What to Eat after surgery?

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sno92c
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Date Joined Sep 2009
Total Posts : 81
   Posted 7/3/2010 9:07 PM (GMT -6)   
I should know this but for some reason I get home from the hospital after a total proctocolectomy and don't know what foods I could eat, should eat etc. I really don't have any energy to cook. Any ideas?
Diagnosed in 2004 with Crohn's disease. Resection in 2009. Have tried almost every medication and nothing has worked. Next step permanent ostomie.


answers4me2
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Date Joined Dec 2008
Total Posts : 1325
   Posted 7/3/2010 9:40 PM (GMT -6)   
Sno, I have been eating saltines, white toast, biscuits, rice a roni, turkey sandwiches, potatoes, applesauce, baby food bananas to help thicken my output, soup, tender chicken, pudding, pretzels, and peanut butter crackers. I also have eaten chicken pot pie from KFC, but I only ate the crust, the tender pieces of chicken, and the potatoes....I did not eat the peas or carrots. I have also been chewing all my food extra long....

How are you feeling? How is your stoma doing? How often do you plan to change your bag? This stoma is like having a newborn baby isn't it? Mine is outputting too much, but I finally broke down today and took some immodium and that has helped....

summerstorm
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Date Joined Aug 2006
Total Posts : 6571
   Posted 7/3/2010 11:00 PM (GMT -6)   
after about 6 weeks you can eat whatever. At first i ate a lot of crackers, and easy stuff, andfor some reason tons of cheese ravoli! Just stay away from things that are hard to until your stomach has time to adjust
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!


sno92c
Regular Member


Date Joined Sep 2009
Total Posts : 81
   Posted 7/4/2010 12:05 AM (GMT -6)   
Wow thanks you both for answering my question...feel much better now. I'm feeling ok just nervous about when I have to change my whole system myself without a nurse. My home health nurse won't be with me to help so Monday I will place my new wafer on and clean my self up. They told me to change just the bag every couple of days. My output is not too bad sometimes when a lot doesn't come out I worry that there is a blockage (paranoia). The stoma is like a baby or a worm with a mouth the spews out poop. It's so alive and moving it kinda freaks me out. How long ago was your surgery answers?
Diagnosed in 2004 with Crohn's disease. Resection in 2009. Have tried almost every medication and nothing has worked. Next step permanent ostomie.


answers4me2
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Date Joined Dec 2008
Total Posts : 1325
   Posted 7/4/2010 7:48 AM (GMT -6)   
Sno, my surgery was June 21st....I had a subtotal colectomy with a temporary loop ileostomy...you are right, this stoma really freaks me out too. At the hospital, I felt faint when I saw the stoma for the 1st time. rolleyes I had to wipe around it and then it was moving and looked like it was breathing and I did not expect that....it then proceeded to poop everywhere....thank GOD the stoma nurse was with me helping me.

How often are you going to change your system? I am hoping to change mine every 5 to 7 days and to change the bag itself every other day???? My husband had to help me on Tuesday change my system as I had sprung a leak, which was my own fault because I tried to rinse the bag out which got water under the barrier.

I also worry about the stoma and its output. If it is quiet for an hour or so, I get my butt up and start walking and walking....I can't relax again until it starts working again. My family thinks I am a worry wart and I agree with them, but it is going to take some time for me to learn what is normal for my stoma and output.

I plan to go back to work August 2nd and that makes me nervous....hoping I am ALOT better by then. I am a school bus driver. Right now, the thought of going back to work makes me extremely nervous.

summerstorm
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Date Joined Aug 2006
Total Posts : 6571
   Posted 7/4/2010 10:57 AM (GMT -6)   
i had surgery april 17, 2007, so its been over three years.
You dontneed to change your bag every other day! To me, its more of a pain to change just the bag than the whole thing. The only time i change just the bag is if i have just put the whole system on and realize something is wrong with the bag. And after putting on a sure seal and taping the top of my bag down, its hard to get it off.

Here is a random tip that i often forget to tell people, when i change my system i pull the top part down and keep it all hanging in the trash bag i am going to put it in, then i put my thumb on the area right above the stoma and press down, really hard, that makes any poop thats coming out anytime soon, come on out! then i dont have as much risk of it runnign out everywhere! Also, my stoma is only uncovered for about 5 seconds during the whole change, the rest of the time i have a towel square on it!
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!


sno92c
Regular Member


Date Joined Sep 2009
Total Posts : 81
   Posted 7/6/2010 9:33 AM (GMT -6)   
Answers I am so glad you feel the same way I do about the stoma. A home nurse is coming home to help me change my system today because I still don't get it and my husband is going to watch just in case. I was told to change my bag every 2 days and my system every 3-4 days. Changing it once a week would be awesome but I don't think it will last. Do you shower with the bag uncovered? One nurse said to cover it with wrap. I don't.

My output is very thick and at times it takes a lot of water for me to clean the bag out. I really want to clean the stoma off with water but I don't want to get it in the barrier also. My appetite is good and I actually really want to eat more but I am scared of blockage and the ng tube!

My surgery was July 16th and my doc gave me leave until September. I think you will be ready but if you are not don't go! I don't think I could go back that soon. My confidence is low though.
Diagnosed in 2004 with Crohn's disease. Resection in 2009. Have tried almost every medication and nothing has worked. Next step permanent ostomie.


answers4me2
Veteran Member


Date Joined Dec 2008
Total Posts : 1325
   Posted 7/6/2010 10:10 AM (GMT -6)   
Sno, I tried rinsing my bag out, but somehow I got water under the wafer and ended up having to change the wafer....so, I have not tried rinsing the bag out again. I think I may put some stuff in the bag to try and keep the poop from pancaking around the stoma and sticking to the bag. It is called adapt lubricating drops....have you tried these? They sent me free samples in the mail and I haven't tried them yet.....

I also had a bag that was beige and I liked that better. I was a little nervous that I couldn't see the stoma, but after I realized I could click the bag off and take a peek, I was okay. I like the beige bag because if your bag accidentally shows, nobody can see what is in the bag. I ordered more of the beige bags and hope they get here soon.

As far as showering, I have only showered with the bag on, on bag change days. And the other day, I actually took the bag and wafer off and washed the area with some water. It felt sooo good too. On the other days I have been taking a sponge bath and washing my hair in the sink. I don't like the feel of the wet bag. EWWW

I am also worried about getting a blockage and still am eating the same foods. The only thing I have added is turkey sandwiches and rice a roni, the beef flavor and I strain the carrots out of the sauce before cooking. I have read where several people have had issues with pasta, so I have not tried eating any of that yet. What are you eating?

I see my doctor on July 21 and I will see what he has to say about me returning to work the 1st of August. I drive a school bus with no air and it is very hot...like 115 degrees hot. YIKES So, I am worried about getting dehydrated. I may ask him to write me out for 6 more weeks??? We will see.

answers4me2
Veteran Member


Date Joined Dec 2008
Total Posts : 1325
   Posted 7/6/2010 10:15 AM (GMT -6)   
Also, is your skin irritated at all?My skin around the stoma is a little red and irritated and it itches really bad at times. I see the stoma nurse tomorrow and am hoping she will know what I need to do. I hope poo isn't leaking under the wafer and I just can't see it.

What bags are you using? I am using hollisters new image for the time being.

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 7/6/2010 6:59 PM (GMT -6)   
why do you think you need to see your stoma?
And as for the bag being wet, dry it off wtih the hair dryer! Get a sure seal over the wafer, then when you get ready to get in the shower, tape your bag up on itself, so it doesnt hang on you and touch you, that also keeps it from getting as wet!
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 7/6/2010 7:00 PM (GMT -6)   
and for foods, just try small amounts with lots and lots of water!
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!


sno92c
Regular Member


Date Joined Sep 2009
Total Posts : 81
   Posted 7/6/2010 11:11 PM (GMT -6)   
Answers, I use Hollister 2 piece pouching system with adapt lubricating deodorant. I have actually been eating a lot of things like bread, peanut butter, rice, pasta, waffles, chicken, crackers, well cooked broccoli, cheese...so far no problems but my stool is super super thick. I also try to drink lots of water even though sometimes its hard or I get sick of it. I would drink Gatorade but it reminds me of bowl prep drink and that grosses me out.

I have been taking normal showers everyday with no issues. I blow dry the bag. I wish I had the beige bags but so far I only have the clear ones and it sometimes looks so gross. My stoma is always covered with stool too. My skin has not become irritated but it has right near my stoma. The nurse put stoma powder on it and it cleared up.
Diagnosed in 2004 with Crohn's disease. Resection in 2009. Have tried almost every medication and nothing has worked. Next step permanent ostomie.

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