Proud owner of a Jpouch

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Anthony1977
Regular Member


Date Joined Jan 2009
Total Posts : 413
   Posted 7/12/2010 6:35 PM (GMT -6)   
I got home yesterday from the hospital with success. I was in the hospital for only 4 days because I followed the rules by walking and doing the breathing exercises constantly. I must have walked a mile everyday. I started having bowel movements on day two at night and all seemed to have gone well so now I am at home. I will tell you it is a weird sensation. For some reason I am only having about 3-5 Bm's a day. I mean I am not complaining at all, but I was expecting the 10-15 BM's a day. The sensation you get when you go to the bathroom is so much different and will def take a little time to get used to. Although there is no urgency at all. I have to say that I am very happy with this. I do have very bad gas pains and ab pains from time to time, but I am assuming that is so since I am only day 4 out of surgery. I just had a question about the area where the stoma used to be. They didn't suture it up for reasons of skin flapping etc, so they left the area opened and it needs to be packed with gauze so it doesn't heal over itself. Has anyone had to go through this? How long does it take to heal? It looks like a meteor hit me in the stomach. I do want to thank you all for your support. It has been extremely valuable in my travels with this disease. I am well on my way to getting that fireman job now!

pam222
Veteran Member


Date Joined Jun 2009
Total Posts : 985
   Posted 7/12/2010 8:44 PM (GMT -6)   
They stapled my stomas but only like 2 staples. I didn't have to pack them. They healed within days. My big wound was left open in large spots for 2 of the surgeries and that I did have to pack for about a month. It didn't hurt or anything, though, and healed well
27/F Diagnosed with unspecified UC 11/08 (symptoms for over a year before)
Asacol, Prednisone, Remicade with no success--no remission for over 2 years
8/09 colonoscopy shows that the whole colon is affected
12/18/09 Removal of colon, creation of J-Pouch and ostomy; recessed stoma; 12/30/09 Takedown too soon; RV fistula;1/9/10 Second Ileostomy Surgery;
1/25/10 Stoma Revision Surgery; 3/30/10 Takedown again; 6/9/10 Scope and Biopsy--Diagnosed with Crohns Disease (maybe...)
Tried gluten free and dairy free with no noticeable improvement; Was on TPN and IV fluids 2/10-6/10. Currently:Prednisone 40 mg, Culturelle, D, B12, Iron, Prenatal vitamin, Lomotil, Lortab, Humira, Rowasa


capecodder33
Regular Member


Date Joined Oct 2009
Total Posts : 69
   Posted 7/12/2010 8:47 PM (GMT -6)   
3-5? haha wow, i'm jealous of you already. congrats!

yeah my surgeon let mine heal the same way. looks like you were shot in the stomach, doesn't it? i forget how long it took to completely close up, maybe 2 1/2 weeks... not sure. i used to keep a band-aid over it in the shower.
Male, 30 years old. dx ulcerative proctitis 1987; left-sided UC in 1993; pancolitis in 2005. Tried sulfasalazine, asacol, colazal, rowasa, prednisone, imuran, 6-MP, remicade, and humira.

J-Poucher since 2/11/10. Now UC free and healthy! :-)


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 7/13/2010 12:01 AM (GMT -6)   
Wow, Anthony, congratulations!! yeah So glad to hear you're home already and are doing well!

You might want to take some Gas-X for the pain. The chewable cherry ones are my favorite!
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.


Anthony1977
Regular Member


Date Joined Jan 2009
Total Posts : 413
   Posted 7/13/2010 6:40 AM (GMT -6)   
Thanks everyone. Yeah, I am a little uneasy about the little BM's. It almost sounds too good to be true. I haven't had that number in like 10 years. This question may sound odd, but what is it that you feel when you have to "go"?

Marsky
Veteran Member


Date Joined Jul 2007
Total Posts : 1956
   Posted 7/13/2010 7:18 AM (GMT -6)   
Anthony - as long as you are getting plenty of fluids, good nutrition, following your surgeons orders, I don't think you have anything to worry about. I had the good fortune of having an excellent surgeon I've been told, numerous times, from nurses to my Gastro doc, etc. Well he performed both my surgeries and then left his practice, moving 1,000 miles away. His partner took over my care. As he would listen to my woes of having so many multiple bm's per day he admitted he would have taken a much different approach to my tumor (barely inside the sigmoid). He would have removed my colon and given me a J pouch. But as he said this at the time I was having about 12 bm's a day, he said I would have had at most 6 - 8 with a J pouch. So you're not too far from that 6 -8 mark. As long as you're not struggling to have bm's, don't worry. Ask your doctor to be certain but if you ended up with 3 - 5 a day, wow I'd be SO happy for you!

I was also amazed you were in for 4 days, that was great news to read too. The walking and breathing exercises paid off!

Wishing you continued success with your J pouch and for you to return to your dream job.
- Rectal CA 4/29/99, Stage I, 90% sigmoid/15" of colon/GB removed, temporary colostomy, reversed 6-26-99
- Chronic IBS/D symptoms, multiple bm's, on low residue diet
- Colace 50 mg + Renew Life/Ultimate Flora/Critical Care/80 Billion daily


Scrap Girl
Veteran Member


Date Joined Jan 2007
Total Posts : 653
   Posted 7/13/2010 8:38 AM (GMT -6)   
Anthony, glad to hear things are going so well. You deserve a break after all you've been through. Good luck on your new life!
Diagnosed with UC in Feb. 2005
 
Asacol, Colazal, Prednisone, Rectal Meds, Remicade, Humira
 
Now UC Free!
First step of j-pouch - April 1, 2010
Second Step - 9/14/10
Third Step - TBD


pam222
Veteran Member


Date Joined Jun 2009
Total Posts : 985
   Posted 7/13/2010 2:20 PM (GMT -6)   
When I first started using my pouch, I had to manually empty it with a catheter tube or digital stimulation every 4 hours because my surgeon was concerned about me developing a fistula again and did not want it to get full. The first time I had the pouch, I had a hard time going and he thinks that may be why I had the fistula. So, at first I wasn't going much per day....then it picked up A LOT and I was going all the time
27/F Diagnosed with unspecified UC 11/08 (symptoms for over a year before)
Asacol, Prednisone, Remicade with no success--no remission for over 2 years
8/09 colonoscopy shows that the whole colon is affected
12/18/09 Removal of colon, creation of J-Pouch and ostomy; recessed stoma; 12/30/09 Takedown too soon; RV fistula;1/9/10 Second Ileostomy Surgery;
1/25/10 Stoma Revision Surgery; 3/30/10 Takedown again; 6/9/10 Scope and Biopsy--Diagnosed with Crohns Disease (maybe...)
Tried gluten free and dairy free with no noticeable improvement; Was on TPN and IV fluids 2/10-6/10. Currently:Prednisone 40 mg, Culturelle, D, B12, Iron, Prenatal vitamin, Lomotil, Lortab, Humira, Rowasa


Collicat
Veteran Member


Date Joined May 2009
Total Posts : 827
   Posted 7/14/2010 11:49 AM (GMT -6)   
Anthony....
I am so happy that things went so well. As long as your doctor is happy I would only be excited about the number of BMs. However, how are you eating considering you are only 4 days post surgery? I remember that the first few days, Dillon had fewer BMs which increased about a week later. I think it was attributed to the amount that he was eating.

As to the stoma....Dillon's was stapled so I do not have info

Again.....I am so happy for you!

Anthony1977
Regular Member


Date Joined Jan 2009
Total Posts : 413
   Posted 7/14/2010 12:07 PM (GMT -6)   
I have been eating quite a lot. I fluxuate between 4-8 BM's a day, but a lot if it is because I have a lot of gas and I tend to run to the bathroom for that.

burnabygirl
Regular Member


Date Joined Jun 2008
Total Posts : 205
   Posted 7/14/2010 1:41 PM (GMT -6)   
Nice to know you are doing fine, Anthony. You are so brave.
I don't have the courage and patience for another surgery so I opted for a permanent ileostomy, which I am very happy with.
Good luck.
Ulcerative proctitis diagnosed in July 2006. Medications: Salofalk enema nightly. Remission from Nov 2006 to Oct 2007. Then a bad cold and a bad flare for 1 year till Nov 2008.
Pancolitis diagnosed in April 2008. Previous medications: Salofalk enema, Salofalk suppositories, Salofalk tablets 1000mg x 4/day, Entocort enema

Supplements: Calcium with Vitamin D, Vitamin B Complex, Omega 3, Vitamin C, psyllium capsules (Metamucil), iron pills.

Flared since July 2009. Hospitalized from Nov 22 to Dec 14, 2009. Discharged with Prednisone and Cyclosporine. Hospitalized again on March 15, 2010. Had surgery on March 26, opted for permanent ileostomy and now live a new life.


suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 7/14/2010 2:45 PM (GMT -6)   
Also your frequency will be lower if you are on pain medication or antibiotics. If that's not the case, good for you Anthony! I was in the 15-20X range right out of surgery!

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 7/18/2010 8:44 AM (GMT -6)   
Anthony....I am sooo happy you are doing so well. Continue the good work buddy! I can't wait to eat a south Philly cheesesteak with fried onions.....think that will ever happen?

NewShinyCD
Regular Member


Date Joined Oct 2009
Total Posts : 474
   Posted 7/18/2010 12:02 PM (GMT -6)   
Christine I ate at Chilis a week ago and Mexican the other day. I can pretty much eat when I want to now. Tacos and Fajitas mmm
21 y/o male livin' in Georgia. Diagnosed with Left-Sided Colitis in 2002; re-diagnosed with Pancolitis in Nov. 2009.
June 2010 I beat UC by having surgery.
Drugs tried: Just about every 5ASA medicine, enemas, prednisone, turmeric, fish oil, Remicade, psyllium seed powder, Metamucil.
Unable to take 6MP.
Step one of Jpouch surgery - 6/2/2010
Readmitted back to hospital because of blockage (my fault cause I ate Steak n Shake 3 days after being released from surgery) - 6/10/2010
Step two of Jpouch surgery - 9/?/2010


Anthony1977
Regular Member


Date Joined Jan 2009
Total Posts : 413
   Posted 7/18/2010 3:02 PM (GMT -6)   
Thanks, Christine ... I see philly cheesteak on this topic and then you start another one with pork chops haha ... I would venture to think you are a tad hungry.

Anthony1977
Regular Member


Date Joined Jan 2009
Total Posts : 413
   Posted 7/19/2010 11:03 AM (GMT -6)   
after reading your post about pork chops and philly cheesteaks I couldn't get them off my mind. So, the only way to remedy that problem was to actually eat them ;) And eat them I did.

Collicat
Veteran Member


Date Joined May 2009
Total Posts : 827
   Posted 7/19/2010 2:14 PM (GMT -6)   
HURRAY....I bet they tasted wonderful

susans53
Regular Member


Date Joined Jun 2010
Total Posts : 318
   Posted 7/19/2010 3:08 PM (GMT -6)   
Congrads on your new pouch. My surgeon did not staple mine either and I had to pack it everyday. Boy, did that hurt!. Took about a month to fully close up.
UC 1996
5 asa, predisone, 6 mp
X-mas present- Dec 26, 2000, Emergency j-pouch surgery
Multiple complications, J-pouch redo- July 3,  2001.
Take down-Jan 3,  2002
Chronic pouchitis: cipro, pentassa, xifican, cortioam, canassa, leviguin, lexapro, vit D, fish oil, probiotics, lot's of other vit's
Gall bladder out-Oct 1997
Latest flare April 27 2010 Hosptial for 1 week-remciade
Possible CD, Possible pouch removal-anxiety-can you blame me?
Adhesions


Anthony1977
Regular Member


Date Joined Jan 2009
Total Posts : 413
   Posted 7/19/2010 5:24 PM (GMT -6)   
The idea of sticking my finger nearly two inches into a hole in my stomach was not the most pleasing thing in the world. It is surprisingly healing fast though. I expect another week or so and it will be closed up.
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