My next surgery.

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David Martin
Regular Member


Date Joined Mar 2010
Total Posts : 172
   Posted 7/11/2010 9:28 PM (GMT -6)   
im about a month away from getting surgery 2 out of 3. im taking the bag ok i dont really have too many problems but it has kept me bored all summer. but i managed to get about 62 hours of gaming in hahaha. anywho my question is what should i expect for my next surgery? "all i have had was my colon removed all the way and the next surgery the connecting everything but ill still have my bag."
Adam, 15.

Diagnosed with Ulcerative Colitis a little over three years ago. I no longer have UC. I had surgery may 25.
 


Off All Meds

Meds--
--current meds--
 Dicyclomine ( Bentyl ),Ondansetron ( Zorfran )Sudafed, Robitussin, Viokase, Mesalamine ( Lialda ) ,Canasa (mesalamine ) “Suppository”.

--Off meds--
Hydrocurtisone Rectal, Prednisone, Mercaptopurin (Purinethol)


answers4me2
Veteran Member


Date Joined Dec 2008
Total Posts : 1325
   Posted 7/12/2010 9:46 AM (GMT -6)   
Hey Adam, I am not sure exactly what the 2nd surgery entails, but if you go to youtube.com and type in ucvlog, there is a guy named Dennis that made several videos about ulcerative colitis. He goes over the 3 steps of the j-pouch surgeries and also many more videos about how to take care of the ileostomy, etc. Hope this helps....Tracy
Diagnosed with colonic inertia, anismus, rectocele, and intussusecption

Surgery June 21, 2010-subtotal colectomy, rectopexy, and a temporary loop ileostomy

Take down-TBA


pam222
Veteran Member


Date Joined Jun 2009
Total Posts : 985
   Posted 7/12/2010 9:58 AM (GMT -6)   
I had the 2 step surgery, so 1 and 2 were combined into the first step, so I don't really have any advice as to what the recovery from step 2 will be like. It will easier than step 1, though, I would think, and you seem to be doing very well after that.
Good luck to you!
27/F Diagnosed with unspecified UC 11/08 (symptoms for over a year before)
Asacol, Prednisone, Remicade with no success--no remission for over 2 years
8/09 colonoscopy shows that the whole colon is affected
12/18/09 Removal of colon, creation of J-Pouch and ostomy; recessed stoma; 12/30/09 Takedown too soon; RV fistula;1/9/10 Second Ileostomy Surgery;
1/25/10 Stoma Revision Surgery; 3/30/10 Takedown again; 6/9/10 Scope and Biopsy--Diagnosed with Crohns Disease (maybe...)
Tried gluten free and dairy free with no noticeable improvement; Was on TPN and IV fluids 2/10-6/10. Currently:Prednisone 40 mg, Culturelle, D, B12, Iron, Prenatal vitamin, Lomotil, Lortab, Humira, Rowasa


Scrap Girl
Veteran Member


Date Joined Jan 2007
Total Posts : 653
   Posted 7/12/2010 12:30 PM (GMT -6)   
Adam, I'm having step 2 of 3 in mid-September and I'm expecting to be in the hospital about one week. I don't know if your's was lapro but mine was not so I'll have to be opened up again. Not looking forward to that recovery again. I remember my surgeon saying that the second surgery is easier than the first because you are already used to having the appliance. Why have you been bored though? Your bag shouldn't stop you from doing the things you were doing before.
Diagnosed with UC in Feb. 2005
 
Asacol, Colazal, Prednisone, Rectal Meds, Remicade, Humira
 
Now UC Free!
First step of j-pouch - April 1, 2010
Second Step - 9/14/10
Third Step - TBD


David Martin
Regular Member


Date Joined Mar 2010
Total Posts : 172
   Posted 7/12/2010 9:27 PM (GMT -6)   
@Scrap Girl

I have my next on august 30. and yeah i have to get a ok size cut down my tummy again, recovery sucks but since when is it ever fun haha.


im only bored because my parents "mom" thinks ill rip my gut open or get hurt doing something stupid. the only thing i can really do is sit around the house all day or go to some local stores.
Adam, 15.

Diagnosed with Ulcerative Colitis a little over three years ago. I no longer have UC. I had surgery may 25.
 


Off All Meds

Meds--
--current meds--
 Dicyclomine ( Bentyl ),Ondansetron ( Zorfran )Sudafed, Robitussin, Viokase, Mesalamine ( Lialda ) ,Canasa (mesalamine ) “Suppository”.

--Off meds--
Hydrocurtisone Rectal, Prednisone, Mercaptopurin (Purinethol)


NewShinyCD
Regular Member


Date Joined Oct 2009
Total Posts : 474
   Posted 7/12/2010 11:29 PM (GMT -6)   
Yea that's pretty much all I do right now. I'm doing some online college classes and learning computer programming, Visual Basic.NET for one of my online classes and C#.NET so I can learn to make games in XNA.
21 y/o male livin' in Georgia. Diagnosed with Left-Sided Colitis in 2002; re-diagnosed with Pancolitis in Nov. 2009.
June 2010 I beat UC by having surgery.
Drugs tried: Just about every 5ASA medicine, enemas, prednisone, turmeric, fish oil, Remicade, psyllium seed powder, Metamucil.
Unable to take 6MP.
Step one of Jpouch surgery - 6/2/2010
Readmitted back to hospital because of blockage (my fault cause I ate Steak n Shake 3 days after being released from surgery) - 6/10/2010
Step two of Jpouch surgery - 9/?/2010

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