Lizzie has a new surgery date- Cleveland was able to get her moved up to Thursday, August 12th. She seems to go in and out of ileus, so pray for that, her pain, and that she would be strengthened and encouraged as surgery approaches.
Cherry - Welcome! I had a total colectomy almost three years ago when I was 21. Mine was for colonic inertia, but if you have any questions, please don't hesitate to throw them out here...everyone on this forum is wonderful, and you will find a wealth of knowledge.
Snuggle - Ugh. I'm in the middle of biofeedback too. Not so fun. They even ordered topical Lidocaine for me because of the pain. The first day, my numbers were so high (and already had a total colectomy) that the PT changed out all of the equipment because surely, she though, a wire had to be broken. Nope! I'm the broken one. She hasn't been able to do any internal work with me because of how tight things are, and the pain that results from those spasms. I'm about a month and a half in, and as of now, this will continue through October...can't say I'm optimistic about it working, but it's what all the doctors want to try. How long are they going to keep you doing biofeedback?
Jenise - Prayers for Monday!!!
J-Rex - Welcome! And I feel your pain. I was 21 when I had my total colectomy. I'm almost three years post-op, and I can honestly say it was the best decision I have ever made. I have significant motility problems with my entire GI tract (stomach, small intestine, and rectum), so life is not perfect, but I can function, and my worst days now are better than my best days with a colon. I've had every motility study in the book done, so please feel free to ask anything! If you feel better waiting until after your BM to start the study, have it rescheduled. The most important thing is to be off any and all laxatives for several days to allow those to clear out of your system. This one Sitz study will not determine whether you have surgery. They will do several motility/transit studies to make sure the diagnosis is correct. One is the "scrambled egg test" where you swallow an isotope pill, then eat some eggs that have been injected with an isotope. You will be there all day, as they take scans at different time intervals. Then you come back for however many days after for more pictures.
Tracy - I am sorry about the unpleasant follow-up. Rest assured, it is NOT in your head. If anismus was in our heads, the biofeedback machine wouldn't freak out when they hooked us up to it. If he was uncharacteristically agitated and rushing, he may have just gotten an emergency page that required his presence in the OR. What have you been able to eat so far?
Happy weekend, love and prayers,
Life-long GI problems.
- 2004: Motility problems completely took over my life (I was 18). Tons of doctors later...
- July 2007: Diagnosed with colonic inertia, small bowel dysmotility, delayed gastric emptying, rectal dyssynergia at the Mayo Clinic
- November 2007: Total colectomy with ileorectal anastomosis; IV lipids, PICC TPN
- Post-op: Better, initially. Motility slowed again 8 months after surgery. I currently have chronic debilitating pain due to a small bowel dysmotility.
- September 2008: Barium study shows dilated small bowel loops (4.9cm), indicative of partial obstructions
- May 2010: Doctors suspect worsening rectal dysmotility; manometry inconclusive; rectal biopsies normal
- June 2010: Biofeedback (entire pelvic floor in full spasm...PT has quite the project on her hands!)
Currently trying to figure out what my physical abilities will allow me to do career-wise. Psalm 73:26 - My flesh and my heart may fail, but God is the strength of my heart and my portion forever.