Sno, my surgery was June 21st....I had a subtotal colectomy with a temporary loop ileostomy...you are right, this stoma really freaks me out too. At the hospital, I felt faint when I saw the stoma for the 1st time.
I had to wipe around it and then it was moving and looked like it was breathing and I did not expect that....it then proceeded to poop everywhere....thank GOD the stoma nurse was with me helping me.
How often are you going to change your system? I am hoping to change mine every 5 to 7 days and to change the bag itself every other day???? My husband had to help me on Tuesday change my system as I had sprung a leak, which was my own fault because I tried to rinse the bag out which got water under the barrier.
I also worry about
the stoma and its output. If it is quiet for an hour or so, I get my butt up and start walking and walking....I can't relax again until it starts working again. My family thinks I am a worry wart and I agree with them, but it is going to take some time for me to learn what is normal for my stoma and output.
I plan to go back to work August 2nd and that makes me nervous....hoping I am ALOT better by then. I am a school bus driver. Right now, the thought of going back to work makes me extremely nervous.