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answers4me2
Veteran Member


Date Joined Dec 2008
Total Posts : 1325
   Posted 7/4/2010 5:46 PM (GMT -6)   
I noticed last night the barrier for the pouch was getting pretty itchy. But, my husband was asleep, so I decided to wait until today to change...so, I decided to take a shower. I washed my hair and body, then took off pouch and washed the area around stoma with plain water. EWWW, still getting used to looking at the stoma.

Anyway, my husband comes into the bathroom and measures the stoma and then proceeds to cut the barrier to fit around the stoma. Well, I am drying the skin and guess what? The blasted thing starts shooting crap everywhere...all over the floor, all over my legs and feet. EVERYWHERE! I had eaten 2 1/2 hours prior to this. We sat there and I cleaned myself up over and over again for 40 minutes.

We finally got the barrier on, but my husband noticed that the barrier was cut too tight and was touching the stoma...but we couldn't change it at that time because of the overactive stoma. I tried calling the home health service that came out Tuesday to do paperwork, but they acted like they had no idea who I was and promised to call me back....they have yet to call me back. JERKS! I considered going to the ER, but luckily my friend called whose husband has an ileostomy and she came over straight away and helped me cut the barrier and put the barrier on.

When is the best time to change? My stoma nurse told me to change 1st thing in the morning, but I have noticed every morning that as soon as my feet hit the floor, my stoma starts farting and pooping....so, that is not going to work either.

The skin was a little red and inflamed around the stoma and itchy. In between spurts of poop, I cleaned around the stoma with plain water, then placed the stoma powder on it, wiped the excess off, then tapped the allkare wipe over the powder. The skin feels much better and has quit itching....

I think I may need to go back to the ostomy nurses at the hospital because they have a clinic too. I have no idea what I am doing and do not want my skin to get worse...

This ostomy is like a newborn baby. Yesterday it was pouring liquid poop, tons of it. I had to take immodium to slow it down. Today the output is so thick, it is stuck to the sides of the bag. GROSS

I am sure this will get easier with time....

Thanks for any advice, Tracy

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 7/4/2010 8:43 PM (GMT -6)   
the best time depends on the person, i change at random times after eating, after not eating, whenever i get a chance.
If you havent had the ostomy for very long it is going to be much more active at first. And it will get easier to change after a while, i promise, lol.
As for it touching the stoma, my wafer does and i havent seen a problem so far, noone told me it wasnt supposed to.
a good thing to do is have all your stuff out and completly ready before you start a change, have your wafer cut, your paste or seal or whatever on, everything ready!
I change mine in the bathroom and i stand on a waterproof pad, and i pull the bag off partway, clean around the top, then press on my stomach while the bag is still partway on and the stoma is hanging into the bag and any poop that is fixing to come out gets squeezed out that way.
Then as soon as i remove the bag a towel square goes over the stoma, my stoma is only uncovered or not in that bag for about 5 seconds. I lay down, stoma still covered, get my wafer and a clean towel square, pull the dirty square up, slap on the wafer then put the clean square on top. that way there is always somethign there to catch any poop!
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!


answers4me2
Veteran Member


Date Joined Dec 2008
Total Posts : 1325
   Posted 7/4/2010 10:15 PM (GMT -6)   
Thanks Summerstorm....that is good to know that the wafer touching your stoma has never caused you any problems....I was freaking out thinking that I was damaging my stoma by strangling it or something. I need to try harder to relax....how long did it take for you to be able to change the pouch and feel comfortable doing it? I am going to call my insurance tomorrow and ask for a new home health service that has a stoma nurse that can come out for the next couple of weeks.

How often do you change your pouch?

esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 7/4/2010 10:54 PM (GMT -6)   
Tracy,

I change first thing in the a.m. but I make sure the night before that I have not eaten or drunk anything past 5 p.m. (Dehydrated when I do it but Oh, well.)

I do remember when it was new it almost always went off as I changed it. With time, it can be totally calm for 30 mins while I change it. Then I eat breakfast and have very little output. I used to eat breakfast and have about a half bag of output. The change is dramatic but then I output more during the day. This is truly hard to wrap the brain around and I can honestly say "I hear you." Hang in; it gets easier.

Rosemary

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 7/4/2010 10:55 PM (GMT -6)   
it was probably 3 or 4 months before i changed it by myself. My husband had always helped me. But one day i just decided to do it, and doing it by myself it took me like half the time!
i change usually ever 4-5 days
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!


Collicat
Veteran Member


Date Joined May 2009
Total Posts : 827
   Posted 7/4/2010 11:10 PM (GMT -6)   
tracy....has anyone told you about the marshmellow trick. My son used to eat a couple of marshmellows before he was going to do a change and things would slow down greatly for a while. We were told to try this by the dietician at the hospital.

answers4me2
Veteran Member


Date Joined Dec 2008
Total Posts : 1325
   Posted 7/4/2010 11:14 PM (GMT -6)   
Hey Nascar, I saw an ad in the Edgepark magazine for the convatec moldable wafers and so I called the company to ask them if I could use them with a new stoma, etc. They said I sure could and offered to send my some samples....so, I am hoping they will get here this week so I can try them. I do not like having to cut the wafers.....is it pretty easy to get the barrier fitted around your stoma? The company claimed I would not have to use the paste or eaken seals around the stoma...Is this true for you?

Brian84
Regular Member


Date Joined Mar 2005
Total Posts : 457
   Posted 7/5/2010 2:32 AM (GMT -6)   
Hey Tracy, I'm kinda new to this too. I have been eating more since I got the surgery, but it seems like i ALWAYS have output. I'm a week out of surgery and hoping it slows down a little bit. A couple times when I changed it, stuff was coming out everywhere. It's very frustrating because I am not used to wiping the stoma and cleaning it up. As soon as I get out of bed more comes out.
Another thing that I do is keep a cup by the bathroom sink and when I empty it I rinse the bag out to keep it clean.

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 7/16/2010 4:59 PM (GMT -6)   
I find that I can wake up and in about an hour things have settled down enough to get a change in. You don't have to take everything off in the shower unless you want too...I shower, get everything ready and change then...I don't want to have to clean my shower and I would never trust an ileo that LONG!!

Yes, they are a lot like newborns and even talk back like teenagers!!

Don't worry too much right now you will get the hang of it...Try the Eakin Seal with the moldable wafer--it takes the guesswork out and the Eakin soothes the red skin, too!
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008


Kathy S.
New Member


Date Joined Jul 2010
Total Posts : 2
   Posted 7/17/2010 4:42 PM (GMT -6)   
I would change my ileostomy first thing in the morning. I would measure and pre-cut the wafer. I had a template for it. You want it as close to the ostomy as possible so that you won't get skin irration or rash. Using enough barrier wipes helps prevent the rash as well and makes the wafer adhere better. You will gradually learn when your stoma is less active. The texture of the waste depends on what you eat. Don't worry about that at all. You don't want to create a blockage by using a product like Immodium AD. Stay on a low fiber ileostomy diet. Stay away from wheat bread, nuts, lettuce, corn, stringy vegetables and other things that are difficult to digest. Look up ileostomy diets on the Internet. Once you follow that, you may understand it a little better.
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