad.

So because I was somewhat alert, I recovered faster. When it was time to walk, I walked. When it was time to do the breathing exercises, I did them. I packed a steno pad of paper and kept a schedule, each hour I did 10 or 12 breathing exercises and then walked. I was up to 2 complete laps around the entire surgical floor at discharge time. For each walk, I'd walk for 5 more minutes or count hospital rooms doors, 5 more doors. One of the nurses glanced over at me and said - are you going for a world record? I said - oh no, I just want to recover faster and get back on my feet. She said - ah, second surgery? I said - yes (and in my head I'm thinking, and my very last one, thank you very much, so far it's been my last surgery to date). She laughed. Over time, the nurses just gave me privacy. Because I was tracking my personal progress on the walking/breathing exercises they would stick their head in the door - did you do them? I'd say - yes, 12 more and 1 lap. Whatever it was. They'd laugh and be on their way. First time around, I swear but if a cowboy had lassooe'd me and hog tied me to that surgical floor I would have balked. First time around, I wanted to lie in a hospital bed for a week and be left alone. lol I also would only be in my bed to sleep or for short naps during the day, I made myself sit upright in the room's recliner. So I'd start that road to healing. It worked too!

Ah but I did have pain. First stab took my breath away. The nurse said - did you think you wouldn't have pain? You have abdominal stitches, of course you'd have pain! I laughed and said - my surgeon kept saying this surgery would be a breeze. Well it was, compared to the first surgery. The surgery from he**.

Ditto on the sitz bath, they are extremely soothing. Make sure the nurses send you home with one. You can add 1 tablespoon of baking soda or 1 tablespoon of the Aveeno packets (that you use for poison ivy soaks in the bathtub) to the water. Both have healing powers to tender tissue.

The hospital toilet tissue is like sand paper. Either bring your own or use the washcloths as someone stated. You will come to despise that hospital TP, I definitely did.

Finally, I eventually bought these but you might want to wear one when you're discharged - Stayfree Maxi Ultra Thin overnight long pads, with wings. Yes I know they're pads for women but men have worn them. In fact on another medical forum I read that men were wearing them, they're extremely thin, very absorbent, go way up in the back of your underwear. Perfect for minor drips. Also sit on an old towel in the car, that's probably for peace of mind, not because you'll have a full blown accident.

Good luck. Sorry to have written you a book here.
- Rectal CA 4/29/99, Stage I, 90% sigmoid/15" of colon/GB removed, temporary colostomy, reversed 6-26-99
- Chronic IBS/D symptoms, multiple bm's, on low residue diet
- Colace 50 mg + Renew Life/Ultimate Flora/Critical Care/80 Billion daily


pam222
Veteran Member


Date Joined Jun 2009
Total Posts : 985
   Posted 7/4/2010 11:12 AM (GMT -6)   
Good point about the baking soda and oatmeal bath stuff. I use baking soda every time I take a bath now because it really does sooth things. I also use the oatmeal bath sometimes but it's expensive and baking soda is around 50 cents a box.
27/F Diagnosed with unspecified UC 11/08 (symptoms for over a year before)
Asacol, Prednisone, Remicade with no success--no remission for over 2 years
8/09 colonoscopy shows that the whole colon is affected
12/18/09 Removal of colon, creation of J-Pouch and ostomy; recessed stoma; 12/30/09 Takedown too soon; RV fistula;1/9/10 Second Ileostomy Surgery;
1/25/10 Stoma Revision Surgery; 3/30/10 Takedown again; 6/9/10 Scope and Biopsy--Diagnosed with Crohns Disease (maybe...)
Tried gluten free and dairy free with no noticeable improvement; Was on TPN and IV fluids 2/10-6/10. Currently:Prednisone 40 mg, Culturelle, D, B12, Iron, Prenatal vitamin, Lomotil, Lortab, Humira, Rowasa


Marsky
Veteran Member


Date Joined Jul 2007
Total Posts : 1956
   Posted 7/4/2010 6:12 PM (GMT -6)   
I recently found a generic Aveeno oatmeal bath packet box (4 or 5 bags to box). I found it at Kroger's, their named brand. Same thing as Aveeno.
- Rectal CA 4/29/99, Stage I, 90% sigmoid/15" of colon/GB removed, temporary colostomy, reversed 6-26-99
- Chronic IBS/D symptoms, multiple bm's, on low residue diet
- Colace 50 mg + Renew Life/Ultimate Flora/Critical Care/80 Billion daily


Anthony1977
Regular Member


Date Joined Jan 2009
Total Posts : 413
   Posted 7/4/2010 7:53 PM (GMT -6)   
Thank you all, again, for the responses. Right now I am just trying to soothe this fr**** sun burn I got today. I am looking forward to getting this all done and behind me and to start getting on with the rest of my life. Although, I must say, I am feeling a million times better with the ileostomy. I almost went for a run today until my mom and brother started screaming at me. I have a lot of energy now and I am ready for this. 3 years were stripped of my life with UC. It comes to a complete end now! I will be keeping in touch with you all when I am in the hospital. Love ya all!!

- A

Scrap Girl
Veteran Member


Date Joined Jan 2007
Total Posts : 653
   Posted 7/4/2010 9:16 PM (GMT -6)   
Anthony, hope everything goes well. Keep us posted!
Diagnosed with UC in Feb. 2005
 
Asacol, Colazal, Prednisone, Rectal Meds, Remicade, Humira
 
Now UC Free!
First step of j-pouch - April 1, 2010
Second Step - 9/14/10
Third Step - TBD


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16728
   Posted 7/5/2010 11:28 PM (GMT -6)   
I can't believe it is already time for your takedown. So exciting!!! I can't wait to hear about it.
March 07: DIagnosed with Mild Proctitis - Canasa as needed.
August 08 - December 08: FLARE & Anemic - Started Asacol!!
January 09 - December 09: REMISSION!! Asacol (9) + Canasa 1g AM/PM
December 09 - January 10: FLARE!! Asacol + Prednisone + Canasa
February 10 - April 10: Colazal + Prednisone + Canasa
May 10 - June 10: Lialda + Cort Enema + Prednisone
Current: Mild / Moderate Active Pancolitis: Prednisone, 6mp, klonopin FEELING OKAY!!


Anthony1977
Regular Member


Date Joined Jan 2009
Total Posts : 413
   Posted 7/6/2010 6:38 AM (GMT -6)   
god, yeah, it is tomorrow morning. Looking forward to getting this all behind me and just get moving on with things.

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16728
   Posted 7/6/2010 11:56 PM (GMT -6)   
GOODLUCK TOMORROW!! :))))
March 07: DIagnosed with Mild Proctitis - Canasa as needed.
August 08 - December 08: FLARE & Anemic - Started Asacol!!
January 09 - December 09: REMISSION!! Asacol (9) + Canasa 1g AM/PM
December 09 - January 10: FLARE!! Asacol + Prednisone + Canasa
February 10 - April 10: Colazal + Prednisone + Canasa
May 10 - June 10: Lialda + Cort Enema + Prednisone
Current: Mild / Moderate Active Pancolitis: Prednisone, 6mp, klonopin FEELING OKAY!!


Anthony1977
Regular Member


Date Joined Jan 2009
Total Posts : 413
   Posted 7/7/2010 9:17 AM (GMT -6)   
i am at hospital registration now!!! wish me luck. I will let you guys know as soon as everything is all done.

hateuc
Veteran Member


Date Joined Jun 2010
Total Posts : 2354
   Posted 7/7/2010 10:33 AM (GMT -6)   
Good luck Anthony!
Proctosigmoiditis
2 Lialda/day  Rowasa nightly
VSL#3
Metamucil wafers


NewShinyCD
Regular Member


Date Joined Oct 2009
Total Posts : 474
   Posted 7/7/2010 10:38 AM (GMT -6)   
Good luck dude. I have 6 more weeks until I get my jpouch checked. Time is flying by lol.
21 y/o male livin' in Georgia. Diagnosed with Left-Sided Colitis in 2002; re-diagnosed with Pancolitis in Nov. 2009.
June 2010 I beat UC by having surgery.
Drugs tried: Just about every 5ASA medicine, enemas, prednisone, turmeric, fish oil, Remicade, psyllium seed powder, Metamucil.
Unable to take 6MP.
Step one of Jpouch surgery - 6/2/2010
Readmitted back to hospital because of blockage (my fault cause I ate Steak n Shake 3 days after being released from surgery) - 6/10/2010
Step two of Jpouch surgery - 9/?/2010


Collicat
Veteran Member


Date Joined May 2009
Total Posts : 827
   Posted 7/7/2010 11:35 PM (GMT -6)   
hope things are going okay...thinking about you yeah

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 7/8/2010 2:36 AM (GMT -6)   
Thinking about you and praying that your surgery went perfectly!

:-) Cecilia
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.


Anthony1977
Regular Member


Date Joined Jan 2009
Total Posts : 413
   Posted 7/9/2010 8:46 AM (GMT -6)   
Thanks all. my ostomy has been closed up and i have started passing bm's last night. 5 to start out with. I have been going about 8-10x a day it seems and it is a weird sensation since I have done that in a while. Anywbody hear from Christine1946?

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16728
   Posted 7/9/2010 3:59 PM (GMT -6)   
NO. I have been thinking about her too.
 
Happy to see you back. I know they say in the beginnning you have a lot of movements with a new pouch but it should decrease with time :) You're so lucky. I wish I was post step-2 haha. xoxo
March 07: DIagnosed with Mild Proctitis - Canasa as needed.
August 08 - December 08: FLARE & Anemic - Started Asacol!!
January 09 - December 09: REMISSION!! Asacol (9) + Canasa 1g AM/PM
December 09 - January 10: FLARE!! Asacol + Prednisone + Canasa
February 10 - April 10: Colazal + Prednisone + Canasa
May 10 - June 10: Lialda + Cort Enema + Prednisone
Current: Mild / Moderate Active Pancolitis: Prednisone, 6mp, klonopin FEELING OKAY!!


pam222
Veteran Member


Date Joined Jun 2009
Total Posts : 985
   Posted 7/9/2010 6:20 PM (GMT -6)   
8-10 is not bad
Glad it went well!
27/F Diagnosed with unspecified UC 11/08 (symptoms for over a year before)
Asacol, Prednisone, Remicade with no success--no remission for over 2 years
8/09 colonoscopy shows that the whole colon is affected
12/18/09 Removal of colon, creation of J-Pouch and ostomy; recessed stoma; 12/30/09 Takedown too soon; RV fistula;1/9/10 Second Ileostomy Surgery;
1/25/10 Stoma Revision Surgery; 3/30/10 Takedown again; 6/9/10 Scope and Biopsy--Diagnosed with Crohns Disease (maybe...)
Tried gluten free and dairy free with no noticeable improvement; Was on TPN and IV fluids 2/10-6/10. Currently:Prednisone 40 mg, Culturelle, D, B12, Iron, Prenatal vitamin, Lomotil, Lortab, Humira, Rowasa


Collicat
Veteran Member


Date Joined May 2009
Total Posts : 827
   Posted 7/9/2010 11:09 PM (GMT -6)   
Glad to hear things went well. Remember to keep walking

~ChristieAnn67~
Regular Member


Date Joined Dec 2007
Total Posts : 151
   Posted 7/9/2010 11:43 PM (GMT -6)   
I remember that day...having my takedown.   Compared to all the complications I had prior to it,  the takedown was piece of cake.   Was so exciting to have little BMs again.    I was in hospital 2 days.  :o)    I use the flushable wipes with aloe,  have prep H,  A&D ointment with zinc and aloe and a numbing creme for those rough days.   walk and use your incentive inspirometer and you'll be home getting on with your life in no time.  Good luck!! 
                                          ~Christie~
43 yo RN, happily married, with 2 beautiful daughters, Tianna(16 yo) and Alyssa(12 yo).   Diagnosed Ulcerative Colitis in Jan '04 and Diabetes type 2 in June '05.  Had THE surgery (and more) starting March 3rd,  2009.  You can read my whole story at my blog, Christie's World.   
                                         Medications
Lantus insulin 10units daily,  Imodium 4mg before meals and at bedtime, Metamucil wafers,  Estradiol 1mg daily, and a multi vitamin.
"...never trust a fart" ~ Edward Cole 'The Bucket List'

 

 


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