jpouch/UC in rectum?

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~ChristieAnn67~
Regular Member


Date Joined Dec 2007
Total Posts : 151
   Posted 7/9/2010 10:31 PM (GMT -6)   
Hello.   I have a jpouch now.   Had takedown,  and now doin fairly well...however just feel like some things are just still not quite normal.  I am 98% better than when I had full UC, but  There are times I almost feel kind of like I still have UC,  I asked my colorectal surgeon if I still have UC or not.  He said no, initially, then said well,  about this much UC (indicating about an inch or so).   I still have part of my rectum which has UC still...so question is:   Can I flare in that small amount of UC rectum??  What ya think? 
                                          ~Christie~
43 yo RN, happily married, with 2 beautiful daughters, Tianna(16 yo) and Alyssa(12 yo).   Diagnosed Ulcerative Colitis in Jan '04 and Diabetes type 2 in June '05.  Had THE surgery (and more) starting March 3rd,  2009.  You can read my whole story at my blog, Christie's World.   
                                         Medications
Lantus insulin 10units daily,  Imodium 4mg before meals and at bedtime, Metamucil wafers,  Estradiol 1mg daily, and a multi vitamin.
"...never trust a fart" ~ Edward Cole 'The Bucket List'

 

 



killcolitis
Veteran Member


Date Joined Dec 2009
Total Posts : 2396
   Posted 7/10/2010 2:28 AM (GMT -6)   
Hi Christine, I'm sure the experts will have better advice (my daughter has pancolitis, i don't have UC) but I think that's called cuffitis. I think it's easily treatable with a suppository.

honestwoman50
Veteran Member


Date Joined May 2009
Total Posts : 833
   Posted 7/10/2010 12:14 PM (GMT -6)   
ChristieAnn67~
What kind of surgery did you have?  So are you now re-connected?  Hope your doing well.
 
Leslie
Leslie King
 
  1984 Tubligation  1992 Diagnosed with Thyroid tumor    
1993 Gallbladder Removed  1997 Hysterectomy  1998 Carpol Tunnel 
 1999 Spinal Cord Surgery for a Anacroid Syst
2001 Lower Lumbar Fusion L4-5  
2003 Sigmoid Colon Resection
 2006 Right Knee Replacement 2005 Breast Reduction
 2008 RE-did the Lower Lumbar Fusion/ lamanoctomy
2010 DX: colonic Inertia/ Pelvic Floor Disorder
2010 Total Colectomy ABD W/O proctectomy; w/Ileosto
 
  


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 7/10/2010 12:29 PM (GMT -6)   
It sounds to me as if your surgeon left your rectal cuff and if so then yes, you may still get UC-like symptoms in that tiny portion of remaining tissue. You can treat that area with UC meds, both oral and suppositories or enemas. My rectal cuff was stripped so I no longer have any UC issues. My understanding is that many surgeons choose not to strip the cuff as it's very easy to render the patient incontinent. Only very very experienced surgeons will strip.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free

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